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Throughout my life I found the trick to getting through rough patches meant isolating dark thoughts. I got them out by creating something (artworks, poems, stories), and looked forward to new horizons, though these works could easily be misinterpreted by those around me. When I was fifteen, after my father died and we were forced off the farm, I created a series of disturbing drawings that won the school's art prize and were displayed at graduation. A friend of my mother saw the exhibit and said, “Oh Dorothy, I’m so sorry.” It gave us a laugh later when Mother realized this method of cleansing beat finding a psychiatrist, and the cost couldn’t be beat.
This story is a twist on a familiar Lewis Carroll tale.
It is unsettling in a dementia-like way, spinning the reader from the known into the unknown with just enough of the old story to keep them from tipping completely off balance, hope and dark humor always alive.
This book helped me with the twisting of fact and fiction in my own books, where I used many of my own family incidents (and fears), but gave them to fictional characters with their own generational slant.
In a warren of crumbling buildings and desperate people called the Old City, there stands a hospital with cinderblock walls which echo with the screams of the poor souls inside.In the hospital, there is a woman. Her hair, once blonde, hangs in tangles down her back. She doesn't remember why she's in such a terrible place-just a tea party long ago, and long ears, and blood...Then, one night, a fire at the hospital gives the woman a chance to escape, tumbling out of the hole that imprisoned her, leaving her free to uncover the truth about what happened to her…
A moving story of love, betrayal, and the enduring power of hope in the face of darkness.
German pianist Hedda Schlagel's world collapsed when her fiancé, Fritz, vanished after being sent to an enemy alien camp in the United States during the Great War. Fifteen years later, in 1932, Hedda…
Like the Bach sisters in my novel Things We Do For Love, my sisters and I have cared for our mother, who battles Alzheimer's. Witnessing her transformation from a vibrant powerhouse to someone resembling the Walking Dead has been heart-wrenching. Despite the emotional rollercoaster, this journey has deeply connected us with our mother. Delving into the depths of her being has been a privilege, offering profound insights into her true essence. This challenging experience has unfolded as a disguised blessing. In this journey, we've discovered the beauty of unconditional love that binds our family together. It reflects the central question of my novel: What truly makes a happy family?
The moment I started reading this book, its tone gripped me instantly.
It fearlessly presents challenging and daunting situations with a mix of wit and courage. Darkly observant, the story unfolds with a blend of humour, fondness, and a hint of irony, making "The Leisure Seeker" a bittersweet fable of the golden years.
The book fearlessly confronts the realities and indignities of aging and disease, yet it doesn't fail to celebrate life, embracing every precious moment left in the lives of the characters, even if they are old geezers.
While the subject matter could lead to a somber narrative, the book takes an unexpected turn, becoming a genuinely life-affirming and highly entertaining tale, defying the omnipresent shadow of mortality.
This is the unforgettable cross country journey of a runaway couple in their twilight years determined to meet the end of all roads on their own terms. "The Leisure Seeker" is the story of John and Ella Robina, a couple married 50+ years - she has stopped her cancer treatments, he has Alzheimer's - who kidnap themselves from the adult children and the doctors who seem to run their lives, and steal off on a forbidden vacation. Each battling their own infirmities, John pilots their '78 Leisure Seeker RV (it's the one with the left turn signal blinking) along the…
Throughout my life I found the trick to getting through rough patches meant isolating dark thoughts. I got them out by creating something (artworks, poems, stories), and looked forward to new horizons, though these works could easily be misinterpreted by those around me. When I was fifteen, after my father died and we were forced off the farm, I created a series of disturbing drawings that won the school's art prize and were displayed at graduation. A friend of my mother saw the exhibit and said, “Oh Dorothy, I’m so sorry.” It gave us a laugh later when Mother realized this method of cleansing beat finding a psychiatrist, and the cost couldn’t be beat.
In 1948, my life focused on horses, and this was my favorite book.
Pictures were always a plus since dyslexia (though undiagnosed at that point) made reading difficult.
I have no memory of how well the book might have been written. Most likely I didn’t care, never suspecting I’d become a writer. I lived and worked on a farm, eventually running a boarding stable.
