All my life I’ve been pushing against limits. Being the oldest of five children born to a farm couple who became mill workers, I was frequently reminded by family that “people like us” did not need much education, didn’t get the good jobs, and shouldn’t “rise above themselves.” Being a girl, I had additional limits. Naturally, when I learned to read, I was drawn to books in which characters broke through unfair restraints to have adventures and accomplish great deeds. I wanted to be one of those people. By the time I came of age, I knew I had a shot at becoming the heroine of my own story!
Izzy is a nice girl. She’s pretty, popular, and smart. But one ride with a drunk driver changes her entire life. With one leg amputated, she must embrace a new life and find new friends who see her as more than a girl with a handicap. I liked Izzy so much, and it was thrilling to see her believably move on with her life. I see disabled young people with different eyes since reading Izzy’s story.
One moment can change a life forever. Fifteen-year-old Izzy has it all -- a loving family, terrific friends, a place on the cheerleading squad. But her comfortable world crumbles when a date with a senior ends in a car crash and she loses her right leg. Suddenly nothing is the same. The simplest tasks become enormous challenges. Her friends don't seem to know how to act around her. Her family is supportive, but they don't really want to deal with how much she's hurting. Then Rosamunde extends a prickly offer of friendship. Rosamunde definitely isn't the kind of girl Izzy…
Growing up near the outskirts of a lush Honduran cloud forest, I remember searching for magic in the woods, a fairy behind the waterfall, and an emerald quetzal bird in the canopy. I have always been a lover of nature, ecology, and wildlife, and I appreciate how each of these five books speaks to the passion that I have for ecology in a unique way. From fantastical rabbits to hidden systems we all rely on, to turtles and whales and the entire animal kingdom, these books will resonate with those of us who believe that we each have a place in our interconnected planet.
As someone who has always connected with animals, wild and domesticated, Song for a Whale was a story I could not put down.
Lynne Kelly’s middle grade novel about a deaf girl determined to help a whale who cannot communicate with its family is full of heart and compassion, and it kept me on my toes until the very end. I love stories with brave, unique, and realistic protagonists, and Iris was all of these things.
I appreciated the deaf representation, and the theme of family that is woven so beautifully into the plot. I could picture the whale, Blue 55, so perfectly, and the short chapters in the whale’s POV were the cherry on top of an already lovely story of courage and connection.
A stirring and heart-warming tale of a young deaf girl who is determined to make a difference, the perfect read for fans of Wonder.
Iris was born deaf, but she's never let that define her; after all, it's the only life she's ever known. And until recently she wasn't even very lonely, because her grandparents are both deaf, too. But Grandpa has just died and Grandma's not the same without him. The only place Iris really feels at home anymore is in her electronics workshop where she loves taking apart antique radios.
I grew up in the Disability Rights movement in Canada, fighting for my brother’s right to go to school, to receive medical care, and to be part of our community. For decades, disabled people were institutionalized away from their families and communities, warehoused instead of schooled. My uncle Robert died of neglect in one of these terrible places as a child. My family has been involved in supporting a class action lawsuit against the Ontario government for its responsibility. Since then, the right to education has been better established, and the institutions were closed. But I continue to fight for inclusion and against ableism in education, healthcare, and across our culture.
Though it came out in the Summer of 2022, and had a headstart on the other books on my list, Just Careis in conversation with the rest of this list, and is just as relevant to our current moment, when we might agree that we have a crisis of care. Nishida shows that care dynamics exist within a brutal social order that determines who survives and who deteriorates. Along with the other books on this list, the research methods are creatively mixed here, with interviews, focus groups, and participant observation with care workers and people with disabilities. Just Care documents how people with disabilities work together to reimagine care. We are all enmeshed in a healthcare industry with giant cracks and fissures exposed by the pandemic, and in which we will all move between caregiving, receiving, or both. ReadJust Care to better understand imbalances in care, as well…
Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
I was absolutely stunned when I read "Unspeakable Conversations" by Harriet McBryde Johnson, one of the many brilliant pieces included in this reader. My edition is from 2010, but new and updated editions have come out since. It explores questions of interdependency and independence, gender, the body, sexuality, biases in science and medicine, and physical disabilities, and investigates issues around pain, mental disability, and invisible disabilities.
