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Healthcare and the system that delivers it have been central to my life since I was a child. I was born with hemophilia and experienced many complications and hospitalizations. I received a liver transplant thirteen years ago because a blood transfusion-acquired Hepatitis C damaged it. I have been active in advocacy organizations, including being President of the Hemophilia Association of New York, being on the Board of LiveOnNY, and being the founder and President of the Hemophilia Services Consortium. I have interacted with many patients and their families and strongly felt the need to offer a book that informs, inspires, and helps them manage the challenges of a scary diagnosis.
This is a fascinating book about the history of medical advances. It is an engaging and well-written book that offers short and sweet – yet inspiring – stories of medical conquests and progress.
These include development of drugs, advances in knowledge that lead to improvements in the care of heart disease, cancer, and even childbirth. I have often said that advances in medicine are akin to building a brick wall one brick at a time. This book informs the reader about many of the most important bricks.
It is inspiring to see the progress that has been made, and one should expect will continue to be made.
Human history hinges on the battle to confront our most dangerous enemies - the half-dozen diseases responsible for killing almost all of mankind. The story of our medical triumphs reveals an inspiring tapestry of human achievement, but the journey was far from smooth. It is a tale replete with dramatic episodes as spellbinding as any blockbuster Hollywood movie.
In The Masters of Medicine, Dr. Andrew Lam, an award-winning author and retinal surgeon, distills the long arc of medical progress down to the crucial moments that were responsible for the world's greatest medical miracles. He brings to life heroic tales of…
It is April 1st, 2038. Day 60 of China's blockade of the rebel island of Taiwan.
The US government has agreed to provide Taiwan with a weapons system so advanced that it can disrupt the balance of power in the region. But what pilot would be crazy enough to run…
Healthcare and the system that delivers it have been central to my life since I was a child. I was born with hemophilia and experienced many complications and hospitalizations. I received a liver transplant thirteen years ago because a blood transfusion-acquired Hepatitis C damaged it. I have been active in advocacy organizations, including being President of the Hemophilia Association of New York, being on the Board of LiveOnNY, and being the founder and President of the Hemophilia Services Consortium. I have interacted with many patients and their families and strongly felt the need to offer a book that informs, inspires, and helps them manage the challenges of a scary diagnosis.
Dr. Magee had a career that spanned everything from working as a primary care doctor to working for the government to working for big pharma. He is very open about all his experiences and in explaining why the healthcare system is so complex and dysfunctional.
He shares individual stories that take place in each of these venues that are entertaining and informative, and I very much liked.
"Code Blue" is the phrase customarily announced over hospital public address systems to alert staff to an urgent medical emergency requiring immediate attention.
How has the United States, with more resources than any nation, developed a healthcare system that delivers much poorer results, at near double the cost of any other developed country-such that legendary seer Warren Buffett calls the Medical Industrial Complex "the tapeworm of American economic competitiveness"? Mike Magee, M.D., who worked for years inside the Medical Industrial Complex administering a hospital and then as a senior executive at the giant pharmaceutical company Pfizer, has spent the last…
Healthcare and the system that delivers it have been central to my life since I was a child. I was born with hemophilia and experienced many complications and hospitalizations. I received a liver transplant thirteen years ago because a blood transfusion-acquired Hepatitis C damaged it. I have been active in advocacy organizations, including being President of the Hemophilia Association of New York, being on the Board of LiveOnNY, and being the founder and President of the Hemophilia Services Consortium. I have interacted with many patients and their families and strongly felt the need to offer a book that informs, inspires, and helps them manage the challenges of a scary diagnosis.
This book is a wonderfully frank and eloquent story of a young boy with big dreams who is crippled by polio and must come to terms with his new reality.
The book focuses on what it means to be masculine with paralyzed legs and redefined ambitions. Kriegel is an accomplished writer who combines erudite and intellectual writing with the candid thoughts and emotions of a teenager. The book offers brilliant writing and wisdom for anyone learning to cope with any perceived limitations.
A Duke with rigid opinions, a Lady whose beliefs conflict with his, a long disputed parcel of land, a conniving neighbour, a desperate collaboration, a failure of trust, a love found despite it all.
Alexander Cavendish, Duke of Ravensworth, returned from war to find that his father and brother had…
Healthcare and the system that delivers it have been central to my life since I was a child. I was born with hemophilia and experienced many complications and hospitalizations. I received a liver transplant thirteen years ago because a blood transfusion-acquired Hepatitis C damaged it. I have been active in advocacy organizations, including being President of the Hemophilia Association of New York, being on the Board of LiveOnNY, and being the founder and President of the Hemophilia Services Consortium. I have interacted with many patients and their families and strongly felt the need to offer a book that informs, inspires, and helps them manage the challenges of a scary diagnosis.
Can one be poetic about coming to terms with a genetic condition that results in weak and atrophied muscles that prevent normal movement?
This book, originally written in Norwegian, is structured as a memoir, but each episode in Grue’s life reveals his coming to terms with his disease and finding success and satisfaction with his work and his family.