The book didn’t have the horror or the humor, but Lightning’s gratifying story of achievement gave me hope for the future, unlike Black Beauty which filled me with horror. I couldn’t read it to my children.
His hideous treatment overwhelmed me, yet the first two books I wrote were even darker.
In 1913, a 15-year-old pregnant girl was found dead of apparent suicide. Dr. James Wilson, a new graduate and the first doctor ever to start a practice in this rural town, feels guilty over her death because of his delayed intervention.
Throughout my life I found the trick to getting through rough patches meant isolating dark thoughts. I got them out by creating something (artworks, poems, stories), and looked forward to new horizons, though these works could easily be misinterpreted by those around me. When I was fifteen, after my father died and we were forced off the farm, I created a series of disturbing drawings that won the school's art prize and were displayed at graduation. A friend of my mother saw the exhibit and said, “Oh Dorothy, I’m so sorry.” It gave us a laugh later when Mother realized this method of cleansing beat finding a psychiatrist, and the cost couldn’t be beat.
This exquisitely written, dark saga of family intrigue is worth reading over and over, and I do.
The protagonist’s devotion to family and the land that feed her, both physically and emotionally, is rich and consuming.
Events are seen from her point of view and her antagonist’s, giving opposing slants that generate an exquisite tension throughout the book.
This story was instrumental in my education as a writer, as was the author, both showing the use of deep interiority in every character, and a setting that made me live within the story.
Enidina Current and Mary Morrow live on neighboring farms in the flat, hard country of the upper Midwest during the early 1900s. This hardscrabble life comes easily to some, like Eddie, who has never wanted more than the land she works and the animals she raises on it with her husband, Frank. But for the deeply religious Mary, farming is an awkward living and at odds with her more cosmopolitan inclinations. Still, Mary creates a clean and orderly home life for her stormy husband, Jack, and her sons, while she adapts to the isolation…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Reading this book is like sitting in on a support group. It’s a collection of quotes about living with dementia from people who are doing just that.
I love it for churches starting a memory ministry because these quotes could be quickly read aloud in worship services, as a “ministry moment,” or read round-robin style in groups beginning to learn about dementia.
I like the collection of many voices speaking out candidly and poignantly about this difficult journey.
Betsy Peterson spent fourteen years caring for her husband who was suffering from dementia, an experience that put her in touch with others inside the struggle to have or to care for someone with the disease. A combination of contributions from patients, their families, friends, and caregivers, Voices of Alzheimer's gathers the poignant stories, funny quotes, and priceless encouragement that Peterson heard and that helped her along the way. Capturing the many dimensions of the Alzheimer experience-the challenges, the struggles, the humour, and even the rewards-a Voices presents a varied, and realistic, look at what it's like to be affected…
I am a novelist, a journalist, a humanist celebrant, and coauthor with my husband of the best-selling Nicci French thrillers. Witnessing my father’s dementia and his slow-motion dying radically transformed the way I think about what it is to be human. In 2014, I founded John’s Campaign which seeks to make the care of those who are vulnerable and powerless more compassionate, and which is now a national movement in the UK. In 2016, I won the Orwell Prize for Journalism for ‘exposing Britain’s social evils' in the pieces I wrote exploring the nature of dementia.
Drowse Draaisma is a memory specialist, and this lucid, eloquent and humorous book celebrates the rich and fruitful pleasures of memory in later life (and takes the sting out of the natural forgetfulness that comes as we grow older). It combines science, psychology, anecdotes, advice, and it is above all a work of spirit and optimism.
With a storyteller's gift and a scientist's insights, Draaisma celebrates the unique pleasures of the aging memory
You cannot call to mind the name of a man you have known for 30 years. You walk into a room and forget what you came for. What is the name of that famous film you've watched so many times? These are common experiences, and as we grow older we tend to worry about these lapses. Is our memory failing? Is it dementia? Douwe Draaisma, a renowned memory specialist, here focuses on memory in later life. Writing with eloquence and humor, he explains…
Voyager 1 was launched on September 5, 1977, and Voyager 2 was launched on August 20, 1977. Both began a historic journey with unique 'time capsules' on board intended to communicate a story of our world to extraterrestrials. The Voyager message is carried by a phonograph record 12-inch gold-plated disk…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
Ice Cream with Grandpa is about the love between a child and his Grandpa.
