Here are 100 books that American Dementia fans have personally recommended if you like
American Dementia.
Book DNA is a community of 12,000+ authors and super readers sharing their favorite books with the world.
Being a creative person, I studied design to make the world better… only to realise that great ideas and designs often falter because we hold ourselves back by the way we think. I had to study philosophy to understand what is limiting us. And then I left my own design work behind to study the practices expert creatives (like top design professionals) have developed to get past these roadblocks. Having discovered how they can create new frames, time and time again, it has become my mission to empower other people to do this – not only on a project level, but taking these practices to the organizational sector and societal transformation.
In this classic book, Kuhn introduces the idea of a "paradigm" and shows that real progress comes through paradigm shifts.
That hit me like a rock when I first read it. I love how in the second edition, Kuhn talks about the difficulties of deep change: "the problem is that the new paradigm is always worse than the old one."
The new paradigm may be better in some way, but it is also sketchy, unformed, and it creates lots of new uncertainties. So, for somebody to shift to a new paradigm always requires a leap of faith!
A good book may have the power to change the way we see the world, but a great book actually becomes part of our daily consciousness, pervading our thinking to the point that we take it for granted, and we forget how provocative and challenging its ideas once were-and still are. "The Structure of Scientific Revolutions" is that kind of book. When it was first published in 1962, it was a landmark event in the history and philosophy of science. And fifty years later, it still has many lessons to teach. With "The Structure of Scientific Revolutions", Kuhn challenged long-standing…
It is April 1st, 2038. Day 60 of China's blockade of the rebel island of Taiwan.
The US government has agreed to provide Taiwan with a weapons system so advanced that it can disrupt the balance of power in the region. But what pilot would be crazy enough to run…
I am a professor of neurology at the University of Cincinnati, interested in the many ways in which we acquire impairments in movements, in cognition, or in both. I have sought to measure these behaviors, quantify their responses to different pharmacological treatments, and determine how they inform the biology of the aging brain. In publications along the way, I have increasingly questioned how we classify neurological diseases and treat those affected.
This book offers a captivating tale of how the increasing knowledge of one disease, syphilis, created the foundations to understanding that the brain and mind are one and the same. The authors narrate the stories of patients whose “hysteria” (today referred to as functional neurological disorder) were traced to degenerative brain lesions that only belatedly were understood to be complications caused by remote infections with the bacterium Treponema pallidum. Several chapters follow the story of the important characters depicted by André Brouillet in the Une leçon clinique à la Salpêtrière (A Clinical Lesson at the Salpêtrière), one of the most recognized paintings by neurologists, as it depicts Jean-Martin Charcot, shown among many of his disciples, demonstrating a “hysteric” seizure in one of his patients. The authors illustrate how we have gotten away with conceptualizing behaviors without biological basis and put the reader on notice that “mental illnesses” are neurological problems…
In 1882, Jean-Martin Charcot was the premiere physician in Paris, having just established a neurology clinic at the infamous Salpetriere Hospital, a place that was called a 'grand asylum of human misery'. Assessing the dismal conditions, he quickly upgraded the facilities, and in doing so, revolutionized the treatment of mental illness.
Many of Charcot's patients had neurosyphilis (the advanced form of syphilis), a disease of mad poets, novelists, painters, and musicians, and a driving force behind the overflow of patients in Europe's asylums. A sexually transmitted disease, it is known as 'the great…
I am a professor of neurology at the University of Cincinnati, interested in the many ways in which we acquire impairments in movements, in cognition, or in both. I have sought to measure these behaviors, quantify their responses to different pharmacological treatments, and determine how they inform the biology of the aging brain. In publications along the way, I have increasingly questioned how we classify neurological diseases and treat those affected.
Stan Prusiner received the Nobel Prize of Medicine in 1997 for identifying what at the time was considered a novel mechanism of neurodegeneration: the prions. These “infectious proteins” were responsible for ravaging the brains of animals suffering from scrapie and mad cow disease, and of humans with Creutzfeldt-Jakob disease. Although I have come to doubt that prions are a cause of rapidly progressive dementia and may instead represent a consequence, Prusiner’s memoir is filled with moments of skepticism, self-doubt, adversity, and intellectual rivalries –the ingredients for a gripping drama in neurosciences.