In the final analysis, Grue concludes that he has found a “life like yours.”
I first travelled to Zimbabwe in 1984, eager both to “build scientific socialism” but also to answer two big questions. How can people proclaim rage at certain injustices yet at the same time perpetuate them against certain other people? And, could I learn to be a better (more empathetic) man than my upbringing inclined me towards? Years of teaching in the rural areas, and then becoming a father taught me “yes” to the second question but for the first, I needed to continue to pursue that knowledge with colleagues, students, mentors, friends and family. Today, my big question is, how can we push together to get these monsters of capitalism, patriarchy, homophobia, racism, and ecocide off our backs?
A big mistake in much radical analysis is to characterize problems in dualistic terms that externalize responsibility from Africa (Rodney, of course, is wide open to that critique). Thus, colonialism is not just irredeemably bad but simple to identify and directly related to white skin. The end of formal colonialism provided new targets in sometimes caricature form: black-skin-white-mask neocolonialism and neoliberalism, notably. Such things undoubtedly exist. However, Kenworthy’s brilliant, gob-smacking analysis of the unintended consequences of life-saving technologies reveals levels of complexity and complicity that belie easy dualisms. How does something that promises liberation from mass suffering and death (anti-retroviral drugs) become a machine to entrench corrupt elites and opportunistic NGOs, to sell cheap textiles in America, and to exploit poor women’s unremunerated care work? Read, weep, and lose your illusions about corporate social responsibility.
As global health institutions and aid donors expanded HIV treatment throughout Africa, they rapidly ""scaled up"" programs, projects, and organizations meant to address HIV and AIDS. Yet these efforts did not simply have biological effects: in addition to extending lives and preventing further infections, treatment scale-up initiated remarkable political and social shifts.
In Lesotho, which has the world's second highest HIV prevalence, HIV treatment has had unintentional but pervasive political costs, distancing citizens from the government, fostering distrust of health programs, and disrupting the social contract. Based on ethnographic observation between 2008 and 2014, this book chillingly anticipates the political…
From the start, tented under bedcovers with a flashlight and diary, writing has been sheer joy and discovery. When I became aware that I was bisexual in my twenties, I wrote a memoir to make sense of my body, especially in light of my Christian upbringing, which became Swinging on the Garden Gate. When a fire burned all my belongings, including decades of writing, I found comfort in keeping a journal and was amazed that the practice still gave me hope. How? Why? My curiosity led to three books on writing as a transformational practice and countless workshops. The mystery of how creating something creates the creator fuels everything I do.
Some of the worst memoir-writing advice I’ve ever heard is, “Don’t write in the midst of emotional turmoil.” If Mark Doty had listened, readers would have never received the gift of Heaven’s Coast. No doubt this memoir began as a journaled record of Doty losing his beloved partner to AIDS.
His record of love, loss, and grief packs a punch because it’s so raw. It has lasting power because Doty took time to revise, adding eloquence, perspective, and insight. This is also a great model for integrating reflection into a story.
HEAVEN'S COAST is an anatomy of loss: tender, heartbreaking, consoling and, ultimately, incredibly moving. Beginning with the first onset of AIDS and its lengthening shadow over a blissful relationship, the book follows the shifting patterns between two loves as the illness takes hold - the change in them and the change in the way they perceive the world, through the lens of grief. Doty examines the nature of AIDS as opposed to other illnesses, the responses of society, the frustration of medical care and the exhausting - and occasionally uplifting - burden of caring for the dying at home.
The Duke's Christmas Redemption
by
Arietta Richmond,
A Duke who has rejected love, a Lady who dreams of a love match, an arranged marriage, a house full of secrets, a most unneighborly neighbor, a plot to destroy reputations, an unexpected love that redeems it all.
Lady Charlotte Wyndham, given in an arranged marriage to a man she…
Second novels rarely get the love that they deserve. People come to them with all kinds of presumptions and expectations, mostly based on whatever they liked (or didn’t like!) about your first novel, and all writers live in fear of the dreaded “sophomore slump.” I spent a decade trying to write my second novel and was plagued by these very fears. To ward off the bad vibes, I want to celebrate some of my favorite second novels by some of my favorite writers. Some were bona fide hits from the get-go, while others were sadly overlooked or wrongly panned, but they’re all brilliant, beautiful, and full of heart.
A few years ago, I had the chance to write about Allan Gurganus for Harper’s magazine. That gave me a reason to read his entire oeuvre. There’s a lot of great stuff in there, but Plays Well With Others is my favorite. Published in 1997, it was the eagerly awaited follow-up to Oldest Living Confederate Widow Tells All, Gurganus’s smash hit debut, which had come out in 1989. That book sold several million copies and was adapted into a TV miniseries as well as a Broadway show.