Becoming familiar with some disability theories has been invaluable to me. My capacity to read myself as disabled has grown and still fluctuates. To know that sharp minds have been working on this and that it isn’t only a private issue but a political and theoretical one, one that can be marked by joy and humor as well as grief, struggle, and hardship, is immensely helpful.
The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader's tradition of remaining timely,…
I am Rachel Hamilton and I’m the author of the Exploding series with Simon & Schuster and the Unicorn in New York series with OUP and Scholastic. I love making people laugh, especially when it's intentional rather than accidental. As well as writing books, I write comedy sketches and have performed standup as part of the Funny Girls tour in the Middle East. It's hard to do humor well, so I have huge respect and admiration for the authors on this list, because they do it fantastically. I hope you love their stories as much as I do.
I want to live inside Ross Montgomery’s head. It seems full of magical people and places, including a school janitor’s room filled with huge feuding civilizations! The story hops masterfully from the school janitor to the tyrannical Headmaster to the story’s brilliant ten-year-old protagonist Max, without missing a beat. Max is deaf, which doesn’t need to be an issue, if people can just make a few small accommodations to help him fit in. But, instead, the horrible Head treats him like some kind of strange school mascot, constantly singling him out for special attention.
Max and the Millions seamlessly combines action, mystery, struggles with hearing aids, and a warning about the abuse of power. All with a sense of the surreal that will have you sniggering throughout.
“Max was hiding in a cupboard
He usually hid in the toilets, but they’d all exploded that morning – again – and Mr.…
From Costa-shortlisted superstar, a highly anticipated standalone adventure about what happens when you find a tiny, living, breathing civilization on the floor of your school dorm room.
Max is used to spending time alone - it's difficult to make friends in a big, chaotic school when you're deaf. He prefers to give his attention to the little things in life . . . like making awesome, detailed replica models.
Then Mr Darrow, the school caretaker and fellow modeller, goes missing. Max must follow his parting instruction: 'Go to my room. You'll know what to do.'
As a writer from Aotearoa New Zealand who cares deeply about social issues and human rights, I believe fiction has the power to change hearts and minds and bring us all together with greater compassion and understanding. When I was growing up here, there were few books published by Pacific or Māori writers and we were taught little about their customs or mythologies. I’ve loved watching this change over the last forty-odd years (and particularly the last ten years) and can see how access to these stories has not only empowered Māori and Pacific youth and brought them closer to their culture but enriched everyone who lives in our pacific paradise!
Another classic title by one of Aotearoa New Zealand’s most-loved storytellers. This moving story follows the special friendship forged between Jonasi, a lonely deaf-mute pacific islander, and a huge white turtle. It’s a book about isolation and prejudice, and how love can heal all. One review describes it as ‘somewhere between fact and fiction, superstition and the supernatural.’It’s another that’s been made into a fabulous film.
The Silent One is Jonasi, sent from the sea as a baby to grow up in an isolated Pacific village. Separated from the villagers by his silence and their prejudices, Jonasi finds solace in his underwater world where he develops a special relationship with a huge white turtle. However, the superstitious villagers see both Jonasi and the turtle as evil spirits. A series of natural disasters and a struggle for leadership within the village sweep Jonasi toward his strange destiny.
I’m a YA writer who likes to tackle difficult subject matter. My books cover things like euthanasia, drug abuse, coming out, and accessing sex as someone with a disability. If my books are found by even just one person who needs to see themselves in a story, then I feel like my job is done.
All the characters in this book felt totally real and the situations they find themselves in and live through are honest. And I’m not just talking about the main characters here – all the supporting characters have their own personalities and don’t resort to stereotypes as shorthand. The romance developed organically and felt like something healthy that both Josh and Skylar needed in order to really accept who they are.