A first-person account of a revolutionary scientific discovery that is now helping to unravel the mysteries of brain diseases
In 1997, Stanley B. Prusiner received a Nobel Prize, the world's most prestigious award for achievement in physiology or medicine. That he was the sole recipient of the award for the year was entirely appropriate. His struggle to identify the agent responsible for ravaging the brains of animals suffering from scrapie and mad cow disease, and of humans with Creutzfeldt-Jakob disease, had been waged largely alone and in some cases in the face of strenuous disagreement.
The Year Mrs. Cooper Got Out More
by
Meredith Marple,
The coastal tourist town of Great Wharf, Maine, boasts a crime rate so low you might suspect someone’s lying.
Nevertheless, jobless empty nester Mallory Cooper has become increasingly reclusive and fearful. Careful to keep the red wine handy and loath to leave the house, Mallory misses her happier self—and so…
I am a professor of neurology at the University of Cincinnati, interested in the many ways in which we acquire impairments in movements, in cognition, or in both. I have sought to measure these behaviors, quantify their responses to different pharmacological treatments, and determine how they inform the biology of the aging brain. In publications along the way, I have increasingly questioned how we classify neurological diseases and treat those affected.
This collection of essays blew my mind. Researchers in a range of disciplines were asked to elaborate on why a given idea in their field should be put to rest. There is a chapter dedicated to big data, nature versus nurture, cause and effect, race, Linnaean classification, etc. The book’s essays inspired me to shape a section on “Reductionism and related ideas that will die” as part of a solicited article I wrote with Tony Lang in 2018 aiming to predict the future of Parkinson’s disease research in the 2020s (Ben Stecher credited it as his reason to relocate to Cincinnati to work with us in our CCBP study). This book is also a reminder that progress requires new ideas, and most cannot emerge without first abandoning outdated ones (as Kuhn articulated).
An idea that must die in neurology is the clinico-pathologic model of classifying neurodegenerative diseases: abnormalities on brain…
The bestselling editor of This Explains Everything brings together 175 of the world's most brilliant minds to tackle Edge.org's 2014 question: What scientific idea has become a relic blocking human progress? Each year, John Brockman, publisher of Edge.org-"The world's smartest website" (The Guardian)-challenges some of the world's greatest scientists, artists, and philosophers to answer a provocative question crucial to our time. In 2014 he asked 175 brilliant minds to ponder: What scientific idea needs to be put aside in order to make room for new ideas to advance? The answers are as surprising as they are illuminating. In : *…
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
I can’t even imagine having both parents diagnosed with Alzheimer’s on the same day. But Jean Lee handles this situation with grace and devotion. Through her parents’ letters, she shares their love story. Ed and Ibby have a beautiful bond as do their daughters, yet the girls face a challenging road of caregiving that is sad, humorous, and touching, but always a model for how to love well. In Jean’s book, she casts a spell of nostalgia, faith, and whimsy, pulling the reader into a circle of intimacy.
What would you do if both parents were diagnosed with Alzheimer’s?At the time of their diagnosis, Ed Church struggles to his feet, yelling, “How dare you use the A. word with me,” while Ibby wags her finger at the doctor scolding, “Shame on you.”They protect each other, Ibby by asserting, “We’re not leaving our home,” and Ed reassuring, “We’re just fine.”About his driving Ed defends, “I’m an excellent driver, I’ve never had an accident.” When their daughter, Rosie, finds dings in Ed’s car, he dismisses, “Someone must have bumped into me.”After Rosie moves them to assisted living, convinced they are…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
This is both a children’s story and a guide to Alzheimer’s. The child, Mathew, tells the story.
He begins with all the fun things he and his grandma do when he visits, walking in the backyard, eating butterscotch candy, listening to the birds. As time passes, Grandma grows forgetful. She calls Mathew by his dad’s name. She stays indoors more and has a caregiver. Mathew’s parents and a nurse explain the changes happening to his grandma. Mathew learns how to talk to her. They look at pictures and Mathew tells the stories that she told him.
This book is an excellent source for explaining Alzheimer’s and memory loss to a child. I love how it gives examples on ways to communicate with someone who has this disease.
