I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.
A love of cycling brought Peter Berry and Deb Bunt together as friends. Deb had not encountered a person with dementia until she met Peter. His positive attitude about living well with dementia and his poetic and insightful musings on his condition inspired her to write his memoir, to preserve his story. This is a deeply moving book, full of beautiful, lyrical language.
This is an account of a year in the life of Peter Berry, an ordinary man living in a sleepy Suffolk village. Happily married and running a successful business, Peter's life changes when, at the age of fifty, he is given a terminal diagnosis of early-onset dementia. Since that day, he has learned to live with his very own 'dementia monster'. From depression and suicide attempts through to his determination to confront his dementia, Peter has embarked on a series of challenges to show that 'life isn't over with dementia, it's just a little different'. Peter has now raised thousands…
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
Maria Shriver, journalist and former First Lady of California, wrote this groundbreaking book for children that openly discusses dementia.
It is still used as a source to prompt conversations about what children can do to help to care for a loved one with the disease. (Excellent source for early readers.)
Kate has always adored her grandpa's storytelling - but lately he's been repeating the same stories again and again. One day, he even forgets Kate's name. Her mother's patient explanations open Kate's eyes to what so many of the elderly must confront: Alzheimer's disease and other forms of memory loss. Determined to support her grandfather, Kate explores ways to help him - and herself - cope by creating a photo album of their times together, memories that will remain in their hearts forever.
I founded the All-Weather Friend, which is about helping friends get through difficult situations. My first book, Alzheimer’s: A Crash Course for Friends and Relatives, tells how to help people living with dementia. I’ve had hard times in my life—my husband’s brain tumor and suicide, my father’s dementia, infertility, miscarriage, my brother’s sudden death, and other things that flooded me with grief. But my life is filled with joy; I’ve learned that joy comes from God and from a compassionate connection with friends and people we love. I write and speak about “informed compassion.” I hope you’ll visit my website, where there’s a great dementia resource page with contributions by many readers.
Although this book may not seem to fit the list,
it’s one of the best books on loss I have ever read, and I’ve read quite a few. Dementia is about loss, after loss, after loss. Yes, there are moments and
times of joy. And yes, it challenges and expands our love, faith, compassion,
and sense of self. But dementia is, indisputably, about loss.
I read this book
shortly after my husband’s suicide, and it comforted me at a time when comfort
was hard to come by. My Southern Baptist mother also read it and, when she
finished, held it up and said in her practical, down-to-earth way, “This is a
book I will read over and over again like I read the Bible.”
Rabbi Wolpe’s
book is beautifully written and wonderfully wise, and I recommend it to
everyone.
Some losses are so subtle they go unnoticed, some so overwhelming and cruel they seem unbearable. Coping with grief and experiencing loss overwhelms us in ways that seem both hopeless and endless. In painful moments like these, we must make a choice: Will we allow the difficulties we face to become forces of destruction in our lives, or will we find a way to begin learning from loss, transforming our suffering into a source of strength?
A theologian with the heart of a poet, Rabbi David Wolpe explores the meaning of loss, and the way we can use its inevitable…
I was first a clinical social worker and then a social work professor with research focus on older adults. Over the past few years, as I have been writing my own memoir about caring for my parents, I’ve been drawn to memoirs and first-person stories of aging, illness, and death. The best memoirs on these topics describe the emotional transformation in the writer as they process their loss of control, loss of their own or a loved one’s health, and their fear, pain, and suffering. In sharing these stories, we help others empathize with what we’ve gone through and help others be better prepared for similar events in their own lives.
This book attracted me because, as a gerontologist/social worker, I’m interested in the subject of Alzheimer’s disease (AD) and dementia. This book, rather than describing the long, sad decline of a loved one, tells Bloom’s story of trying to help her spouse with AD to end his life.
Bloom is a clinical social worker who writes with a deep understanding of human behavior and motivation, most notably her own, which makes her a fine memoirist. She writes candidly about her emotions, unafraid to reveal less flattering details.
Her story is a sad one, with many ups and downs, but the overwhelming sense I got was of her powerful love for her husband and desire to give him what he needed in the face of his dementia diagnosis.