If Skylar Evans were a typical Creek View girl, her future would involve a double-wide trailer, a baby, and the graveyard shift at Taco Bell. But after graduation, the only thing separating straightedge Skylar from art school is three months of summer… until Skylar's mother loses her job, and Skylar realizes her dreams may be slipping out of reach. Josh had a different escape route: the Marines. But after losing his leg in Afghanistan, he returned home, a shell of the cocksure boy he used to be. What brings Skylar and Josh together is working at the Paradise―a quirky motel…
I am a children’s author best known for digging up fascinating, often funny stories about famous people—and forgotten people who deserve to be famous again. But only one of them inspired me to take up a whole new hobby: L. L. Zamenhof, creator of the international language Esperanto. Learning Esperanto turned out to be fun and easy. It helped me make friends all over the world, and got me interested in how language works.
I haven’t seen a lot of picture books about children using American Sign Language (ASL), and I enjoyed the details of a day in a public school for the deaf and hard of hearing, although the book’s age (it came out in 2000) means the tech is somewhat out of date. While this book is not about Deaf culture, it does—like all the books on my list—give kid-friendly examples of the language it is introducing. I appreciated that the children are shown signing in ASL and not just fingerspelling English words, and that the author made some attempt to convey that ASL is its own language and that anyone who is fluent in both ASL and English is bilingual. Other titles in the series include Moses Goes to a Concert, Moses Goes to the Circus, and Moses Sees a Play.
A day at a school for the deaf is like a day at any school
Moses goes to a special school, a public school for the deaf. He and all of his classmates are deaf or hard-of-hearing, but that doesn't mean they don't have a lot to say to each other! They communicate in American Sign Language (ASL), using visual signs and facial expressions. Isaac Millman follows Moses through a school day, telling the story in pictures and written English, and in ASL, introducing hearing children to the signs for some of the key words and ideas. At the end…
I’ve been an elementary school classroom teacher and teacher-librarian for over 25 years and I’ve had the privilege of teaching many amazing students with neurodiversity. I was inspired to write the Slug Days book when I was teaching a student with Autism Spectrum Disorder. I wrote the book to imagine what life might be like for that student so I could be a better teacher. I believe a school library should represent all our students and I’m always on the lookout for excellent books that feature neurodiverse characters.
12-year-old Catherine’s feelings toward her younger, autistic brother are complicated. She’s protective of him and also appears to be embarrassed by his behaviour. All she wants is a “normal” life. When she becomes friends with a paraplegic boy she’s forced to think about what “normal” really means. This book is hopeful, humourous, thoughtful, and explores what it means to interact with someone who is neurodivergent. The author is the mother of a child with autism and the complex relationships and friendships in the book felt real and captured the mixed-up emotions of middle-graders.
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This Newbery Honor Book is a heartfelt and witty story about feeling different and finding acceptance -- beyond the rules.
Twelve-year-old Catherine just wants a normal life. Which is near impossible when you have a brother with autism and a family that revolves around his disability. She's spent years trying to teach David the rules from "a peach is not a funny-looking apple" to "keep your pants on in public" -- in order to head off David's embarrassing behaviors.But the summer Catherine meets Jason, a surprising, new sort-of friend, and Kristi, the next-door friend she's always wished for, it's her…
In the years since I was 15, I have been writing and publishing books. After graduating from Florida Virtual School in 2014, I am currently pursuing a liberal arts degree with a focus on disabilities education. I'm passionate about literature, and I've dedicated myself to educating others about disabilities through my love of literature. Furthermore, I own a radio station and produce several podcasts related to disability. I contribute to seven different sites, including the mighty thought catalog and unwritten, where I talk about my life as a 27-year-old with a disability. I am also an advocate for disability rights, as well as a writer and author for disability issues.
A humorous take on what it's like to be a disabled adult. I highly recommend this book to anyone. It discusses how to interact with someone with a disability and dives deep into diversity and how to communicate effectively with adults. Having read this book has made my journey with cerebral palsy much easier and I would definitely say that it has made me look at life in more humorous ways.
Not So Different offers a humorous, relatable, and refreshingly honest glimpse into Shane Burcaw’s life. Shane tackles many of the mundane and quirky questions that he’s often asked about living with a disability, and shows readers that he’s just as approachable, friendly, and funny as anyone else.
Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles’ growth. As a result, his body hasn’t grown bigger and stronger as he’s gotten older—it’s gotten smaller and weaker instead. This hasn’t stopped him from doing the things he enjoys (like eating pizza and playing sports and…