Like the Bach sisters in my novel Things We Do For Love, my sisters and I have cared for our mother, who battles Alzheimer's. Witnessing her transformation from a vibrant powerhouse to someone resembling the Walking Dead has been heart-wrenching. Despite the emotional rollercoaster, this journey has deeply connected us with our mother. Delving into the depths of her being has been a privilege, offering profound insights into her true essence. This challenging experience has unfolded as a disguised blessing. In this journey, we've discovered the beauty of unconditional love that binds our family together. It reflects the central question of my novel: What truly makes a happy family?
Receiving a dementia diagnosis at just 58 years old can be paralysing, but Wendy Mitchell chose a different path. Instead of preparing for the end, she embraced life with newfound determination.
Wendy became a passionate advocate and speaker for dementia awareness. Her remarkable journey includes earning two honorary doctorates and achieving many of her life's dreams, including becoming a published author to share her deeply personal story.
With engaging wit and unwavering courage, Wendy candidly narrates her daily battle with the illness. Her story is both heartwarming and inspirational, as she shows us that despite the challenges, dementia can also bring unexpected gifts alongside sorrow.
Wendy's character is endearing, and her resilience shines through, leaving readers with a profound sense of hope and a deeper understanding of the human spirit in the face of adversity.
THE RICHARD AND JUDY BOOK CLUB PICK
THE SUNDAY TIMES BESTSELLER
A BBC RADIO 4 BOOK OF THE WEEK
CHOSEN AS A 2018 SUMMER READ BY THE SUNDAY TIMES, FINANCIAL TIMES, DAILY TELEGRAPH, THE TIMES AND THE MAIL ON SUNDAY
'Revelatory' Guardian
'A miracle' Telegraph
'A landmark book' Financial Times
Brave, illuminating and inspiring, Somebody I Used to Know gets to the very heart of what it means to be human.
What do you lose when you lose your memories? What do you value when this loss reframes how you've lived, and how you will live in the future? How…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
Ice Cream with Grandpa is about the love between a child and his Grandpa.
The child tells the story beginning with the first time his Grandpa gave him ice cream. Their love of ice cream bonds them, but they also enjoy gardening, and walks in the park. When Grandpa moves to an apartment, it took some adjustment. What helped was the ice cream parlor nearby. Grandpa eventually goes into a memory care home.
The child fears Grandpa won’t remember him. His mom explains that Grandpa is still Grandpa. They can still enjoy spending time together. On Grandpa’s last day in hospice, they eat ice cream. Grandpa passes, but the child continues to remember their love each time he eats ice cream.
This story moved me so much that I cried. I love that this book includes a Guide for Parents and Caregivers: Tips for Talking with Children about Dementia, Hospice,…
After his beloved grandpa's health declines and he receives a diagnosis of dementia, a grandson must navigate the changes in their relationship. Through it all, he learns that Grandpa is still Grandpa, and their bond deepens and sweetens through a shared love of ice cream.
Ice Cream with Grandpa is a loving, tender picture book that gently explores the topics of dementia, aging, and loss. Written from a child's point of view, it chronicles the changes in their relationship as his grandpa moves to assisted living, then memory care, and eventually hospice.
My book, No Safe Haven was written about the American Civil War, most specifically about the Battle of Gettysburg. It was a story I came across while on vacation in Gettysburg. I have a Bachelor of Arts degree in English and History and the historical novel genre is one I love. It gives me an opportunity to explore past worlds and try to learn the lessons of the past to apply to the present and hopefully to the future. When I learned about Tillie Pierce’s experience surviving the Battle of Gettysburg, I knew I had to tell her story.
This book is a wonderful coming-of-age book in a series. It is a heartfelt story of a young girl who is faced with the slow death from Alzheimer’s Disease of her next-door neighbor who is also a surrogate grandmother. As she helps care for the woman, she draws closer to the woman’s grandson and learns hard lessons about love and loss. I personally loved this book because I could feel the emotional tug of the story. It’s also a quick read, great for a beach day or an afternoon of reading.
"Without knowing or caring where I’d wind up, I sneaked out of the house and took off running." Wendy Robichaud is on schedule to have everything she wants in high school: two loyal best friends, a complete and happy family, and a hunky boyfriend she’s had a crush on since eighth grade—until she and Mrs. Villaturo look at old photo albums together. That’s when Mrs. V sees her dead husband and hints at a scandal down in Cajun country. Faster than you can say “crawdad,” Wendy digs into the scandal. She risks losing boyfriend David by befriending Mrs. V’s cute…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
In Scar Tissue, a 1993 Booker Prize finalist, an unnamed narrator gives a first-person account of the precipitous decline of his mother from dementia (though her condition is never explicitly named).