A poignant love letter to Bloom's husband and a passionate outpouring of grief, In Love reaffirms the power and value of human relationships.
In January 2020, Amy Bloom travelled with her husband Brian to Switzerland, where he was helped by Dignitas to end his life while Amy sat with him and held his hand. Brian was terminally ill and for the last year of his life Amy had struggled to find a way to support his wish to take control of his death, to not submerge 'into the darkness of an expiring existence'.
I have always been fascinated by people and I love stories. All we are is who we are to each other. Our childhoods are such a formative time and they echo into our future. We never really leave them behind. If we have a childhood wound we have to fix it. Childhood trauma and recovering from it is such a fascinating topic. Psychology has always intrigued me. We can suppress memories and then, boom!, they hit us and we have to deal with the fallout. I have read so many books on the topic and I look forward to reading more in the future.
This book had me completely gripped. It is absolutely brilliant. Hannah’s mother was murdered when she was younger and now she’s not sure her father didn’t do it. Her father has dementia and as she starts to resemble her mother more the truth starts to come out. She is estranged from her television star brother and caring for her father. She is scarred from her childhood and has never reached her potential.
She becomes determined to find out the truth about what happened to her mother. As childhood trauma goes, your mother being murdered is right up there and this book is so compelling and beautifully written. I could not put it down. It’s perfect.
I lean in and whisper the question I have never let myself utter in twenty-three years. "Dad, did you murder Mum?"
Hannah Davidson has a dementia-stricken father, an estranged TV star brother, and a mother whose death opened up hidden fault lines beneath the surface of their ordinary family life.
Now the same age that Jen Davidson was when she was killed, Hannah realises she bears an uncanny resemblance to her glamorous mother, and when her father begins to confuse them she is seriously unnerved.
Determined to uncover exactly what happened to her mum, Hannah begins to exploit her arresting…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
This is both a children’s story and a guide to Alzheimer’s. The child, Mathew, tells the story.
He begins with all the fun things he and his grandma do when he visits, walking in the backyard, eating butterscotch candy, listening to the birds. As time passes, Grandma grows forgetful. She calls Mathew by his dad’s name. She stays indoors more and has a caregiver. Mathew’s parents and a nurse explain the changes happening to his grandma. Mathew learns how to talk to her. They look at pictures and Mathew tells the stories that she told him.
This book is an excellent source for explaining Alzheimer’s and memory loss to a child. I love how it gives examples on ways to communicate with someone who has this disease.
In Grandma and Me, Beatrice and Mary Ann combine their years of clinical experience to create a truly engaging, yet informative book for young children on the topics of Alzheimer's and dementia. The beautiful artwork will capture children's attention, bring them into the story, and help them return on their own. Grandma and Me provides a gentle, yet age appropriate description of Alzheimer's disease, while providing tools that helps children continue to have a relationship with their loved one despite the disease. Grandma and Me addresses a difficult topic with love and understanding and provides the tools for children to…
I am passionate about aging in America. I was honored to be in health care for over 40 years; I was a leader in home care and hospital systems and was there at the birth of the assisted living movement, now so respected. I specialized in Alzheimer’s as it is the least understood common disease of seniors, one that evokes misery if not handled properly. I started the first Alzheimer’s training for homecare aides in the 90’s. In positions such as Senior Vice President of Northbridge Companies and President of Northbridge Advisory Services, I became an advocate for dementia education, advanced care, and programs for the financially challenged.
Over the years, I’m often asked to recommend books for caregivers about Alzheimer’s or memory loss in general. I often hesitated because so many books are so dreadfully depressing and clinical. In particular, some older books are not in keeping with the more contemporary views on a disease, which is, yes, a cruel and unrelenting villain, but there is hope to be found.
This book showcases many years of experience with thousands of people on the same journey, the opposite of the many books out there that just tell one person’s story. If I have learned anything, it is that all people with Alzheimer’s are different and experience this disease differently.
The late, great Joanne, from whom I got my dementia certification, has a much more useful and uplifting approach for families and friends of those diagnosed with Alzheimer’s. It's a classic.
