Here are 100 books that Creating Moments of Joy Along the Alzheimer's Journey fans have personally recommended if you like
Creating Moments of Joy Along the Alzheimer's Journey.
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During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you.
The 36-Hour Day is a comprehensive guide for caregivers that is often recommended by physicians to the families caring for a loved one with any cause of dementia symptoms or cognitive decline. I found the information provided very practical on the medical, legal, financial, and emotional aspects of caring for an individual presenting any level of dementia symptoms.
The clinical insights provided were very helpful, and the information for the caregiver throughout on the value of accessing outside help is such an important reminder for them to not try and navigate this dementia care journey alone!
Combining practical advice with specific examples on how to cope with the challenges associated with caring for a loved one with dementia symptoms make this an excellent guide for the family caregiver.
Through five editions, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers address these challenges and simultaneously cope with their own emotions and needs. Featuring useful takeaway messages and informed by recent research into the causes of and the search for therapies to prevent or cure dementia, this edition includes new information on * devices to make life simpler and safer…
A moving story of love, betrayal, and the enduring power of hope in the face of darkness.
German pianist Hedda Schlagel's world collapsed when her fiancé, Fritz, vanished after being sent to an enemy alien camp in the United States during the Great War. Fifteen years later, in 1932, Hedda…
During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you.
Sensitive and insightful, The Validation Breakthrough is an essential resource for families, friends, neighbors, home health aides, doctors, nurses, social workers, and long-term care staff.
I learned as I read this book the necessity of walking beside the elderly in the final life stage. I learned empathy and to listen and talk with them, rather than patronizing them or telling them what to do. And I learned a very different understanding of why those with dementia symptoms do the things that they do-how the decline in cognitive abilities affects them in a very individual way, and to better understand the reasons behind their disorientation and sometimes challenging behavior.
The Validation Breakthrough was the foundation for my dementia care programs and method, and I often recommend this to all my family and professional clients to help raise their dementia awareness.
Validation is a practical way of communicating with and managing problem behaviour in older adults with Alzheimer's-type dementia. It helps reduce stress, enhance dignity, and increase happiness. Since its inception in 1989, Validation has helped thousands of professional and family caregivers improve their relationships with residents and loved ones with dementia. Caregivers who use these techniques validate older adults' expressed feelings, rather than focusing on disorientation and confusion.
In this Anniversary Edition of The Validation Breakthrough, you'll learn how to re-create relationships between confused older adults and their caregivers. be caring and non-judgmental understand and handle challenging behaviours interpret non-verbal…
During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you.
This book shows you how to meet many of the daily challenges of caring for someone with dementia. Illustrated through the heartfelt stories of others this book shows your how The Best Friends method brings dignity to the lives of those presenting dementia symptoms and those who are caring for them.
I found the explanation of Alzheimer’s disease and dementia symptoms very interesting and helpful, specifically how this type of loss and experience can make the individual feel. I appreciated learning additional and successful ways to respond and communicate to many situations that caregivers face when caring for any individual with any cause of dementia symptoms.
Dementia care is complex and different for every person, and I am always looking for new perspectives and care approaches to share with family and professional care providers that can give confidence and feelings of empowerment to anyone on their individual dementia care journey-and…
More than 5 million Americans are currently living with Alzheimer's disease or a related form of dementia. By the year 2030, experts estimate that as many as 66 million people around the world will be faced with this life-altering disease. Unfortunately, these staggering statistics impact millions of caregivers, too. Compared with all types of caregivers, those who assist someone with dementia experience the highest levels of burnout, depression, poor health, and premature death. A Dignified Life, Revised and Expanded offers hope and help with a proven approach.
Ten years ago, the first edition of A Dignified Life changed the way…
The Everlasting Life of Charlie Wall
by
Paul Wilborn,
It’s 1985, and Ronald Armstrong, known in the magic mushroom trade as “Trip,” takes a “sober” job as a driver for a retired Tampa mobster. His boss, Charlie Wall, has survived four attempts on his life, the last one in 1955. When Charlie falls into depression, Trip rebuilds his boss’…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
The author, a retired bishop and professor emeritus at Duke Divinity School, has not only written this book to tell about his journey as a caregiver to his wife, who died of frontotemporal lobe dementia, but also provides (free of charge) a set of truly excellent companion videos churches can use to educate their congregations about dementia.
Carder writes about the transformation in his understanding of love as he learned new ways of relating to his wife, realizing that she, in her infirmity, had become his teacher about love.
Dementia diseases represent a crisis of faith for many family members and congregations. Magnifying this crisis is the way people with dementia tend to be objectified by both medical and religious communities. They are recipients of treatment and projects for mission. Ministry is done to and for them rather than with them.
While acknowledging the devastation of dementia diseases, Ken Carder draws on his own experience as a caregiver, hospice chaplain, and pastoral practitioner to portray the gifts as well as the challenges accompanying dementia diseases. He confronts the deep personal and theological questions created by loving people with dementia…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
While there are many great memoirs about Alzheimer’s, this one is unique. It’s almost an adult picture book that quickly gives a realistic sense of what living with mid-stage Alzheimer’s is like.
Henderson, a former history professor, carried a tape recorder around with him, documenting his daily thoughts and struggles. Photographer Nancy Andrews made stunning black-and-white photos to accompany Henderson’s observations.
It takes little time to read Henderson’s book, but the understanding it conveys is remarkable. It may be hard to find since it is over 20 years old, but it’s worth the effort.
