Here are 100 books that Voices Of Alzheimer's fans have personally recommended if you like
Voices Of Alzheimer's.
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I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Moments of joy are often all that can be had by
people in the later stages of dementia when life is lived moment by forgotten
moment. What people may not realize, though, is that while the memories of
joyful moments (an ice cream cone, petting a dog, looking at pictures, taking a
walk) may be quickly forgotten, the emotion of joy will linger.
Brackey tells
us how to create moments of joy for our loved ones with dementia and that
people with dementia have much to teach us about ourselves.
The beloved best seller has been revised and expanded for the fifth edition.
Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or…
It is April 1st, 2038. Day 60 of China's blockade of the rebel island of Taiwan.
The US government has agreed to provide Taiwan with a weapons system so advanced that it can disrupt the balance of power in the region. But what pilot would be crazy enough to run…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
The author, a retired bishop and professor emeritus
at Duke Divinity School, has not only written this book to tell about his
journey as a caregiver to his wife, who died of frontotemporal lobe dementia, but also provides (free of charge) a set of truly excellent companion videos
churches can use to educate their congregations about dementia.
Carder writes
about the transformation in his understanding of love as he learned new ways of
relating to his wife, realizing that she, in her infirmity, had become his
teacher about love.
Dementia diseases represent a crisis of faith for many family members and congregations. Magnifying this crisis is the way people with dementia tend to be objectified by both medical and religious communities. They are recipients of treatment and projects for mission. Ministry is done to and for them rather than with them.
While acknowledging the devastation of dementia diseases, Ken Carder draws on his own experience as a caregiver, hospice chaplain, and pastoral practitioner to portray the gifts as well as the challenges accompanying dementia diseases. He confronts the deep personal and theological questions created by loving people with dementia…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
While there are many great memoirs about
Alzheimer’s, this one is unique. It’s almost an adult picture book that quickly
gives a realistic sense of what living with mid-stage Alzheimer’s is like.
Henderson, a former history professor, carried a tape recorder around with him,
documenting his daily thoughts and struggles. Photographer Nancy Andrews made
stunning black-and-white photos to accompany Henderson’s observations.
It takes
little time to read Henderson’s book, but the understanding it conveys is remarkable. It may be hard to find since it is over 20 years old, but it’s
worth the effort.
A Duke with rigid opinions, a Lady whose beliefs conflict with his, a long disputed parcel of land, a conniving neighbour, a desperate collaboration, a failure of trust, a love found despite it all.
Alexander Cavendish, Duke of Ravensworth, returned from war to find that his father and brother had…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Although this book may not seem to fit the list,
it’s one of the best books on loss I have ever read, and I’ve read quite a few. Dementia is about loss, after loss, after loss. Yes, there are moments and
times of joy. And yes, it challenges and expands our love, faith, compassion,
and sense of self. But dementia is, indisputably, about loss.
I read this book
shortly after my husband’s suicide, and it comforted me at a time when comfort
was hard to come by. My Southern Baptist mother also read it and, when she
finished, held it up and said in her practical, down-to-earth way, “This is a
book I will read over and over again like I read the Bible.”
Rabbi Wolpe’s
book is beautifully written and wonderfully wise, and I recommend it to
everyone.
Some losses are so subtle they go unnoticed, some so overwhelming and cruel they seem unbearable. Coping with grief and experiencing loss overwhelms us in ways that seem both hopeless and endless. In painful moments like these, we must make a choice: Will we allow the difficulties we face to become forces of destruction in our lives, or will we find a way to begin learning from loss, transforming our suffering into a source of strength?
A theologian with the heart of a poet, Rabbi David Wolpe explores the meaning of loss, and the way we can use its inevitable…
The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.
Sticky Notes centers on a parent who has early-onset Alzheimer’s and is told from the perspective of a 10-year-old boy, Foster. The voice is a genuine one and the writing is heartfelt, as Foster compares his own forgetting to Dad’s forgetting and sometimes convinces himself that there is no need to worry. The confusion and lack of clear discussion with Foster about what is happening is a real challenge for many dealing with the disease. As the forgetting gets worse and Dad begins to change, Touchell documents the family changes that Foster and his mother go through too, with a sensitive touch.
For fans of The Thing About Jellyfish, a touching story about the power of love and family in the face of a parent's early-onset Alzheimer's disease.
Ten-year-old Foster has always loved listening to his dad's stories. But lately, Dad's memory hasn't been so great, and Mom's placed sticky notes around the house to help him. As Dad's condition worsens, it's Foster who will need to look deep into his heart and remember for them both.
Sticky Notes is a touching story about the power of love and family in the face of a parent's Alzheimer's disease, and a moving reminder…
I was first a clinical social worker and then a social work professor with research focus on older adults. Over the past few years, as I have been writing my own memoir about caring for my parents, I’ve been drawn to memoirs and first-person stories of aging, illness, and death. The best memoirs on these topics describe the emotional transformation in the writer as they process their loss of control, loss of their own or a loved one’s health, and their fear, pain, and suffering. In sharing these stories, we help others empathize with what we’ve gone through and help others be better prepared for similar events in their own lives.