A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR
Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between carepartners and patients and has proven successful with thousands of people living with dementia.
Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to -Cope with the…
The inspiration to write about Alzheimer’s came from my own life. My grandfather had the disease. He and I were very close and it broke my heart when I realized I’d been forgotten. He only remembered my voice, that it sounded like a little girl he used to know. I wanted to capture the truth of that in a story. Sadly, dementia is so common, but for some reason, we don’t talk about Alzheimer’s as openly as we do other diseases. Kids need to be able to have everyday conversations about what they might be experiencing in regards to whomever they know with the disease. My hope is that books like Flowers can help.
Sticky Notes centers on a parent who has early-onset Alzheimer’s and is told from the perspective of a 10-year-old boy, Foster. The voice is a genuine one and the writing is heartfelt, as Foster compares his own forgetting to Dad’s forgetting and sometimes convinces himself that there is no need to worry. The confusion and lack of clear discussion with Foster about what is happening is a real challenge for many dealing with the disease. As the forgetting gets worse and Dad begins to change, Touchell documents the family changes that Foster and his mother go through too, with a sensitive touch.
For fans of The Thing About Jellyfish, a touching story about the power of love and family in the face of a parent's early-onset Alzheimer's disease.
Ten-year-old Foster has always loved listening to his dad's stories. But lately, Dad's memory hasn't been so great, and Mom's placed sticky notes around the house to help him. As Dad's condition worsens, it's Foster who will need to look deep into his heart and remember for them both.
Sticky Notes is a touching story about the power of love and family in the face of a parent's Alzheimer's disease, and a moving reminder…
Throughout my life I found the trick to getting through rough patches meant isolating dark thoughts. I got them out by creating something (artworks, poems, stories), and looked forward to new horizons, though these works could easily be misinterpreted by those around me. When I was fifteen, after my father died and we were forced off the farm, I created a series of disturbing drawings that won the school's art prize and were displayed at graduation. A friend of my mother saw the exhibit and said, “Oh Dorothy, I’m so sorry.” It gave us a laugh later when Mother realized this method of cleansing beat finding a psychiatrist, and the cost couldn’t be beat.
This story is a twist on a familiar Lewis Carroll tale.
It is unsettling in a dementia-like way, spinning the reader from the known into the unknown with just enough of the old story to keep them from tipping completely off balance, hope and dark humor always alive.
This book helped me with the twisting of fact and fiction in my own books, where I used many of my own family incidents (and fears), but gave them to fictional characters with their own generational slant.
In a warren of crumbling buildings and desperate people called the Old City, there stands a hospital with cinderblock walls which echo with the screams of the poor souls inside.In the hospital, there is a woman. Her hair, once blonde, hangs in tangles down her back. She doesn't remember why she's in such a terrible place-just a tea party long ago, and long ears, and blood...Then, one night, a fire at the hospital gives the woman a chance to escape, tumbling out of the hole that imprisoned her, leaving her free to uncover the truth about what happened to her…
I am a conflict resolution coach. I have a master's degree in conflict and am an ICF professional coach. I like my clients to live “clean” between their ears—even when life is not going their way. My book is light and fun. Deep and meaningful. And a flashlight to help those who are in the clouds of conflict get “good with themself.” Conflict becomes less scary when you identify the words that caused the issue. There is no use surviving a bad situation and then replaying it over and over again. Keeping the past alive in your mind keeps the past alive. Bury it with honor and grace.
You cannot help what your body or the chemistry of the mind does. And the journey of self-acceptance, the love of the family around her, and the understanding this could happen to any of us is a reality.
I felt for the characters and was slowly led down the path of the horrors of losing your memory. It was a steady decline, and I felt every feeling with each page turn.
A moving story of a woman with early onset Alzheimer's disease, now a major Academy Award-winning film starring Julianne Moore and Kristen Stewart.
Alice Howland is proud of the life she worked so hard to build. At fifty, she's a cognitive psychology professor at Harvard and a renowned expert in linguistics, with a successful husband and three grown children. When she begins to grow forgetful and disoriented, she dismisses it for as long as she can until a tragic diagnosis changes her life - and her relationship with her family and the world around her - for ever.