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Reading this book is like sitting in on a support group. It’s a collection of quotes about living with dementia from people who are doing just that.
I love it for churches starting a memory ministry because these quotes could be quickly read aloud in worship services, as a “ministry moment,” or read round-robin style in groups beginning to learn about dementia.
I like the collection of many voices speaking out candidly and poignantly about this difficult journey.
Betsy Peterson spent fourteen years caring for her husband who was suffering from dementia, an experience that put her in touch with others inside the struggle to have or to care for someone with the disease. A combination of contributions from patients, their families, friends, and caregivers, Voices of Alzheimer's gathers the poignant stories, funny quotes, and priceless encouragement that Peterson heard and that helped her along the way. Capturing the many dimensions of the Alzheimer experience-the challenges, the struggles, the humour, and even the rewards-a Voices presents a varied, and realistic, look at what it's like to be affected…
Delve into this internationally best-selling series, now complete! A fast paced laugh-out-loud mix of Urban Fantasy and Mystery.
I can tell when you’re lying. Every. Single. Time. I’m Jinx, a PI hired to find a missing university student, I hope to find her propped up at a bar–yet my gut…
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Although this book may not seem to fit the list, it’s one of the best books on loss I have ever read, and I’ve read quite a few. Dementia is about loss, after loss, after loss. Yes, there are moments and times of joy. And yes, it challenges and expands our love, faith, compassion, and sense of self. But dementia is, indisputably, about loss.
I read this book shortly after my husband’s suicide, and it comforted me at a time when comfort was hard to come by. My Southern Baptist mother also read it and, when she finished, held it up and said in her practical, down-to-earth way, “This is a book I will read over and over again like I read the Bible.”
Rabbi Wolpe’s book is beautifully written and wonderfully wise, and I recommend it to everyone.
Some losses are so subtle they go unnoticed, some so overwhelming and cruel they seem unbearable. Coping with grief and experiencing loss overwhelms us in ways that seem both hopeless and endless. In painful moments like these, we must make a choice: Will we allow the difficulties we face to become forces of destruction in our lives, or will we find a way to begin learning from loss, transforming our suffering into a source of strength?
A theologian with the heart of a poet, Rabbi David Wolpe explores the meaning of loss, and the way we can use its inevitable…
I am a conflict resolution coach. I have a master's degree in conflict and am an ICF professional coach. I like my clients to live “clean” between their ears—even when life is not going their way. My book is light and fun. Deep and meaningful. And a flashlight to help those who are in the clouds of conflict get “good with themself.” Conflict becomes less scary when you identify the words that caused the issue. There is no use surviving a bad situation and then replaying it over and over again. Keeping the past alive in your mind keeps the past alive. Bury it with honor and grace.
You cannot help what your body or the chemistry of the mind does. And the journey of self-acceptance, the love of the family around her, and the understanding this could happen to any of us is a reality.
I felt for the characters and was slowly led down the path of the horrors of losing your memory. It was a steady decline, and I felt every feeling with each page turn.
A moving story of a woman with early onset Alzheimer's disease, now a major Academy Award-winning film starring Julianne Moore and Kristen Stewart.
Alice Howland is proud of the life she worked so hard to build. At fifty, she's a cognitive psychology professor at Harvard and a renowned expert in linguistics, with a successful husband and three grown children. When she begins to grow forgetful and disoriented, she dismisses it for as long as she can until a tragic diagnosis changes her life - and her relationship with her family and the world around her - for ever.
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
I can’t even imagine having both parents diagnosed with Alzheimer’s on the same day. But Jean Lee handles this situation with grace and devotion. Through her parents’ letters, she shares their love story. Ed and Ibby have a beautiful bond as do their daughters, yet the girls face a challenging road of caregiving that is sad, humorous, and touching, but always a model for how to love well. In Jean’s book, she casts a spell of nostalgia, faith, and whimsy, pulling the reader into a circle of intimacy.
What would you do if both parents were diagnosed with Alzheimer’s?At the time of their diagnosis, Ed Church struggles to his feet, yelling, “How dare you use the A. word with me,” while Ibby wags her finger at the doctor scolding, “Shame on you.”They protect each other, Ibby by asserting, “We’re not leaving our home,” and Ed reassuring, “We’re just fine.”About his driving Ed defends, “I’m an excellent driver, I’ve never had an accident.” When their daughter, Rosie, finds dings in Ed’s car, he dismisses, “Someone must have bumped into me.”After Rosie moves them to assisted living, convinced they are…
The authoritative but accessible history of the birth of modern American intelligence in World War II that treats not just one but all of the various disciplines: spies, codebreakers, saboteurs.
Told in a relatable style that focuses on actual people, it was a New Yorker "Best of 2022" selection and…
With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty.
The title poem in this collection, (made from lines spoken by the poet’s mother,) manages to embody both caregiver and loved one as Constantine gives gentle structure to a string of seemingly disconnected utterances. Each poem in the book explores themes of loss, memory, and family through a different lens, creating an almost kaleidoscopic vision of the world. The collection is a rumination, a celebration, and a beautiful example of how poetry can expand our perspectives and teach us to speak and hear new rhythms.
As with Constantine's previous titles, Dementia, My Darling can be enjoyed at random or in order. However, when taken in sequence, the poems construct a thesis on life as we remember it from moment to moment. What is your first memory of love? How soon will you forget answering that question?