“She remembers captions of New Yorker cartoons,” he says, lamenting that “it is what happened five minutes ago that is slipping away.” It is a predicament with which dementia caregivers are all too familiar.
Yet, despite his mother’s descent into oblivion, the narrator insists she be treated with dignity. “You keep telling me what has been lost,” he tells her neurologist, “and I keep telling you something remains.”
Chronicles one woman's descent into Alzheimer's disease and her sons' painful witness to the tragedy, which is enhanced by their careers in philosophy and neurology and by strengthened family bonds
I have no wilderness survival skills and certainly no wish to be thrown into any of the scenarios in the books I’ve recommended. What I do have is great empathy for those who struggle to survive loss—in whatever form it might come—be it loss of home, or security, or family. I know what it is to struggle through darkness and survive what I would have previously thought “unsurvivable.” That’s why two of my middle grade books, but especially MacKenzie’s Last Run, are about speaking up when you’re hurting or frightened. Lost in the dark woods or lost in grief–it’s all ultimately about survival.
I confess, I wasn’t sure I was going to enjoy this novel. I began reading it primarily to see what was percolating in slightly younger middle grade titles and in particular in books that are rooted in stories about differently-abled characters. Was I ever delightfully surprised when I fell in love with Ellie! I thought the novel was going to be about a lot of mean treatment by kids at school, but in truth, there wasn’t nearly as much of that as I expected (which was an enormous relief!). If you’re thinking, wait, I thought this was going to be a novel about survival, I’m here to tell you that every single day in Ellie’s life is its own survival story.
Surviving being left out of nearly all the activities the rest of the kids find fun; surviving the humiliation of having an aide take her from class to class,…
"A big-hearted story that's as sweet as it is awesome." -R.J. Palacio, author of Wonder "An honest, emotionally rich take on disability, family, and growing up." -Kirkus Reviews (starred review)
In the tradition of Wonder and Out of My Mind, this big-hearted middle grade debut tells the story of an irrepressible girl with cerebral palsy whose life takes an unexpected turn when she moves to a new town.
Ellie's a girl who tells it like it is. That surprises some people, who see a kid in a wheelchair and think she's going to be all sunshine and cuddles. The thing…
With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty.
When 68 year-old Gregory Tate is diagnosed with Alzheimer’s, his family members reckon with the past and try to move toward an unexpected future with love and honesty. This beautifully written novel offers readers a chance to see the crisis from varying points of view and encourages empathy for every member of the family. In addition, Golden works to raise awareness of the way Alzheimer’s disproportionately affects Black and Latino communities. African Americans are more than twice as likely as whites to develop the disease, and yet, are gravely underrepresented in research and clinical trials. Part of a diverse chorus represented by #AlzAuthors, Golden is a vital voice to follow.
A 2018 NAACP Image Award nominee and an NPR Best Book of 2017, a moving African-American family drama of love, devotion, and Alzheimer's disease.
Diane Tate never expected to slowly lose her talented husband to the debilitating effects of early-onset Alzheimer's disease. As a respected family court judge, she's spent her life making tough calls, but when her sixty-eight-year-old husband's health worsens and Diane is forced to move him into an assisted living facility, it seems her world is spinning out of control.
As Gregory's memory wavers and fades, Diane and her children must reexamine their connection to the man…
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
Maria Shriver, journalist and former First Lady of California, wrote this groundbreaking book for children that openly discusses dementia.
It is still used as a source to prompt conversations about what children can do to help to care for a loved one with the disease. (Excellent source for early readers.)
Kate has always adored her grandpa's storytelling - but lately he's been repeating the same stories again and again. One day, he even forgets Kate's name. Her mother's patient explanations open Kate's eyes to what so many of the elderly must confront: Alzheimer's disease and other forms of memory loss. Determined to support her grandfather, Kate explores ways to help him - and herself - cope by creating a photo album of their times together, memories that will remain in their hearts forever.
I am an artist and mathematical neuroscientist. I’ve spent my life cracking some of reality’s greatest mysteries, including consciousness, self-consciousness, language, music, suffering, pain, anesthesia, compassionate love, extraterrestrial communication, and autism.
