Here are 100 books that The Caregiver's Encyclopedia fans have personally recommended if you like The Caregiver's Encyclopedia. Book DNA is a community of 13,000+ authors and super readers sharing their favorite books with the world.

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Book cover of A Beginner's Guide to the End: Practical Advice for Living Life and Facing Death

Susannah Fox Author Of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

From my list on defend yourself U.S. health care system.

Why am I passionate about this?

I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.

Susannah's book list on defend yourself U.S. health care system

Susannah Fox Why Susannah loves this book

My mom and I are competing to see who can give away more copies of this book; we love it that much. Both of us have been bedside caregivers for dying relatives and have seen firsthand how beautiful that process can be if people are prepared.

I love how the book is designed with nice, large print, lovely illustrations, and little snacks of insight sprinkled throughout in boxes and “fast facts.” This book is the essential What to Expect When You’re Expecting–but for death.

By Bj Miller , Shoshana Berger ,

Why should I read it?

3 authors picked A Beginner's Guide to the End as one of their favorite books, and they share why you should read it.

What is this book about?

“A gentle, knowledgeable guide to a fate we all share” (The Washington Post): the first and only all-encompassing action plan for the end of life.

“There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.”

Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of…


If you love The Caregiver's Encyclopedia...

Book cover of December on 5C4

December on 5C4 by Adam Strassberg,

Magical realism meets the magic of Christmas in this mix of Jewish, New Testament, and Santa stories–all reenacted in an urban psychiatric hospital!

On locked ward 5C4, Josh, a patient with many similarities to Jesus, is hospitalized concurrently with Nick, a patient with many similarities to Santa. The two argue…

Book cover of Aftershock: What to Do When the Doctor Gives You--Or Someone You Love--A Devastating Diagnosis

Susannah Fox Author Of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

From my list on defend yourself U.S. health care system.

Why am I passionate about this?

I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.

Susannah's book list on defend yourself U.S. health care system

Susannah Fox Why Susannah loves this book

Don’t bring flowers to a newly diagnosed friend, bring this book. The author, a four-time cancer patient, provides the questions we all should ask about diagnosis, treatment options, and getting the care we need from both loved ones and clinicians.

I love the fierceness and “been there” honesty that shines through on every page. Published in 2007, it is still the best handbook I’ve seen for navigating a devastating diagnosis.

By Jessie Gruman ,

Why should I read it?

1 author picked Aftershock as one of their favorite books, and they share why you should read it.

What is this book about?

Every year millions of Americans are diagnosed with cancer, stroke, HIV/AIDS, multiple sclerosis, ALS, and other life-threatening or life-altering diseases. When faced with a devastating diagnosis people must quickly understand the diagnosis, prognosis, and choose from several treatment options-while still in shock. AfterShock identifies the processes required to respond to a serious diagnosis, regardless of the specific disease.

Social psychologist Gruman offers practical advice in a 10-stage approach to making clear-headed, informed decisions about who to tell and when; how to get a second opinion or find the right doctor and hospital; where to find reliable online information and telephone…


Book cover of The Long COVID Survival Guide: Stories and Advice from Twenty Long-Haulers and Experts

Susannah Fox Author Of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

From my list on defend yourself U.S. health care system.

Why am I passionate about this?

I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.

Susannah's book list on defend yourself U.S. health care system

Susannah Fox Why Susannah loves this book

The COVID-19 virus swept across the world like a hurricane, and 20 survivors of the storm gathered to share the lessons they had learned.

I love how this book centers on the experiences of people living with Long Covid who not only point out the inequities of our health systems but also give practical advice about getting a diagnosis, navigating care, asking for help, and contributing to research.

You don’t have to have Long Covid to benefit. Their wise advice applies to everyone.

By Fiona Lowenstein (editor) ,

Why should I read it?

1 author picked The Long COVID Survival Guide as one of their favorite books, and they share why you should read it.

What is this book about?

The first patient-to-patient guide for people living with Long COVID - with expert advice and an afterword by the leading research scientist.

For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers.
A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors - from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists - share their…


If you love Muriel R. Gillick...

Book cover of Sexy Selfie Nation: Standing Up for Yourself in Today's Toxic, Sexist Culture

Sexy Selfie Nation by Leora Tanenbaum,

The problem is not with the actions young women take but with the toxic, sexist conditions they are responding to.

Tanenbaum found, based on six years of interviews with young people ages 14-30, that young women are navigating a culture littered with gendered dress codes, revenge porn, and sexually explicit…

Book cover of Josie's Story: A Mother's Inspiring Crusade to Make Medical Care Safe

Susannah Fox Author Of Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care

From my list on defend yourself U.S. health care system.