This book attracted me because, as a gerontologist/social worker, I’m interested in the subject of Alzheimer’s disease (AD) and dementia. This book, rather than describing the long, sad decline of a loved one, tells Bloom’s story of trying to help her spouse with AD to end his life.
Bloom is a clinical social worker who writes with a deep understanding of human behavior and motivation, most notably her own, which makes her a fine memoirist. She writes candidly about her emotions, unafraid to reveal less flattering details.
Her story is a sad one, with many ups and downs, but the overwhelming sense I got was of her powerful love for her husband and desire to give him what he needed in the face of his dementia diagnosis.
A poignant love letter to Bloom's husband and a passionate outpouring of grief, In Love reaffirms the power and value of human relationships.
In January 2020, Amy Bloom travelled with her husband Brian to Switzerland, where he was helped by Dignitas to end his life while Amy sat with him and held his hand. Brian was terminally ill and for the last year of his life Amy had struggled to find a way to support his wish to take control of his death, to not submerge 'into the darkness of an expiring existence'.
The Duke's Christmas Redemption
by
Arietta Richmond,
A Duke who has rejected love, a Lady who dreams of a love match, an arranged marriage, a house full of secrets, a most unneighborly neighbor, a plot to destroy reputations, an unexpected love that redeems it all.
Lady Charlotte Wyndham, given in an arranged marriage to a man she…
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
I can’t even imagine having both parents diagnosed with Alzheimer’s on the same day. But Jean Lee handles this situation with grace and devotion. Through her parents’ letters, she shares their love story. Ed and Ibby have a beautiful bond as do their daughters, yet the girls face a challenging road of caregiving that is sad, humorous, and touching, but always a model for how to love well. In Jean’s book, she casts a spell of nostalgia, faith, and whimsy, pulling the reader into a circle of intimacy.
What would you do if both parents were diagnosed with Alzheimer’s?At the time of their diagnosis, Ed Church struggles to his feet, yelling, “How dare you use the A. word with me,” while Ibby wags her finger at the doctor scolding, “Shame on you.”They protect each other, Ibby by asserting, “We’re not leaving our home,” and Ed reassuring, “We’re just fine.”About his driving Ed defends, “I’m an excellent driver, I’ve never had an accident.” When their daughter, Rosie, finds dings in Ed’s car, he dismisses, “Someone must have bumped into me.”After Rosie moves them to assisted living, convinced they are…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
Granny Can’t Remember Me is told through the child’s eyes. Six-year-old Joey talks about having two grandmas, one who lives in Florida, and one who lives a few blocks away.
His nearby Granny doesn’t remember him, but she does remember stories of when she was young, and when his mother was a child. Joey loves hearing her stories, and playing cards with her. He loves Granny and knows deep down that she loves him, too.
This story was written by a doctor whose mother and father-in-law both had Alzheimer’s. As I read it, I was reminded of my aunt who also had Alzheimer’s. She regaled me with tales of her youth but had no memories of her present. Children will relate to this story as it’s told from a child’s point of view.
Granny Can’t Remember Me is a lighthearted picture book about Alzheimer’s disease and dementia told from the perspective of a six-year-old boy, appropriate for children in preschool through early elementary school (ages 3 – 8). Granny can’t remember that Joey likes soccer and rockets and dogs. Granny can’t remember much of anything. But with Granny’s stories of her Three Best Days, Joey knows she loves him just the same.Alzheimer’s disease is more and more common, and many young children experience this sometimes scary and sad family situation. Granny Can’t Remember Me shows a boy’s acceptance and love for his grandmother…
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
Andrea Couture’s father, a well-known, recently retired surgeon, develops Alzheimer’s at the age of 67. As someone who also lost a parent at a young age, Embracing What Remainstouched a deep place in my heart. I connected with how she processed her emotions through her writing. I also appreciated the way she balances her grief over his disease with the gratitude and joy she discovers in each moment. This is a beautifully written memoir!
***Finalist in Next Generation Indie Book Awards***
Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer’s. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer’s at the age of 67. Her dream to grow closer with him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father’s fate. Andrea rides an unpredictable wave…
This book follows the journey of a writer in search of wisdom as he narrates encounters with 12 distinguished American men over 80, including Paul Volcker, the former head of the Federal Reserve, and Denton Cooley, the world’s most famous heart surgeon.
In these and other intimate conversations, the book…
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
Ann Campanella’s memoir details her journey through caregiving for her mother with Alzheimer’s at the same time she was struggling to start her own family. I felt it all: the anxiety, the frustration, as well as the pain, as she watched her mother decline while coping with an inability to conceive. Ann’s book reminded me to appreciate life’s joys, no matter how small, whether riding a beloved horse, marveling at a sunset, smelling a beautiful flower, or offering a simple hug.
Ann Campanella, a freelance writer and horsewoman, returns to North Carolina after a several year absence. In her mid thirties and ready to start a family, she is used to setting goals and accomplishing them. But when Ann experiences a series of miscarriages at the same time her mother shows signs of Alzheimer’s, she plunges into an emotional journey that leads her to a deeper understanding of herself and what it means to love.
"One of the best Alzheimer's books of all time." - Book Authority
