Books like Tinderbox

I found the total dedication of Dr. Paul Farmer to solving the medical needs of the poor in Haiti, Peru, and elsewhere in the developing world through a combination of grassroots effort and high-level policymaking inspiring, to say the least.

The author of this biographical classic is a master of detail who captures the protagonist's complex essence and the stark medical reality facing the poorest of the poor. His story demonstrates how one person can profoundly affect the world, in this case, solving global health problems despite enduring tremendous personal sacrifice.   

This book is exactly what the title promises, and a great place to start.

It’s written by a Swazi health economist who has worked on HIV in Africa for more than 30 years; I have learned a lot from Whiteside and his research over my years of covering this issue. The book looks at the biology and epidemiology of HIV, and also at all the ways it shapes societies.

Whiteside takes complicated concepts of population dynamics, sexual networking, AIDS, and geopolitical security and explains them briskly, clearly, concisely. His focus is the global AIDS epidemic, but his own work and the book are both deeply rooted in Africa.

I’m going to say right off the top that this book is not well written: it’s turgid and florid and hard to follow. But it’s also recent, unlike most of the books on my list, and it’s the first comprehensive accounting of PEPFAR, the extraordinary US intervention into the African pandemic.

It’s impossible to understand the huge shift in the dynamic of the pandemic without understanding how massively George Bush’s decision to support HIV treatment in Africa changed – well, everything – and Bass is the first writer to try to really dig into that story.

Steinberg is one of South Africa’s great writers of narrative non-fiction; his work is oddly little known outside his home country and it was of huge value to me when I discovered it, not long after I moved to Johannesburg.

This book tracks the progress of a testing and treatment program in Lusikisiki, which had one of the highest HIV infection rates in the world. Part of the story is told through the eyes of a white doctor who expects that, once treatment is there, everyone will seek it out – and a young Black man named Sizwe, clever and successful, who shows all the reasons why HIV response is not as simple as opening up a clinic.

Steinberg’s book probes into some of the messier, less-well-understood dynamics that have driven the pandemic, and features voices rarely heard outside a community like Lusikisiki.

Scientists now know that the AIDS virus, HIV-1, entered the human population much earlier than is commonly thought—back around 1908, give or take a margin of error, and via a single spillover from a chimpanzee into a human, probably by blood exposure when a chimp was killed and butchered for food. Pepin’s book illuminates how the virus might then, slowly and quietly at first, have spread from a forest in southeastern Cameroun, down tributaries of the Congo River to major cities such as Brazzaville and Leopoldville (now Kinshasa), and from there to the world. Pepin’s work was vastly helpful to me when I assembled my own account of that story, included in my own books.

Peter Piot was a young microbiologist at a lab in Belgium, in 1976, when he was assigned to analyze specimens in a thermos bottle shipped up from Zaire, where villagers were dying of a horrific and unknown disease. The thermos contained a virus that came to be known as Ebola. This was the event, as his book vividly recounts, that led Piot to a long and distinguished career in infectious viral diseases, from Ebola to AIDS and beyond.

Eben Venter, though born in the heart of the South African ‘platteland’ (the South African equivalent of ‘fly-over country’), has spent much of his adult life in Australia, and the novel poignantly straddles the two locales: the constricting conservatism of the protagonist’s farm background, and the bewildering freedoms and opportunities of a more cosmopolitan setting. Here that conflict is heartbreakingly acted out and in a grim sense resolved in the main character’s losing battle against AIDS, and his death-bed reconciliation with his hitherto unbending father. Venter gives us a harrowing account of what it is like to die of a disease that wastes your body, blinds you, and makes you mad before killing you. It is all the more remarkable that the experience is registered from the inside, as it were, in a subjective stream of consciousness. The poignancy of the novel is intensified for me by knowing that the… show more.

Emily Martin’s work was some of the first things I read when I wanted to understand how we understand medicine.

There’s such a gap between the health information we’re given and what we actually believe and Martin really covers how Americans have understood the concept of immunity and how we’re influenced by popular culture and the media.

This book is absolutely crucial for understanding both how we look at immunity and understanding how doctors are not free of bias. 

In Reports from the Holocaust, Larry Kramer charts his own journey into AIDS activism, through a collection of his articles, speeches, jeremiads, and public pronouncements dating from the earliest days of the AIDS crisis. A combination gadfly, angry prophet, activist conscience, and provocateur, Larry was also a huge pain-in-the-ass and an unyielding and loving advocate for the gay community—all of which is on full display here. The book includes his incendiary “1,112 and counting,” written in 1983, which first awakened me (and the rest of the gay community) to the political dimensions of the AIDS crisis, as well as his speech four years later, that led to the formation of ACT UP. I defy you to read this book and not want to take to the streets in protest.

Sometimes I regret not having experienced the sex and drugs enjoyed by my contemporaries who came out much younger in life. The Christodora brought me back to reality. The reality of those years was much darker than my fantasies.

Murphy sketches out the diverse group of intertwined characters that inhabit the Christodora, a gentrified building in Manhattan’s East Village. I wanted to be the artistic Mateo who pushes through life’s difficulties to live an actualized life. But I can’t escape that I could have been one of the AIDS victims for whom the activism Murphy describes was so critical. Or I might have been Hector, an AIDS activist who descends into substance abuse after losing his lover.

Christodora recounts the heartbreak of AIDS but ultimately is a story of the healing of broken lives.