Here are 81 books that The Revised Fundamentals of Caregiving fans have personally recommended if you like
The Revised Fundamentals of Caregiving.
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I’ve always felt myself to be different, odd, and a bit of a loner. As a child, people said I was "too clever by half," and I both hated and loved being able to understand things that other kids did not. Being good at maths and science in a girls’ boarding school does not make you friends! Escaping all that, I became a psychologist and, after a dramatic out-of-body experience, began studying lucid dreams, sleep paralysis, psychic claims, and all sorts of weird and wonderful experiences. This is why I love all these books about exceptional children.
What I love about this book is that Christopher is such an unusual child and sees the world in ways that most of us do not.
In reading this bizarre and disturbing mystery story, we begin to see the world differently ourselves. I like, too, the fact that what is different about him is never named – it’s not some specific diagnosis or categorization – he is just Christopher, the odd, mathematically gifted, strangely reacting, teenager.
When he becomes terrified of what we might take as quite ordinary events and places, I begin to feel some of his difference – to feel what it might be like to be so much an outsider. It helped me to remember that we are all different.
'Mark Haddon's portrayal of an emotionally dissociated mind is a superb achievement... Wise and bleakly funny' Ian McEwan
The Curious Incident of the Dog in the Night-Time is a murder mystery novel like no other. The detective, and narrator, is Christopher Boone. Christopher is fifteen and has Asperger's Syndrome. He knows a very great deal about maths and very little about human beings. He loves lists, patterns and the truth. He hates the colours yellow and brown and being touched. He has never gone further than the…
The Victorian mansion, Evenmere, is the mechanism that runs the universe.
The lamps must be lit, or the stars die. The clocks must be wound, or Time ceases. The Balance between Order and Chaos must be preserved, or Existence crumbles.
Appointed the Steward of Evenmere, Carter Anderson must learn the…
I’ve been intrigued with the mind for as long as I can remember. As a child, I imagined shrinking myself down and worming my way into other people’s brains to discover how their thoughts differed from mine. When I realized that was impossible, I started creating characters and imagining how they would think, react, and feel. This led to writing novels and motivated me to get my bachelor’s in abnormal psychology and my master’s in forensic psychology. Now, with an innate curiosity for the mind and a background in how it works, I find myself drawn to reading and writing books that take me into characters’ heads.
A book rarely brings me to tears. I didn’t know what to expect when I first picked up this one. The main thing I love about this book is that it takes you right into the head of the main character, who happens to be a very precocious nine-year-old boy. Outwardly, the main character is on an adventure to solve a mystery, but inwardly, he’s on a journey to come to terms with his father’s death.
The protagonist–who, on the surface, is nothing like me–made me feel and address things I had not come to terms with in my life. I felt myself struggling along with the character, and then I ultimately began to heal with him, too. It’s a powerful, tragic, yet absolutely hilarious story that allowed me to forget myself for a while before realizing that I was learning about myself the entire time I read it.
From the critically acclaimed author of Here I Am, Everything is Illuminated and We are the Weather - a heartrending and unforgettable novel set in the aftermath of the 9/11
'Utterly engaging, hugely involving, tragic, funny and intensely moving... A heartbreaker' Spectator
'The most incredible fictional nine-year-old ever created... a funny, heart-rending portrayal of a child coping with disaster. It will have you biting back the tears' Glamour
'Pulsates with dazzling ideas' Times Literary Supplement
'It's a miracle... So impeccably imagined, so courageously executed, so everlastingly moving' Baltimore Sun…
I love stories so much I majored in English at UVa. Though I showed up in New York with only reading and waitressing skills, I’ve somehow enjoyed the privilege of working in the arts at some of the greatest institutions (Paul Taylor, Cooper Union, ABT). I respond to art, people and especially art-people. Encountering their deep love (and glorious dysfunction) in books enables me to extend the special communion that grows around audiences and artists. This is central to me. It reminds me that beauty is important. It helps me hold on.
If forced to pick a favorite book, I’d probably pick this one. Set in Paris and so well crafted, it’s the ultimate demonstration of how shared ideas about beauty bind us together.
“Old-souled” Paloma is only twelve and can not only recognize but also aptly describe their superficiality. Her point of view alternates with Renée, the luxury building’s invisible yet brilliant concierge. Together, they demonstrate how seemingly different people can galvanize around life’s ineffable elements.
Their surprising friendship is catalyzed by a lovely Japanese tenant who sees beyond the surface and invites them into his world where he celebrates the quiet, elegant offerings overlooked by so many.