This is it. The Bible of the Mind. The Codex of Consciousness. The Scroll of the Soul. Stephen Grossberg’s masterwork is a comprehensive mathematical account of human cognition.
Pick any part of the brain, any mental function—a sodium channel, a pyramidal neuron, a circadian circuit, a cerebellar lobe, audio recognition, hate, melodic preferences, linguistic meaning, throwing a spear at a target, visual memory, schizophrenia, free will—and Dr. Grossberg has put math to it. You’ll find that math in this book.
But be forewarned: this book is very, very, very challenging. The math isn’t derived from some other field of science. Because consciousness is not a subset of electromagnetism or a variety of planetary orbit. Consciousness is its own unique thing in the cosmos, and demands its own unique math.
Sophisticated, ornery math. Inaccessible math for most of us, sadly, but if you want to take a shot at the Finnegan’s…
How does your mind work? How does your brain give rise to your mind? These are questions that all of us have wondered about at some point in our lives, if only because everything that we know is experienced in our minds. They are also very hard questions to answer. After all, how can a mind understand itself? How can you understand something as complex as the tool that is being used to understand it?
This book provides an introductory and self-contained description of some of the exciting answers to these questions that modern theories of mind and brain have…
Dogs make great supporting characters, adding drama or humor or pathos, and revealing so much about the humans in the story. I discovered this in writing my first novel: The narrator’s dog keeps her grounded when things go wrong and makes it possible for her to keep going through difficult times. For the reader, he provides levity and depth without turning it into a book about a dog. I had a great model – I used my own dog Boris, even appropriating his name. I think of the fictional Boris as real-life Boris’s best self.
I loved everything about this book, from the story arc to Alison McGhee's turn of phrase and use of language.
Her descriptions of people and scenes range from hilarious to tear-inducing, with a side of quirky.
The best thing, though, is the story itself, Clara going back to the place she was never going back to, and dealing not only with her mother's dementia but with the things that made her leave town in the first place.
In this story, the dog is named Dog and he died before the story begins. The blue ceramic urn with his ashes is one of the very few things her mother kept for her – a talisman.
Soul-searching, gripping, and so very well written, this is one of my favorite books of this century.
“[A] poignant meditation on the relationship between a mother and daughter” from the New York Times bestselling author of Shadow Baby (Publishers Weekly).
When Clara Winter left her rural Adirondack town for college, she never looked back. Her mother, Tamar, a fiercely independent but loving woman who raised Clara on her own, all but pushed her out the door, forcing Clara to build a new life for herself, far from her roots, far from her high school boyfriend, far from the life she had always known. Now more than a decade has passed, and Clara, a successful writer, has been…
My dad was an adventure traveler, so I floated down the Amazon, rode chicken busses in rural Guatemala, and stepped on the Russian Steppes before I ever saw Big Ben. All that adventure as a kid engendered an insatiable curiosity about the amazing diversity of people and cultures in this world. Sadly, when I was growing up, most children’s books didn’t reflect this diversity. Not only should all children be able to see themselves on the pages of the books they read, it’s equally important that kids see children who aren’t just like they are. Consequently, adding cultural and ethnic diversity into kids' lit has become a passion for me.
Mercy stole my heart from the very first page. Although more accurately, it’s Mercy’s eccentric foster aunts who did the initial stealing. Their quirky excuse notes—one says Mercy has “the collywobbles,” another that she can’t participate in inter-house cross-country because she “has a bone in her leg”—is just a taste of the humor to come. The story in this gem from South Africa is complex and surprisingly powerful with its focus on Gandhi’s response to discrimination as he traveled through South Africa and how he lived the Sanskrit word satyagraha, which means truth and polite insistence. I was fascinated by South Africa’s complicated ethnic diversity, not unlike America’s complicated diversity, which made the message of satyagraha even more potent for me.
Named a Best Middle-Grade Book of 2020 by Kirkus Reviews 2021 Outstanding International Books List, United States Board on Books for Young People Mercy lives in modern-day Pietermaritzburg, South Africa with her eccentric foster aunts-two elderly sisters so poor, they can only afford one lightbulb. A nasty housing developer is eying their house. And that same house suddenly starts falling apart-just as Aunt Flora starts falling apart. She's forgetting words, names, and even how to behave in public. Mercy tries to keep her head down at school so nobody notices her. But when a classmate frames her for stealing the…