Unfortunately, Plays Well could not escape the long shadow cast by Widow. But I am here to tell you that this story of a queer friend-group weathering the worst of the AIDS crisis in 1980s New York City is a sui generis work of genius: a sexually graphic, laugh-out-loud funny, emotionally devastating tour-de-force, as beautiful and bonkers as it is…
In his widely read, prizewinning Oldest Living Confederate Widow Tells All, Allan Gurganus gave fresh meaning to an overexplored American moment: 1860-65. He now turns that comic intensity and historical vision to another war zone: entry-level artistic Manhattan 1980-95. In his first novel since Widow, Gurganus offers us an indelible, addictive praise-song to New York's wild recent days, their invigorating peaks and lethal crashes.
It's 1980, and Hartley Mims jr., a somewhat overbred Southerner, arrives in town to found his artistic career and find a Circle of brilliant friends. He soon discovers both Robert Christian Gustafson, archangelic boy composer of…
I’ve been interested in medicine and how stories influence the decisions that people make for as long as I can remember. Watching family and friends make choices about their own healthcare was always fascinated to me and I was always curious as to why some narratives had more staying power than others. After getting my BA in history, I was lucky enough to talk to someone who suggested that I study folklore. I ended up with both a MA and PhD in folklore and became a professor who studies the intersection of folklore and how it affects the medical decisions we all make in our own lives and the lives of others.
I may be a bit biased on this one since Dr. Goldstein is one of my mentors, but this book really shows the power that narrative has when it comes to understanding illness and assessing risk.
Once Upon a Virus very clearly helps us understand why looking at disease and illness from the standpoint of the community is so important. If we want to promote any type of health behavior or change, we must adapt to the specific community instead of expecting the community to change.
Listening to these stories is crucial for public health and I really wish more people would read this book and understand that!
Once Upon a Virus explores how contemporary, or "urban," legends are indicators of culturally complex attitudes toward health and illness. Tracing the rich tradition of AIDS legends in relation to current scholarship on belief, Diane Goldstein shows how such stories not only articulate widespread perceptions of risk, health care, and health policy, they also influence official and scientific approaches to the disease and its management. Notions that appear in narratives of who gets AIDS, how and why, are indicators of broad issues involving health beliefs, concerns, and needs.
I’ve read a lot of books that feature gay characters. These characters often partition into two main groups: angsty men who are victims of oppression or illness, or camp stereotypes who provide the light relief. I prefer to read about heroes who happen to be gay. That’s why I started writing novels. My recent books are historical novels inspired by real gay heroes. The feedback I get from readers indicates that there are a lot of people who want the same as I do.
Jill Nalder is one of the great heroes of the AIDS crisis in eighties Britain. Her story features in the TV series It’s A Sin. This is her memoir and it’s an uplifting and heartbreaking read. Jill is one of those miraculous allies for gay men who fought to get more information about AIDS distributed more widely. It’s thanks to people like her that AIDS is no longer a death sentence.
'I read the book in one go. I laughed and cried like a baby, and was transported back to a time of innocence, clouded by the enormity of the harsh reality . . . Just amazing' CATHERINE ZETA JONES
'As it happens, I was also a Jill in the eighties - but not half as good a Jill as real Jill' DAWN FRENCH
'Jill met the crisis head on . . . She held the hands of so many men. She lost them, and remembered them, and somehow kept going' RUSSELL T DAVIES
A heartbreaking, life-affirming memoir of love, loss…
This book follows the journey of a writer in search of wisdom as he narrates encounters with 12 distinguished American men over 80, including Paul Volcker, the former head of the Federal Reserve, and Denton Cooley, the world’s most famous heart surgeon.
In these and other intimate conversations, the book…
I’ve been gay for half my life; the other half I was confused, questioning, and considered a pathologic deviant by the American Psychiatric Association. I am no longer confused, or considered pathologic or deviant. I’m a father, psychiatrist, and author who grew up in Nebraska. I was a good boy, followed all the rules, and lived the life that was expected of me. I fit in but I never felt like I belonged. I took back control of my life and threw off expectations of what I should be. I want others to believe that they can have a richer life by living the life they were meant to live.
Sometimes I regret not having experienced the sex and drugs enjoyed by my contemporaries who came out much younger in life. The Christodora brought me back to reality. The reality of those years was much darker than my fantasies.
Murphy sketches out the diverse group of intertwined characters that inhabit the Christodora, a gentrified building in Manhattan’s East Village. I wanted to be the artistic Mateo who pushes through life’s difficulties to live an actualized life. But I can’t escape that I could have been one of the AIDS victims for whom the activism Murphy describes was so critical. Or I might have been Hector, an AIDS activist who descends into substance abuse after losing his lover.
Christodora recounts the heartbreak of AIDS but ultimately is a story of the healing of broken lives.
“A sprawling account of New York lives under the long shadow of AIDS, it deals beautifully with the drugs that save us and the drugs that don’t.”—The Guardian (Best Books of the Year)
In this vivid and compelling novel, Tim Murphy follows a diverse set of characters whose fates intertwine in an iconic building in Manhattan’s East Village, the Christodora. The Christodora is home to Milly and Jared, a privileged young couple with artistic ambitions. Their neighbor, Hector, a Puerto Rican gay man who was once a celebrated AIDS activist but is now a lonely addict, becomes connected to Milly…