The bonds of these international, inter-generational friends make perfect sense as you grow to know and love the characters, and I relish how they become less isolated, frustrated, and disappointed through their connection. Yet as we’re seduced by their life of the…
Rene is the concierge of a grand Parisian apartment building. She maintains a carefully constructed persona as someone uncultivated but reliable, in keeping with what she feels a concierge should be. But beneath this facade lies the real Rene: passionate about culture and the arts, and more knowledgeable in many ways than her employers with their outwardly successful but emotionally void lives. Down in her lodge, apart from weekly visits by her one friend Manuela, Rene lives with only her cat for company. Meanwhile, several floors up, twelve-year-old Paloma Josse is determined to avoid the pampered and vacuous future laid…
Magical realism meets the magic of Christmas in this mix of Jewish, New Testament, and Santa stories–all reenacted in an urban psychiatric hospital!
On locked ward 5C4, Josh, a patient with many similarities to Jesus, is hospitalized concurrently with Nick, a patient with many similarities to Santa. The two argue…
I can’t count the number of conversations where I’ve been asked to slow down, or take a breath, or talk in a straight line. My neurodivergent heroes are versions of me: me if I were an alien, or a dying old lady, or a zombie. Gus is the closest I’ve come yet to writing my true self. He’s just me. I want readers who identify with Gus to feel seen and accepted and those who don’t—to understand what it’s like to live like this. And, just maybe, to have a little fun along the way.
Plot and style matter, but character is what I engage with. This book is a hilarious and touching portrait. Lionel Essrog doesn’t ‘suffer’ from Tourette’s Syndrome, but he happens to have it. He’s so natural that he completely normalizes his condition.
The plot involves an investigation that is told in Chandleresque prose, a very private-eye noir. Essrog is an unexpected narrator who nevertheless manages to own the story. I don’t use the phrase ‘pitch-perfect’ very often, but it fits here.
NATIONAL BOOK CRITICS CIRCLE AWARD WINNER • A complusively readable riff on the classic detective novel from America's most inventive novelist.
"A half-satirical cross between a literary novel and a hard-boiled crime story narrated by an amateur detective with Tourette's syndrome.... The dialogue crackles with caustic hilarity.... Unexpectedly moving." —The Boston Globe
Brooklyn's very own self-appointed Human Freakshow, Lionel Essrog is an orphan whose Tourettic impulses drive him to bark, count, and rip apart our language in startling and original ways. Together with three veterans of the St. Vincent's Home for Boys, he works for small-time mobster Frank Minna's limo…
When my mother died at age 83, I became executor of her estate. When our son was diagnosed with a brain tumor at age 22 and went through four brain surgeries in nine months, I acted as his caregiver while also caring for my father, who was dying from cancer. As a Christian, I wanted to learn what the Bible taught me about the hope of Heaven, leaving a legacy (my mother made it easier to be her executor by organizing her essential information), caregiving, and aging wisely. As an author, life, and legacy coach, and speaker, I love sharing the hope, peace, and comfort I gained through these resources.
I am frequently asked about the best way to support caregivers, and I usually recommend this compact little book. Bondurant, a former caregiver of her young daughter, knows caregivers need brief readings and helpful journaling questions. This little book can be used in a group or individually.
I love how Bondurant draws caregivers to the comfort that Jesus cares for them as they care for their loved ones. I am thankful for a book I can confidently recommend to caregivers because it delivers on the “comfort” Jesus offers and they desperately need.
That’s the question this Bible study invites us to ponder. Most caregivers experience anxiety, fear, frustration, loneliness, and exhaustion. In their caregiving, they wonder who will refresh their souls.
In this four-weekBible study designed for all types of caregivers, including those who have a special needs child, an aging parent, or a chronically ill spouse, you’ll take comfort in Jesus’ personal encounters with caregivers and discover how God is empowering you to care for your loved one.
I have been teaching college students about aging since I was in my late 20s. The audacity! Now that I am officially in the “young-old” category I used to describe to my students, I more fully appreciate the social constructions of aging that affect elders, the medical conditions that can derail plans for “a good old age,” and the challenges we all face in attempting to live with meaning and purpose as we grow older. In addition to teaching, writing about, and researching various aspects of aging, especially aging with various type of dementia, my work has addressed the positive and negative ways religious faith can shape how people cope with aging.
Janet Ramsey’s experiences as a chaplain, therapist, and family caregiver have taught her that people living with dementia deeply desire interactions with others that uphold their dignity and offer them love and forgiveness. She interviewed many dementia caregivers and throughout the book, she lets them express what dignity and grace mean in their everyday interactions with loved ones. Each chapter concludes with a reflection on a different Psalm, reflections that speak directly to the challenges and opportunities for growth that come with caregiving. Readers need not be Christian or in any way religious to appreciate the warmth and humanity conveyed throughout this book.
"I'm a stranger in a strange land," sighed the dignified gentleman Janet L. Ramsey met walking down the care-center hallway. Those words, her first glimpse of the confusion that comes with dementia, led her into a lifetime of work with older adults.
If you have been diagnosed with dementia or you are accompanying someone with this illness, you may find yourself on a journey that began with a sudden diagnosis and an acute sense of panic. Or perhaps your journey started gradually, as you noticed changes in yourself or in your partner or parent.…
A Duke with rigid opinions, a Lady whose beliefs conflict with his, a long disputed parcel of land, a conniving neighbour, a desperate collaboration, a failure of trust, a love found despite it all.