Why am I passionate about this?

I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.

Susannah's book list on defend yourself U.S. health care system

Susannah Fox Why Susannah loves this book

Speak up. Ask questions. Be the squeaky wheel. Your life or the life of someone you love may depend on it. That’s the message of Josie’s Story. I could not put this book down even as I had to steel myself to turn the page sometimes, knowing that a tragedy caused by a medical error was at the heart of it.

Grief, the unreleased love for a child, compelled the author to demand–and accomplish–systemic change that has saved lives. Read it, weep, and know that you, too, have the power to shift the axis of medical care.

By Sorrel King ,

Why should I read it?

1 author picked Josie's Story as one of their favorite books, and they share why you should read it.

What is this book about?

Ninety-eight thousand people die every year from medical errors, making it a leading cause of death in the United States, but the subject has long been taboo. All that changed with Josie. Sorrel King's eighteen-month-old daughter was badly burned by a faulty water heater in the family's new home, but was taken to the world-renowned Johns Hopkins Hospital, where she made a remarkable recovery. But as she was preparing to leave, the hospital's system of communication broke down and Josie was given a fatal shot of methadone, sending her into cardiac arrest. Within forty-eight hours, the King family went from…


Book cover of Setting Limits: Medical Goals in an Aging Society with "A Response to My Critics"

Raphael Cohen-Almagor Author Of The Right to Die with Dignity: An Argument in Ethics, Medicine, and Law

From my list on medical ethics and end-of-life.

Why am I passionate about this?

Raphael Cohen-Almagor, DPhil, St. Catherine’s College, University of Oxford, is Professor of Politics, Olof Palme Visiting Professor, Lund University, Founding Director of the Middle East Study Centre, University of Hull, and Global Fellow, Woodrow Wilson International Center for Scholars. Raphael taught, inter alia, at Oxford (UK), Jerusalem, Haifa (Israel), UCLA, Johns Hopkins (USA), and Nirma University (India). With more than 300 publications, Raphael has published extensively in the field of political philosophy, including Liberal Democracy and the Limits of Tolerance; Challenges to Democracy; The Right to Die with Dignity; The Scope of Tolerance; Confronting the Internet's Dark Side; Just, Reasonable Multiculturalism, and The Republic, Secularism and Security: France versus the Burqa and the Niqab.

Raphael's book list on medical ethics and end-of-life

Raphael Cohen-Almagor Why Raphael loves this book

Like Pellegrino, Daniel (Dan) Callahan is also one of the forefathers of the field of medical ethics. 

A prolific author, Dan published 47 books and some 800 articles and blogs. Dan is also the co-founder of the Hastings Center in New York, one of the leading research centers on medical ethics in the world. In many ways, his vision established medical ethics as a legitimate field of studies.

In Setting Limits, Callahan suggests the concept of a “full biographical life span,” meaning the point at which it can be said that a person has lived a complete, fulfilling, whole life. He does not determine a specific age but suggests a range — late seventies, early eighties, which in his opinion is equivalent to a natural, complete life cycle. 

Callahan claims that today medical technology can extend life beyond the point that he believes is sensible and worthwhile. He…

By Daniel Callahan ,

Why should I read it?

1 author picked Setting Limits as one of their favorite books, and they share why you should read it.

What is this book about?

This is a provocative call to rethink America's values in health care.


Book cover of Your Complete Guide to a Successful and Secure Retirement

Jeff Bernier Author Of The Money and Meaning Journey: A Guide to Clarity, Financial Confidence, and Joy

From my list on financial peace in retirement.

Why am I passionate about this?

As a wealth advisor for over 37 years, I find many people reach retirement lacking clarity and confidence. Traditional financial advice often focuses on things that are unknowable, uncontrollable, and frankly don’t matter that much. While sound technical investment, estate, and tax planning are critical, the soul’s need for meaning and purpose are as important as sound financial plans. The path to true financial peace may be simpler than you think. These books can help you focus on the fewer, more critical things so that you can thrive in retirement and free yourself from financial media which is not in business to support your vision of a meaningful life.

Jeff's book list on financial peace in retirement

Jeff Bernier Why Jeff loves this book

If you could only read one book on retirement planning (other than mine of course!), this is the one I’d recommend. 

It covers a wide range of financial planning and investment topics: life-planning, goal-setting, investment strategy, financial stress-testing, spend-down strategies, tax-management, social security, Medicare, annuities, insurance, reverse mortgages, estate planning, elder abuse, and more

However, while comprehensive, it also does not get too “deep” in the weeds and is filled with wise counsel.  

