100 Books Like Tracking Medicine

I grew up in rural northern Michigan. My family lived in comfort, never lacking essentials. Yet, many of those living around me had difficulty making ends meet. Many lacked health insurance and year-round jobs. As a child, I viewed my community as normal and typical of the American experience. In many ways, it was–in part, that is the point of this list. At the time, I didn’t know that we could do better for those around me who worked so hard daily. Now I do. I selected these books to highlight the vast disparities between those with and without the comfort and luxury of good health.    

I spent nearly 30 years consulting with employers about the design and operation of the health insurance and retirement benefits they provided their workers. In my work, I was familiar with economic studies showing that workers’ wages and salaries have been increasingly skewed toward higher earners and was convinced the results were less pronounced for workers' total rewards.. In developing my analysis I came to understand that the cost of employees’ health insurance was consuming a large share of workers’ growing rewards. This led me to explore how the US health system was imposing much higher costs on workers than any other segment of society and how we might address the problem.

I spent nearly 30 years consulting with employers about the design and operation of the health insurance and retirement benefits they provided their workers. In my work, I was familiar with economic studies showing that workers’ wages and salaries have been increasingly skewed toward higher earners and was convinced the results were less pronounced for workers' total rewards.. In developing my analysis I came to understand that the cost of employees’ health insurance was consuming a large share of workers’ growing rewards. This led me to explore how the US health system was imposing much higher costs on workers than any other segment of society and how we might address the problem.

I spent nearly 30 years consulting with employers about the design and operation of the health insurance and retirement benefits they provided their workers. In my work, I was familiar with economic studies showing that workers’ wages and salaries have been increasingly skewed toward higher earners and was convinced the results were less pronounced for workers' total rewards.. In developing my analysis I came to understand that the cost of employees’ health insurance was consuming a large share of workers’ growing rewards. This led me to explore how the US health system was imposing much higher costs on workers than any other segment of society and how we might address the problem.

In my younger days, as the son of a medical professor and a public health nurse, I was more interested in healing society than patients. But my political interests and research agenda as a professor of political science ultimately led back to medicine. I found that profit-maximizing market competition in health care failed miserably to promote value in therapeutics and economize on society’s scarce resources. I became aware of the neglect of public health to prevent disease for vulnerable groups in society and save money as well as lives. Pervasive and enduring economic conflicts of interest in the medical-industrial complex bear primary responsibility for severe deficits in quality, equality, and economy in American health care.

Life caught me by surprise when our youngest son was born with a birth defect that launched our family into the world of surgeries, and treatments. After experiencing the management of chronic care for our child firsthand, I realized how important it is to share personal stories and experiences. It enables empathy and a deeper understanding and appreciation of what patients and families go through. Autobiographical accounts of patients and families are still very limited. We need more people to come forward and share their own patient/family experiences in order to promote the betterment of healthcare and healing through relating with others and learning from others’ experiences.

In 2008, I accidentally started watching The West Wing, and it changed my life–leading me ultimately to start writing seriously and then to move to DC, where I lived for ten years. I would not have ever guessed that a TV show could have such an impact, but I repeatedly met people in DC who had similar stories. I wrote an essay about the fandom for my literary journalism class during my MFA, and that became the starting point for my anthology. I interviewed dozens of fellow fans, many of whom had moving stories of the show’s impact on their lives. It was a really special experience.

Healthcare and the system that delivers it have been central to my life since I was a child. I was born with hemophilia and experienced many complications and hospitalizations. I received a liver transplant thirteen years ago because a blood transfusion-acquired Hepatitis C damaged it. I have been active in advocacy organizations, including being President of the Hemophilia Association of New York, being on the Board of LiveOnNY, and being the founder and President of the Hemophilia Services Consortium. I have interacted with many patients and their families and strongly felt the need to offer a book that informs, inspires, and helps them manage the challenges of a scary diagnosis.

I am a University Distinguished Professor at Mays Business School, Texas A&M University, and a senior fellow at the Institute for Healthcare Improvement. I have devoted my career to studying service quality and ways to improve it, first in the commercial sector and, since 2001, in healthcare. I started my healthcare journey studying at the Mayo Clinic, and I have since done in-residence research at other health systems, most recently, Henry Ford Health in Detroit. My work includes research on improving the patient and family experience in cancer care. Kindness and dignity are vitally important in healthcare – and too often missing. I am on a personal mission to enhance healing in all its forms.

Michael Patrick Lynch is Board of Trustees Distinguished Professor of Philosophy and Provost Professor of the Humanities at the University of Connecticut. His books have been translated into a dozen languages and include On Truth in Politics: Why Democracy Demands It, The Internet of Us, True to Life (Editor’s Choice, The New York Times Sunday Book Review), and Know-it-All Society (winner of the 2019 George Orwell Award). Lynch’s work has been profiled in The New Yorker, The New York Times, Nature, The Guardian, The Washington Post, and many other publications worldwide; his 2017 TED talk has been viewed nearly 2 million times. He lives in CT with his family and one very philosophical dog.