Here are 27 books that Undoing Lyme Disease fans have personally recommended if you like
Undoing Lyme Disease.
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I am myself an ME/CFS patient. While my background is not in science or medicine, I have turned my prior academic skills in philosophy to reading and studying the research into ME/CFS. I am now passionate about sharing my learnings with other patients, whether on my YouTube channel, in my book, or in talks to patient groups. In my advocacy work, I am also in regular contact and collaborate with Professor Klaus Wirth – one of the German researchers responsible for the recent breakthrough work into ME/CFS and whose work could ultimately lead to the first approved pill for ME/CFS and Long Covid.
I love being challenged in how I think about ME/CFS, and Dr Perrin, in coming at the illness from such an unusual angle, does just that.
For Perrin, spinal rigidity and obstructed lymphatic flow are key components of the illness. My first reaction to such claims: what can these things possibly have to do with an illness of exercise intolerance and post-exertional malaise?
Well, as I found from this lucid and engaging book, much more than you might think. The deal was sealed when an osteopath I visited confirmed that I also had all the problems Dr Perrin has noted in the spines of his ME/CFS patients.
Are you suffering from CFS/ME and/or fibromyalgia? Are you caring for someone with these conditions? Is someone close to you a sufferer? Almost certainly it will have taken your doctor some time to arrive at the diagnosis of CFS/ME and once there you may have been offered little more than 'graded exercise' and antidepressants to help with the condition. In the interim you may have tried many alternative approaches including changes in diet and lifestyle and a complex cocktail of dietary supplements. These may have helped but if the root cause is poor/blocked lymphatic drainage from the brain and this…
It is April 1st, 2038. Day 60 of China's blockade of the rebel island of Taiwan.
The US government has agreed to provide Taiwan with a weapons system so advanced that it can disrupt the balance of power in the region. But what pilot would be crazy enough to run…
I am myself an ME/CFS patient. While my background is not in science or medicine, I have turned my prior academic skills in philosophy to reading and studying the research into ME/CFS. I am now passionate about sharing my learnings with other patients, whether on my YouTube channel, in my book, or in talks to patient groups. In my advocacy work, I am also in regular contact and collaborate with Professor Klaus Wirth – one of the German researchers responsible for the recent breakthrough work into ME/CFS and whose work could ultimately lead to the first approved pill for ME/CFS and Long Covid.
Neuroplasticity (aka "brain retraining") is such a controversial topic in the ME/CFS and Long Covid world, and I am personally strongly against any suggestion that these illnesses are "only" the result of a hypersensitive nervous system.
However, I do also think that a maladaptive neuroplastic state is one part of these conditions and that neuroplasticity can help.
While I find Hopper’s book short on instructions, I regard it as highly valuable because of its multiple testimonials of recovery from using brain retraining. I think that these offer fascinating accounts of the potential utility of neuroplasticity for ME/CFS and related illnesses, and I would encourage anyone to read them with an open – though discerning – mind.
Annie Hopper had exhausted the medical system and was still suffering from disabling symptoms of multiple chemical sensitivities, fibromyalgia and electric hypersensitivity syndrome. Hopper deduced that a toxic trauma had over activated threat and protective mechanisms in her brain that were keeping her body stuck in a cycle of chronic illness and inflammation. In her search for healing, she masterfully created a system that would remap her brain, end her suffering and restore normal health. Wired for Healing sheds light on how trauma causes the brain to disorganize neural circuits and shares triumphant stories of recovery of people who have…
I am myself an ME/CFS patient. While my background is not in science or medicine, I have turned my prior academic skills in philosophy to reading and studying the research into ME/CFS. I am now passionate about sharing my learnings with other patients, whether on my YouTube channel, in my book, or in talks to patient groups. In my advocacy work, I am also in regular contact and collaborate with Professor Klaus Wirth – one of the German researchers responsible for the recent breakthrough work into ME/CFS and whose work could ultimately lead to the first approved pill for ME/CFS and Long Covid.
In all the ME/CFS world, I find the story of Whitney Dafoe and his father, Prof Ron Davis, to be the most emblematic.
For those who don’t know, Whitney is completely bedridden with severe ME/CFS, and his father, a renowned geneticist at Stanford, pivoted his entire research efforts to find a cure for his son.
I am deeply moved by the sheer tenacity and persistence of both father and son – the one in facing the brutal realities of the most devastating form of the disease – and the other in his unwavering commitment to advancing the research into it, not just for his son but for us all.
I found this to be a gripping read, an inspiring instance of the intersection of science, patient experience, courage, and love.
“A renowned geneticist races against time to diagnose a malady that landed at his door... A complex, well-related story of medical detective work.” --KIRKUS
At the age of twenty-seven, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. Finally, even the sound of a footstep in his room became unbearable. The Puzzle Solver follows several years in which he desperately sought answers from specialist…
A Duke with rigid opinions, a Lady whose beliefs conflict with his, a long disputed parcel of land, a conniving neighbour, a desperate collaboration, a failure of trust, a love found despite it all.
