Here are 100 books that The Caregiver's Encyclopedia fans have personally recommended if you like
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I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
My mom and I are competing to see who can give away more copies of this book; we love it that much. Both of us have been bedside caregivers for dying relatives and have seen firsthand how beautiful that process can be if people are prepared.
I love how the book is designed with nice, large print, lovely illustrations, and little snacks of insight sprinkled throughout in boxes and “fast facts.” This book is the essential What to Expect When You’re Expecting–but for death.
“A gentle, knowledgeable guide to a fate we all share” (The Washington Post): the first and only all-encompassing action plan for the end of life.
“There is nothing wrong with you for dying,” hospice physician B.J. Miller and journalist and caregiver Shoshana Berger write in A Beginner’s Guide to the End. “Our ultimate purpose here isn’t so much to help you die as it is to free up as much life as possible until you do.”
Theirs is a clear-eyed and big-hearted action plan for approaching the end of life, written to help readers feel more in control of an…
The Victorian mansion, Evenmere, is the mechanism that runs the universe.
The lamps must be lit, or the stars die. The clocks must be wound, or Time ceases. The Balance between Order and Chaos must be preserved, or Existence crumbles.
Appointed the Steward of Evenmere, Carter Anderson must learn the…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
Don’t bring flowers to a newly diagnosed friend, bring this book. The author, a four-time cancer patient, provides the questions we all should ask about diagnosis, treatment options, and getting the care we need from both loved ones and clinicians.
I love the fierceness and “been there” honesty that shines through on every page. Published in 2007, it is still the best handbook I’ve seen for navigating a devastating diagnosis.
Every year millions of Americans are diagnosed with cancer, stroke, HIV/AIDS, multiple sclerosis, ALS, and other life-threatening or life-altering diseases. When faced with a devastating diagnosis people must quickly understand the diagnosis, prognosis, and choose from several treatment options-while still in shock. AfterShock identifies the processes required to respond to a serious diagnosis, regardless of the specific disease.
Social psychologist Gruman offers practical advice in a 10-stage approach to making clear-headed, informed decisions about who to tell and when; how to get a second opinion or find the right doctor and hospital; where to find reliable online information and telephone…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
The COVID-19 virus swept across the world like a hurricane, and 20 survivors of the storm gathered to share the lessons they had learned.
I love how this book centers on the experiences of people living with Long Covid who not only point out the inequities of our health systems but also give practical advice about getting a diagnosis, navigating care, asking for help, and contributing to research.
You don’t have to have Long Covid to benefit. Their wise advice applies to everyone.
The first patient-to-patient guide for people living with Long COVID - with expert advice and an afterword by the leading research scientist.
For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers. A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors - from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists - share their…
Magical realism meets the magic of Christmas in this mix of Jewish, New Testament, and Santa stories–all reenacted in an urban psychiatric hospital!
On locked ward 5C4, Josh, a patient with many similarities to Jesus, is hospitalized concurrently with Nick, a patient with many similarities to Santa. The two argue…
I’m not a clinician, but friends often ask for my advice when they get sick or need help caring for a loved one. I’ve spent nearly 25 years mapping the terrain created by innovative patients, survivors, and caregivers, the rebels of medical care. I’m also a caregiver to elders. Along the way, I’ve collected books to loan when someone facing a health challenge asks me, “What do I do now?” Each of these five books was written for when you find yourself in the healthcare maze and need to borrow courage, sharpen your senses, and navigate as best you can.
Speak up. Ask questions. Be the squeaky wheel. Your life or the life of someone you love may depend on it. That’s the message of Josie’s Story. I could not put this book down even as I had to steel myself to turn the page sometimes, knowing that a tragedy caused by a medical error was at the heart of it.
Grief, the unreleased love for a child, compelled the author to demand–and accomplish–systemic change that has saved lives. Read it, weep, and know that you, too, have the power to shift the axis of medical care.
Ninety-eight thousand people die every year from medical errors, making it a leading cause of death in the United States, but the subject has long been taboo. All that changed with Josie. Sorrel King's eighteen-month-old daughter was badly burned by a faulty water heater in the family's new home, but was taken to the world-renowned Johns Hopkins Hospital, where she made a remarkable recovery. But as she was preparing to leave, the hospital's system of communication broke down and Josie was given a fatal shot of methadone, sending her into cardiac arrest. Within forty-eight hours, the King family went from…
Raphael Cohen-Almagor, DPhil, St. Catherine’s College, University of Oxford, is Professor of Politics, Olof Palme Visiting Professor, Lund University, Founding Director of the Middle East Study Centre, University of Hull, and Global Fellow, Woodrow Wilson International Center for Scholars. Raphael taught,inter alia, at Oxford (UK), Jerusalem, Haifa (Israel), UCLA, Johns Hopkins (USA), and Nirma University (India). With more than 300 publications, Raphael has published extensively in the field of political philosophy, including Liberal Democracy and the Limits of Tolerance; Challenges to Democracy; The Right to Die with Dignity; The Scope of Tolerance; Confronting the Internet's Dark Side; Just, Reasonable Multiculturalism,and The Republic, Secularism and Security: France versus the Burqa and the Niqab.