By Larry Swedroe , Kevin Grogan ,

Why should I read it?

1 author picked Your Complete Guide to a Successful and Secure Retirement as one of their favorite books, and they share why you should read it.

What is this book about?

Fully revised and updated second edition.

This is your one-stop, definitive resource as you prepare for a secure and comfortable retirement.

Investment and personal finance experts Larry Swedroe and Kevin Grogan present uniquely comprehensive coverage of every important aspect you need to think about as you approach retirement, including:

Social Security, Medicare, investment planning strategy, portfolio maintenance, preparing your heirs, retirement issues faced by women, the threat of elder financial abuse, going beyond financials to think about your happiness, and much more.

These topics are explained with the help of specialists in each subject. And everything is based on the…


If you love The Caregiver's Encyclopedia...

Book cover of Crossing: A Chinese Family Railroad Novel

Crossing by Lisa Redfern,

Crossing is a vividly human re-imagining of the love, sacrifices, and accomplishments that two Chinese brothers - American Immigrants - experience as they travel to California to build the Transcontinental Railroad. 

Book cover of A Life Complete: Emotional and Spiritual Growth for Midlife and Beyond

Barbara Coombs Lee Author Of Finish Strong: Putting Your Priorities First at Life's End

From my list on opening to death to live your most joyful life.

Why am I passionate about this?

I first started tending patients at age 15, as a candy striper at St. Joseph Hospital. That was a long time ago, and since then I’ve learned much at patients’ bedsides, in Congress, statehouses and courtrooms. Through sequential careers in nursing, medicine, law, and advocacy, I learned that end-of-life experiences have the most to teach us about being truly present to our lives, about learning to love well and growing in wisdom. Personal autonomy, individual empowerment, and guided planning are all key to moving past our fear of death. In the end, as Seneca observed, “The art of living well and dying well are one.”

Barbara's book list on opening to death to live your most joyful life

Barbara Coombs Lee Why Barbara loves this book

As Sallirae ministered to the elderly in an upscale continuing care community, she wondered how some residents aged into a graceful presence that attracted people to them, while others drove people away with their grumpy discontentedness. Some remained curious and engaged in life, but others shrank in interest and spirit. She studied her subjects and their histories closely and rewarded readers with practical tips to adopt in middle age to prevent us from poisoning our later years with grief and regret. What exactly can we do now to live our old age in joy and contentment? Sallirae died in 2007 at age 66, too young to reap the wise and graceful old age she bequeathed to the rest of us. I hold her memory in gratitude as I myself grow old. 

By Sallirae Henderson ,

Why should I read it?

1 author picked A Life Complete as one of their favorite books, and they share why you should read it.

What is this book about?

A minister and counselor takes on middle age and aging in this insightful book, guiding readers through this bittersweet but necessary life passage while exploring the choices that we face. Reprint. 10,000 first printing.


Book cover of The Care of Older People Practice Manual

Neil Thompson Author Of The Social Worker's Practice Manual

From my list on promoting social justice.

Why am I passionate about this?

My father died when I was a young child, and so my uncle became the nearest I had to a father figure. He was a trade unionist and strongly committed to social justice. I was so enamoured by the compassion he showed towards socially disadvantaged people and the struggles they encounter through no fault of their own that I became an advocate for social justice from an early age. That passion for fairness and inclusion has stayed with me throughout my career and therefore figures strongly in my writings and, over the years, in my teaching, training, and consultancy work.

Neil's book list on promoting social justice

Neil Thompson Why Neil loves this book

When it comes to the literature relating to social justice, class, race, and gender tend to take the lion’s share of interest and coverage.

This means that ageism, which can have devastating effects on older people's lives is often left out of the picture. And, even when it is covered, it tends to be addressed in theoretical and policy terms, with little or nothing said about the practical challenges of tackling ageism on a day-to-day basis.

This book is the clear exception. The author is evidently a passionate champion of treating older people with dignity as part of an overall strategy of anti-ageist practice. Clearly written, with a lovely blend of theory and practice, this is a gem of a book.

By Sue Thompson ,

Why should I read it?

1 author picked The Care of Older People Practice Manual as one of their favorite books, and they share why you should read it.

What is this book about?

Caring effectively for older people is a major challenge in today’s pressurized times. Making sure that each and every older person is treated with dignity and as a unique individual in their own right is a fundamental requirement for good practice. This manual, written by a highly experienced former nurse, care manager, social worker, tutor and researcher, provides a foundation of knowledge and practical guidance for building best practice. If you work in any aspect of providing care for older people, then this manual will be an invaluable learning resource to guide your practice.