Alexander Cavendish, Duke of Ravensworth, returned from war to find that his father and brother had…
I am myself an ME/CFS patient. While my background is not in science or medicine, I have turned my prior academic skills in philosophy to reading and studying the research into ME/CFS. I am now passionate about sharing my learnings with other patients, whether on my YouTube channel, in my book, or in talks to patient groups. In my advocacy work, I am also in regular contact and collaborate with Professor Klaus Wirth – one of the German researchers responsible for the recent breakthrough work into ME/CFS and whose work could ultimately lead to the first approved pill for ME/CFS and Long Covid.
Although ME/CFS and Long Covid are essentially the same, I wanted to include here a book primarily focused on Long Covid, and this is arguably the most reputable such book.
I found this to be a highly trustworthy read, replete with a range of treatments known to help Long Covid patients. I also really appreciated its accessible style, given the cognitive issues that patients usually have.
Sometimes we just need clear overviews and a menu of treatment options to try in order to move forward, and this, the most practical book on my list, fits that bill very well.
Reports suggest that over 100m people around the world are living with Long Covid (more than 1.5m in the UK) yet reliable, clear information and guidance remains scarce. This book is the definitive guide to understanding, managing and treating the condition.
Written by the world's leading immunologist Professor Danny Altmann and expert patient Gez Medinger, The Long Covid Handbook translates cutting-edge science, patient-led research and practical guidance with clarity. This book will equip you with expert information and advice on:
- Long Covid's 200 symptoms, which include fatigue, brain fog, breathlessness and more -…
This list opens the door to the inner life of physicians: our hopes, fears, insecurities, and all of the internal and external pressures we face in our training and practice. As a doctor, I see myself in these books—not a superhero with “all of the answers,” but a human being in a profession suffering one of the largest crises of workforce burnout and moral injury. Seeing our physicians as real people will help us feel more empowered to bring our own true selves to the relationship. And really good healthcare is more likely to happen when souls connect.
This book is a must-read memoir for anyone, and certainly any woman, who will come in contact with our nation’s healthcare system.
The dark humor and excellent storytelling are the perfect soil to build a heartbreaking picture of the bias and misogyny that lurks in a woman’s most vulnerable moments. Sarah Ramey’s perspective on the healthcare system makes me want to weep and then do so much better.
'A visceral, scathing, erudite read that digs deep into how modern medicine continues to fail women and what can be done about it' Booklist
The darkly funny memoir of Sarah Ramey's years-long battle with a mysterious illness that doctors thought was all in her head - but wasn't. A revelation and an inspiration for millions of women whose legitimate health complaints are ignored.
In her harrowing, defiant and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but…
My passion for this topic dates back to my childhood and being impressed by the scary diseases and unhygienic toilets that were part of my family lore. I grew up to be a historian of medicine, which allowed me to indulge my interest in deadly diseases—at a safe historical distance! That curiosity led me to write the Gospel of Germs, a history of popular understandings of the germ theory of disease. Post-COVID, I am thinking about how to get ready for the next big pandemic that climate change and globalization will likely throw at us: will it be bird flu, dengue, mpox, or some new COVID variant?
I love this book because Quammen looks at pandemics in terms of the changing relationships between humans and animals. A master of science writing, he explains how global economic and climate change is bringing us closer contact with many species in the wild—bats, parrots, chimpanzees—whose pathogens can “jump” to domestic animals (pigs and chickens). If you are worried about the bird flu, this is a great book to gain perspective on.
In 2020, the novel coronavirus gripped the world in a global pandemic and led to the death of hundreds of thousands. The source of the previously unknown virus? Bats. This phenomenon-in which a new pathogen comes to humans from wildlife-is known as spillover, and it may not be long before it happens again.
Prior to the emergence of our latest health crisis, renowned science writer David Quammen was traveling the globe to better understand spillover's devastating potential. For five years he followed scientists to a rooftop in Bangladesh, a forest in the Congo, a Chinese rat farm, and a suburban…
The Duke's Christmas Redemption
by
Arietta Richmond,
A Duke who has rejected love, a Lady who dreams of a love match, an arranged marriage, a house full of secrets, a most unneighborly neighbor, a plot to destroy reputations, an unexpected love that redeems it all.
Lady Charlotte Wyndham, given in an arranged marriage to a man she…
Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.
Fred Diamond has never had Lyme disease himself, but someone he loves has suffered with it for many years. When he began educating himself about the complexities of life with this illness, he realized there were no books focused on helping partners, family, and friends understand what their loved ones were going through. So, he wrote this one. He also started a popular podcast, Love, Hope, Lyme, which expands on many of the same themes in the book.
If you love someone with Chronic Lyme disease, buy this book now!
If you have Lyme disease and want your family, partner, and friends to understand this mysterious disease, make them buy this book!
When Fred Diamond, cofounder of the prestigious Institute for Excellence in Sales, decided to learn more about the Lyme disease that afflicted someone he loved, his life changed. He read every book on Lyme, joined Facebook groups, attended webinars and podcasts and quickly realized that he knew hardly anything about what Lyme disease survivors go through on a daily basis.