In Grandma and Me, Beatrice and Mary Ann combine their years of clinical experience to create a truly engaging, yet informative book for young children on the topics of Alzheimer's and dementia. The beautiful artwork will capture children's attention, bring them into the story, and help them return on their own. Grandma and Me provides a gentle, yet age appropriate description of Alzheimer's disease, while providing tools that helps children continue to have a relationship with their loved one despite the disease. Grandma and Me addresses a difficult topic with love and understanding and provides the tools for children to…
Don’t mess with the hothead—or he might just mess with you. Slater Ibáñez is only interested in two kinds of guys: the ones he wants to punch, and the ones he sleeps with. Things get interesting when they start to overlap. A freelance investigator, Slater trolls the dark side of…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
Granny Can’t Remember Me is told through the child’s eyes. Six-year-old Joey talks about having two grandmas, one who lives in Florida, and one who lives a few blocks away.
His nearby Granny doesn’t remember him, but she does remember stories of when she was young, and when his mother was a child. Joey loves hearing her stories, and playing cards with her. He loves Granny and knows deep down that she loves him, too.
This story was written by a doctor whose mother and father-in-law both had Alzheimer’s. As I read it, I was reminded of my aunt who also had Alzheimer’s. She regaled me with tales of her youth but had no memories of her present. Children will relate to this story as it’s told from a child’s point of view.
Granny Can’t Remember Me is a lighthearted picture book about Alzheimer’s disease and dementia told from the perspective of a six-year-old boy, appropriate for children in preschool through early elementary school (ages 3 – 8). Granny can’t remember that Joey likes soccer and rockets and dogs. Granny can’t remember much of anything. But with Granny’s stories of her Three Best Days, Joey knows she loves him just the same.Alzheimer’s disease is more and more common, and many young children experience this sometimes scary and sad family situation. Granny Can’t Remember Me shows a boy’s acceptance and love for his grandmother…
I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.
Michael was an executive in a Fortune 500 company when he was diagnosed with early-onset Alzheimer’s at age 49. What followed was a cascade of losses: career, income, purpose. Not one to give up easily, Michael turned his efforts and energy to dementia advocacy, speaking across the country and internationally at conferences and before Congress. His book tells the story of his newfound passion and work with raw honesty.
Imagine having a mysterious illness take over your mind. Over the next 10 years, you try to navigate a health care and social system that is not equipped to address what is happening to you. As you slowly lose your ability to think and remember, you have to try to hide the losses to protect you and your family financially. You encounter doctors who are at best baffled, and order a series of nonspecific, redundant, and uninformative studies. If you want to know what it is like to walk in the shoes of one person with Alzheimer’s, read this book,…
I am a caregiver who became an author. Both my parents had dementia. I found few books written from a personal perspective to give me guidance, so the journal I kept ultimately became the book I wished I could have read during our dementia journey. The journey didn’t end for me with the death of my parents. It led me to form a non-profit with two other dementia authors. This passion project has become a global community of authors who have written about Alzheimer’s and dementia from personal experience. Now more than 300 strong, we provide quality resources for caregivers and others concerned about dementia. Learn more at AlzAuthors.com.
Ann Campanella’s memoir details her journey through caregiving for her mother with Alzheimer’s at the same time she was struggling to start her own family. I felt it all: the anxiety, the frustration, as well as the pain, as she watched her mother decline while coping with an inability to conceive. Ann’s book reminded me to appreciate life’s joys, no matter how small, whether riding a beloved horse, marveling at a sunset, smelling a beautiful flower, or offering a simple hug.
Ann Campanella, a freelance writer and horsewoman, returns to North Carolina after a several year absence. In her mid thirties and ready to start a family, she is used to setting goals and accomplishing them. But when Ann experiences a series of miscarriages at the same time her mother shows signs of Alzheimer’s, she plunges into an emotional journey that leads her to a deeper understanding of herself and what it means to love.
"One of the best Alzheimer's books of all time." - Book Authority
An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.
Andrea Couture’s father, a well-known, recently retired surgeon, develops Alzheimer’s at the age of 67. As someone who also lost a parent at a young age, Embracing What Remainstouched a deep place in my heart. I connected with how she processed her emotions through her writing. I also appreciated the way she balances her grief over his disease with the gratitude and joy she discovers in each moment. This is a beautifully written memoir!
***Finalist in Next Generation Indie Book Awards***
Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer’s. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer’s at the age of 67. Her dream to grow closer with him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father’s fate. Andrea rides an unpredictable wave…