Alexander Cavendish, Duke of Ravensworth, returned from war to find that his father and brother had…
I am passionate about raising each human being for lifelong wellbeing and a full set of intelligences. High-income nations don’t do this so much anymore. I conduct empirical studies with children, parents, and other adults to examine how early experience affects capacities for getting along in life and with others. My book has won awards for its holistic view, integrating neuroscience, anthropology, and developmental science. This work led me to start the Evolved Nest website with lots of resources for parents and for all who care about human wellbeing. Humanity is facing many challenges and we need everyone’s gifts to be well grown to help us solve the problems we face.
My students love this book. It takes the inside perspective of both the parent and the child in stressful situations and guides the reader on how to act in a way that builds connection and relationship. It is easy to read with lots of real-life examples.
In this groundbreaking exploration of the brain mechanisms behind healthy caregiving, attachment specialist Daniel A. Hughes and veteran clinical psychologist Jonathan Baylin guide readers through the intricate web of neuronal processes, hormones and chemicals that drive-and sometimes thwart-our caregiving impulses, uncovering the mysteries of the parental brain.
The biggest challenge to parents, Hughes and Baylin explain, is learning how to regulate emotions that arise-feeling them deeply and honestly while staying grounded and aware enough to preserve the parent-child relationship. Stress, which can lead to "blocked" or dysfunctional care, can impede our brain's inherent caregiving processes and negatively impact our ability…
With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty.
The title poem in this collection, (made from lines spoken by the poet’s mother,) manages to embody both caregiver and loved one as Constantine gives gentle structure to a string of seemingly disconnected utterances. Each poem in the book explores themes of loss, memory, and family through a different lens, creating an almost kaleidoscopic vision of the world. The collection is a rumination, a celebration, and a beautiful example of how poetry can expand our perspectives and teach us to speak and hear new rhythms.
As with Constantine's previous titles, Dementia, My Darling can be enjoyed at random or in order. However, when taken in sequence, the poems construct a thesis on life as we remember it from moment to moment. What is your first memory of love? How soon will you forget answering that question?
After my dad died, I didn’t know where to turn. People felt uncomfortable talking to a seventeen-year-old girl about her dead dad. They felt even more uncomfortable talking to me about it one, two, ten years later. Still, I couldn’t, can’t, stop thinking about it. I turned, then, to books. These books made and make me feel seen. They aren’t about “moving on” or “letting go” but the ways in which leaning into grief’s deep well connects us to love’s true depths. These books are honest and pure, and if you don’t know what to say to a friend who’s mourning, let these authors speak for you.
Joy might not be the first thing you think of when
considering grief, but then maybe you haven’t read Ross Gay.
Gay understands
that joy exists because of grief, not as a counterbalance, but in a deeply
reciprocal relationship. As his father is dying, he presses their faces
together, and in his father’s freckles, he sees seeds, a garden. It is just one
instance in this book where Gay recognizes that what grows from loss is love.
His book clarifies what I know to be true: that when we fall into the hole of
loss, we find ourselves in a deep well of love.
A collection of gorgeously written and timely pieces in which prize-winning poet and author Ross Gay considers the joy we incite when we care for each other, especially during life's inevitable hardships.
In "We Kin" he thinks about the garden (especially around August, when the zucchini and tomatoes come on) as a laboratory of mutual aid; in "Share Your Bucket" he explores skate-boarding's reclamation of public space; he considers the costs of masculinity in "Grief Suite"; and in "Through My Tears I Saw," he recognizes what was healed in caring for his father as he was dying.
It is April 1st, 2038. Day 60 of China's blockade of the rebel island of Taiwan.
The US government has agreed to provide Taiwan with a weapons system so advanced that it can disrupt the balance of power in the region. But what pilot would be crazy enough to run…
Like my main character, I’m a Norwegian writer with ties to the US, who grew up with various chronic illnesses. I discovered the reason for much of my trouble when I was diagnosed with endometriosis. Isolated and in pain, I have always turned to books. I craved seeing my life reflected. Since Please Read This Leaflet Carefully came out, I’ve heard from many readers. I hope that it can help people who haven’t seen themselves in art before. This list addresses the needs of a life with chronic illness and pain: guidance, darkness, humor, comfort, and poetry. I hope these books will help you as much as they did me.
How to Be Sick is a soothing and strengthening book that offers tools that are useful for any creature living a life with a human body and heart. It contains many Buddhist-inspired mindfulness techniques that I use daily, such as ways to adjust one’s thoughts and approach, ways to work with acceptance and grief, and ways to find pleasure and joy when they are hard to come by.
A brand-new edition of the best-selling classic with added and updated practices.
In 2001, Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations—a life that was vastly different from the one they’d thought they’d have together—Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy. This book reminds us that our own inner freedom is limitless, regardless…