Like Pellegrino, Daniel (Dan) Callahan is also one of the forefathers of the field of medical ethics.
A prolific author, Dan published 47 books and some 800 articles and blogs. Dan is also the co-founder of the Hastings Center in New York, one of the leading research centers on medical ethics in the world. In many ways, his vision established medical ethics as a legitimate field of studies.
InSetting Limits, Callahan suggests the concept of a “full biographical life span,” meaning the point at which it can be said that a person has lived a complete, fulfilling, whole life. He does not determine a specific age but suggests a range — late seventies, early eighties, which in his opinion is equivalent to a natural, complete life cycle.
Callahan claims that today medical technology can extend life beyond the point that he believes is sensible and worthwhile. He deliberates…
My father died when I was a young child, and so my uncle became the nearest I had to a father figure. He was a trade unionist and strongly committed to social justice. I was so enamoured by the compassion he showed towards socially disadvantaged people and the struggles they encounter through no fault of their own that I became an advocate for social justice from an early age. That passion for fairness and inclusion has stayed with me throughout my career and therefore figures strongly in my writings and, over the years, in my teaching, training, and consultancy work.
When it comes to the literature relating to social justice, class, race, and gender tend to take the lion’s share of interest and coverage.
This means that ageism, which can have devastating effects on older people's lives is often left out of the picture. And, even when it is covered, it tends to be addressed in theoretical and policy terms, with little or nothing said about the practical challenges of tackling ageism on a day-to-day basis.
This book is the clear exception. The author is evidently a passionate champion of treating older people with dignity as part of an overall strategy of anti-ageist practice. Clearly written, with a lovely blend of theory and practice, this is a gem of a book.
Caring effectively for older people is a major challenge in today’s pressurized times. Making sure that each and every older person is treated with dignity and as a unique individual in their own right is a fundamental requirement for good practice. This manual, written by a highly experienced former nurse, care manager, social worker, tutor and researcher, provides a foundation of knowledge and practical guidance for building best practice. If you work in any aspect of providing care for older people, then this manual will be an invaluable learning resource to guide your practice.
A Duke with rigid opinions, a Lady whose beliefs conflict with his, a long disputed parcel of land, a conniving neighbour, a desperate collaboration, a failure of trust, a love found despite it all.
Alexander Cavendish, Duke of Ravensworth, returned from war to find that his father and brother had…
I first started tending patients at age 15, as a candy striper at St. Joseph Hospital. That was a long time ago, and since then I’ve learned much at patients’ bedsides, in Congress, statehouses and courtrooms. Through sequential careers in nursing, medicine, law, and advocacy, I learned that end-of-life experiences have the most to teach us about being truly present to our lives, about learning to love well and growing in wisdom. Personal autonomy, individual empowerment, and guided planning are all key to moving past our fear of death. In the end, as Seneca observed, “The art of living well and dying well are one.”
As Sallirae ministered to the elderly in an upscale continuing care community, she wondered how some residents aged into a graceful presence that attracted people to them, while others drove people away with their grumpy discontentedness. Some remained curious and engaged in life, but others shrank in interest and spirit. She studied her subjects and their histories closely and rewarded readers with practical tips to adopt in middle age to prevent us from poisoning our later years with grief and regret. What exactly can we do now to live our old age in joy and contentment? Sallirae died in 2007 at age 66, too young to reap the wise and graceful old age she bequeathed to the rest of us. I hold her memory in gratitude as I myself grow old.
A minister and counselor takes on middle age and aging in this insightful book, guiding readers through this bittersweet but necessary life passage while exploring the choices that we face. Reprint. 10,000 first printing.
Like the Bach sisters in my novel Things We Do For Love, my sisters and I have cared for our mother, who battles Alzheimer's. Witnessing her transformation from a vibrant powerhouse to someone resembling the Walking Dead has been heart-wrenching. Despite the emotional rollercoaster, this journey has deeply connected us with our mother. Delving into the depths of her being has been a privilege, offering profound insights into her true essence. This challenging experience has unfolded as a disguised blessing. In this journey, we've discovered the beauty of unconditional love that binds our family together. It reflects the central question of my novel: What truly makes a happy family?