As a woman who suffers from chronic illness, I am interested in sharing my experience and learning about other women who also suffer and survive their chronic conditions. I have had endometriosis, a painful disease, since I was a teenager. I’ve always enjoyed stories about different kinds of chronic illnesses, and I appreciate the way pain and sickness can be translated into memorable books.
Although I may be biased in recommending my former mentor’s book, this memoir about Khakpour’s experience with mysterious illnesses and addictions is a must read.
Written in sharp, often poetic prose, the author offers an intimate portrait of a chronically ill woman of color navigating the frustrating world of doctors, tests, theories, medications, and doubt. The reader is pulled into this dark, gritty story of benzodiazepine abuse, debilitating symptoms, economic hardship, and, ultimately, diagnosis.
I love every book ever written by Khakpour, however, Sick is my absolute favorite (so far!) Not only could I relate to her experience in many ways, I adore her willingness to share all the messy, difficult pieces of her life.
A Best Book of the Year: Real Simple, Entropy, Mental Floss, Bitch Media, The Paris Reivew, and LitHub.
Time Magazine's Best Memoirs of 2018 • Boston Globe's 25 Books We Can't Wait to Read in 2018 • Buzzfeed's 33 Most Exciting New Books • GQ Best Non Fiction Book of 2018 • Bustle’s 28 Most Anticipated Nonfiction Books of 2018 list • Nylon’s 50 Books We Can’t Wait to Read in 2018 • Electric Literature’s 46 Books to Read By Women of Color in 2018
“Porochista Khakpour’s powerful memoir, Sick, reads like a mystery and a reckoning with a love…
I'm co-founder of a grassroots social justice, civic engagement, and service organization called ForwardCT, which I started with my friend and current state representative Eleni Kavros DeGraw with the intention of mobilizing community-centered action. Our work centers on these four pillars: Connect, Inform, Serve, and Lead. Those pillars guide my work as chair of my town’s Clean Energy Commission, as teacher and facilitator of workshops and events, and as an author of books for young people. I'm drawn to the powerful use of storytelling as a tool for starting conversations, stirring up “good trouble,” and inspiring activism. Read a book, approach your library or town to host a community conversation, leave with actionable takeaways, repeat!
I chose Lyme: The First Epidemic of Climate Change because I live in Connecticut and my own family and friend group have been gravely impacted by tick-borne infections. In fact, the subplot of my novel focuses on the frustrating story of a family seeking answers to this “mystery” illness.
We are at a moment where climate change is accelerating new and worsening pathogenic diseases and public health isn’t catching up fast enough. Mary Beth Pfeiffer provides a well-researched glimpse into the politics and pain of tick-borne infections in a climate-changing world.
I recommend this book as a community conversation starter because, more and more, citizens are coming together to share medical resources and put pressure on the public health community to act.
"Superbly written and researched." -Booklist "Builds a strong case." -Kirkus Lyme disease is spreading rapidly around the globe as ticks move into places they could not survive before. The first epidemic to emerge in the era of climate change, the disease infects half a million people in the US and Europe each year, and untold multitudes in Canada, China, Russia, and Australia. Mary Beth Pfeiffer shows how we have contributed to this growing menace, and how modern medicine has underestimated its danger. She tells the heart-rending stories of families destroyed by a single tick bite, of children disabled, and of…
This book follows the journey of a writer in search of wisdom as he narrates encounters with 12 distinguished American men over 80, including Paul Volcker, the former head of the Federal Reserve, and Denton Cooley, the world’s most famous heart surgeon.
In these and other intimate conversations, the book…
Nineteen years ago, my 13-year-old daughter became wracked in severe pain for no discernible reason. She found walking, lying flat, or sitting up straight impossible. She had a host of other bizarre physical symptoms, too. The doctors we consulted not only didn’t help us, they decided she was faking it. We had to step outside the medical mainstream to discover she had chronic Lyme disease. After many difficult years, she got better, and I began working to change the system. As president of LymeDisease.org, a national Lyme advocacy and research organization, I write and speak on behalf of Lyme patients and their families.
Dr. Daniel Kinderlehrer was already a prominent holistic physician when he became quite sick. None of the many doctors he consulted could figure out what was ailing him or how to help him in any way.
He turned out to have persistent Lyme disease—which can be notoriously hard to diagnose—and the experience spun his life and career in a completely different direction. I like this book because he shares so much of his personal story and imparts excellent information about the immune system, healing the gut, detoxifying the body, and treating infections.
From the foreword by world-leading Lyme expert Joseph J. Burrascano, Jr., MD:
A detailed and thoughtful road map is sorely needed. And it is in this context that I am so pleased that we have this book by Dr. Kinderlehrer. I wish I'd had a book like this back in the day to guide me! It covers just about everything-the infections, diagnostic tests, treatments, and yes, the all-important terrain. It gives the reader an in-depth, but easily understandable, guide through the many subtleties of tick-borne illnesses. I am impressed with the knowledge presented and grateful for this information, which has…