Endorsments

This is a long overdue…


Book cover of Dynamic Aging: Simple Exercises for Whole Body Mobility

Liisa Kyle Author Of Making the Most of Your Retirement: Ways to Foster Health, Happiness & Fulfillment at Any Age

From my list on if you are thinking about retirement.

Why am I passionate about this?

As a life coach and author of two dozen self-help books, I’ve spent the past twenty years helping people prepare for, plan, and go through major life changes, such as the transition to retirement. I’ve interviewed dozens of retirees about the challenges and opportunities they’ve experienced during their retirement. I’ve designed this guide so you can be strategic in choosing your path, overcome challenges, and make adjustments to make the most of this chapter of your life.

Liisa's book list on if you are thinking about retirement

Liisa Kyle Why Liisa loves this book

Retirement is the time to give attention to your health. The more you move, the healthier you will be and the longer you will live. This is a practical book designed to show you safe, simple exercises you can do at home to improve your alignment, flexibility, and mobility. Your feet are your body’s foundation and you will be surprised at how well they will respond to Katy Bowman’s prescribed regime. 

By Katy Bowman , Joan Virginia Allen , Lora Woods , Shelah M. Wilgus , Joyce Faber

Why should I read it?

1 author picked Dynamic Aging as one of their favorite books, and they share why you should read it.

What is this book about?

As seen on the Today Show!

Dynamic Aging isn't that same old "senior fitness," "senior stretching," "senior strength" book you've seen again and again. This book is about using simple exercises to feel better and get back to living vitally no matter your age.

"Don't blame your age if you're feeling creaky. It could just be the way you're using (or not using) your body." Washington Post on Dynamic Aging as a "Book for the Ages"

Movement is a powerful tool and changing how you move can change how you feel, no matter your age. Dynamic Aging…


If you love Muriel R. Gillick...

Book cover of Child of Vanris

Child of Vanris by Nikki McCormack,

At five years old, Kasiel was found with the pointed ends of his ears cut off. Despite that brutal start, he’s lived twelve peaceful years with the man who took him in. Keeping his hair long over his mutilated ears helps him hide the fact that he is Vanrian, a…

Book cover of Design the Long Life You Love: A Step-by-Step Guide to Love, Purpose, Well-Being, and Friendship

Tammy Gooler Loeb Author Of Work from the Inside Out: Break Through Nine Common Obstacles and Design a Career That Fulfills You

From my list on BE your best YOU in work and life.

Why am I passionate about this?

As a career and executive coach for the past 25+ years, I have been on a mission to help people develop more satisfying and meaningful connections to their careers. I am passionate about this because most people spend the better part of their adult lives at work, more time than they do with their families, sleeping, and other priorities. Yet many become unhappy in their work, losing themselves over decades, and get blinded by their financial and career success. It can seem unimaginable to find a way to a more fulfilling career. I am determined to show them the pathways of possibilities, no matter where they are in their lives.

Tammy's book list on BE your best YOU in work and life

Tammy Gooler Loeb Why Tammy loves this book

I love the messages, look, feel, content, design elements, and organization of this book. I enjoy the perspectives of the various people profiled in the book. I love the whimsical, humorous style of the messages and illustrations. I appreciate how topics are presented light-heartedly yet are also serious, giving me fresh perspectives on aging, life purpose, relationships, and health.

I also love that I can read a couple of pages, get a valuable thought or two, and put it down without feeling like I have to read the whole thing to ‘get it.’ I feel like it is telling me to take things seriously but hold them lightly at the same time.

By Ayse Birsel ,

Why should I read it?

1 author picked Design the Long Life You Love as one of their favorite books, and they share why you should read it.

What is this book about?

Design a long life full of love, purpose, well-being, and friendship, at any age, using the creative tools of award-winning product designer, author, and world's #1 life coach Ayse Birsel.

What does it mean to craft the life you want, as you grow older? For industrial designer and author Ayse Birsel, the answer draws on key principles of design-like optimism, empathy, collaboration, open-mindedness, and holistic thinking-as well as the experiences of older people on the pioneering frontiers of long life. Longer life is a thrilling, modern opportunity, and like so many parts of life it needs to be thoughtfully designed.Thinking…


Book cover of A Beginner's Guide to the End: Practical Advice for Living Life and Facing Death
Book cover of Aftershock: What to Do When the Doctor Gives You--Or Someone You Love--A Devastating Diagnosis
Book cover of The Long COVID Survival Guide: Stories and Advice from Twenty Long-Haulers and Experts

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