The moment I started reading this book, its tone gripped me instantly.
It fearlessly presents challenging and daunting situations with a mix of wit and courage. Darkly observant, the story unfolds with a blend of humour, fondness, and a hint of irony, making "The Leisure Seeker" a bittersweet fable of the golden years.
The book fearlessly confronts the realities and indignities of aging and disease, yet it doesn't fail to celebrate life, embracing every precious moment left in the lives of the characters, even if they are old geezers.
While the subject matter could lead to a somber narrative, the book takes an unexpected turn, becoming a genuinely life-affirming and highly entertaining tale, defying the omnipresent shadow of mortality.
This is the unforgettable cross country journey of a runaway couple in their twilight years determined to meet the end of all roads on their own terms. "The Leisure Seeker" is the story of John and Ella Robina, a couple married 50+ years - she has stopped her cancer treatments, he has Alzheimer's - who kidnap themselves from the adult children and the doctors who seem to run their lives, and steal off on a forbidden vacation. Each battling their own infirmities, John pilots their '78 Leisure Seeker RV (it's the one with the left turn signal blinking) along the…
As an academic humanist, I spent many years teaching medical students, helping resolve ethical problems in clinical care, and writing about individuals living with mental illness and those growing older. Recently, my own chronic illness, physical pain, and surgeries have somehow opened me to multiple mystical moments of beauty and feelings of oneness with all that exists. I have become a Spiritual Director and am constantly looking for perspectives, practices, and advice about cultivating spiritual growth in myself and others. I am inspired by an ancient Talmudic story: “When each of us is born, an angel swoops down and whispers, ‘Grow.’
I love John Leland’s book because he shares his own experiences of personal change during the year he spent interviewing 6 Elders in New York City. I also enjoyed learning how people managed to survive and flourish in the midst of hardship, emotional and physical struggle, and external events they could not control.
The book is so well written that I felt as if I were in the room with Leland, listening to hard-won wisdom wrought from the elders’ lifetimes of experience. And I appreciated how Leland learned by comparing his own mid-life perspective with the late-life perspective of the New Yorkers he interviewed.
I came away feeling chastened by how hard life can be, but also feeling uplifted by these exemplars of human resilience and the power of love.
An extraordinary look at what it means to grow old and a heartening guide to well-being, Happiness Is a Choice You Make weaves together the stories and wisdom of six New Yorkers who number among the “oldest old”―those eighty-five and up.
In 2015, when the award-winning journalist John Leland set out on behalf of The New York Times to meet members of America’s fastest-growing age group, he anticipated learning of challenges, of loneliness, and of the deterioration of body, mind, and quality of life. But the elders he met took him in an entirely different…
It is April 1st, 2038. Day 60 of China's blockade of the rebel island of Taiwan.
The US government has agreed to provide Taiwan with a weapons system so advanced that it can disrupt the balance of power in the region. But what pilot would be crazy enough to run…
With decades of experience in business, entrepreneurship, and leadership, I’ve worked across industries and continents, particularly in emerging markets. From launching high-tech ventures to advising companies and co-founding The SEVEN Fund, which promotes enterprise solutions to poverty, my focus has been on how businesses can drive real, sustainable impact. I am a professor and an author, and I believe great businesses create lasting value—not just for shareholders but for employees, customers, and society. These five books have profoundly shaped my thinking on leadership, business strategy, and personal growth. Whether you're an entrepreneur or an executive, they offer invaluable insights for thinking and leading better.
This book made me laugh out loud more than once. I relate to Brooks’ story completely—like him, I built a career not by being the absolute best at anything but through sheer effort, stubborn grit, and the simple fact that I was the last man standing. But then age enters the equation. Suddenly, I couldn’t outwork or outrun people anymore—at least not as many. My old strategy no longer worked.
Brooks tells this same story with humor and insight, then takes you on a journey to discover how to compete differently in the second half—or last third—of your career (depending on when you pick up this book!). He makes a compelling case that life is, in fact, kind of fair: when you lose one thing, you gain something else. And in this case, you gain wisdom.
What struck me most is how undervalued wisdom is in the workplace. Anyone who…
'In this book, Arthur C. Brooks helps people find greater happiness as they age and change' - The Dalai Lama
'This book is amazing' - Chris Evans
'A valuable guide to finding new purpose and success in later life' - Daily Mail
From the bestselling author and columnist behind The Atlantic's popular 'How to Build a Life' series, a guide to transforming the life changes we fear into a source of strength.
In the first half of life, ambitious strivers embrace a simple formula for success in work and life: focus single-mindedly, work tirelessly,…