The child tells the story beginning with the first time his Grandpa gave him ice cream. Their love of ice cream bonds them, but they also enjoy gardening, and walks in the park. When Grandpa moves to an apartment, it took some adjustment. What helped was the ice cream parlor nearby. Grandpa eventually goes into a memory care home.
The child fears Grandpa won’t remember him. His mom explains that Grandpa is still Grandpa. They can still enjoy spending time together. On Grandpa’s last day in hospice, they eat ice cream. Grandpa passes, but the child continues to remember their love each time he eats ice cream.
This story moved me so much that I cried. I love that this book includes a Guide for Parents and Caregivers: Tips for Talking with Children about Dementia, Hospice,…
After his beloved grandpa's health declines and he receives a diagnosis of dementia, a grandson must navigate the changes in their relationship. Through it all, he learns that Grandpa is still Grandpa, and their bond deepens and sweetens through a shared love of ice cream.
Ice Cream with Grandpa is a loving, tender picture book that gently explores the topics of dementia, aging, and loss. Written from a child's point of view, it chronicles the changes in their relationship as his grandpa moves to assisted living, then memory care, and eventually hospice.
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
Based on Kathryn Harrison’s daughter’s observation about her grandma, Weeds in Nana’s Garden is a metaphor that compares the weeds in a garden with the “weeds” that take over a person’s brain when they have dementia. Kathryn wrote and illustrated this engaging book to help her own children better understand what was happening to their beloved grandmother. I loved both the story and the brightly colored illustrations. Although written with children in mind, I believe it has a message for people of all ages.
A young girl and her Nana hold a special bond that blooms in the surroundings of Nana’s magical garden.Then one day, the girl finds many weeds in the garden. She soon discovers that her beloved Nana has Alzheimer’s Disease; an illness that affects an adult brain with tangles that get in the way of thoughts, kind of like how weeds get in the way of flowers.As time passes, the weeds grow thicker and her Nana declines, but the girl accepts the difficult changes with love, learning to take-over as the garden’s caregiver.Extending from the experience of caring for her mother,…
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
I was drawn in by Marianne Sciucco’s novel about a man caring for his wife with Alzheimer’s. It’s a love story between a long-married couple, one of whom has dementia. It’s about a husband’s determination to honor his wife’s request to stay in their home, even though his own health is failing. It’s about the magic of the day they “escape.” I loved this book because it showed me that love endures despite dementia; despite what life throws our way.
What if the person who knew you best and loved you most forgot your face, and couldn't remember your name? The PromiseA care facility is everyone's solution for what to do about Sara, but her husband, Jack, can't bear to live without her. He is committed to saving his marriage, his wife, and their life together from the devastation of Alzheimer’s disease. He and Sara retired years ago to the house of their dreams, and operated it as a Cape Cod bed and breakfast named Blue Hydrangeas. Jack has made an impossible promise: He and Sara will stay together in…
Deputy Jenna Hart has only been working in her sleepy hometown of Pearl Springs for seven months when city officials begin to be targeted by a killer. Twenty years ago, the construction of a dam caused people to lose their land to eminent domain. That wound has not healed with…
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
This sensitive, charming book shows how a child learns about what is going on in her granny’s brain.
It addresses the emotions that a young child may feel when they witness confusing changes in a loved one’s behavior. This story provides a wonderful opportunity to discuss dementia and what to do if a child has concerns or questions.
Are you looking for a picture book to talk about dementia or Alzheimer's with a child? This Alzheimer’s book for children explains Alzheimer’s dementia in kid-friendly terms. The book presents memory loss in an easy-to-understand narrative.
Boys and girls alike will benefit from this “must have” children’s read. Alzheimer's has an impact on families around the world. This book allows a family to face this challenge together and make the most of every available moment.
In Granny Needs My Help: A Child's Look at Dementia and Alzheimer's the main character Zéh is excited, happy, and challenged as she helps and…