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Book cover of Leaving Tinkertown

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From my list on inspiring memoirs about Alzheimer’s and Dementia.

Why am I passionate about this?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Ann Campanella Why Ann loves this book

Leaving Tinkertown is a romp of a memoir that takes the reader behind the scenes of Tinkertown, her father’s colorful roadside attraction in New Mexico. As Ross Ward descends into Alzheimer's, we learn what it was like growing up with this man and how Tanya’s complicated but tender history with him both repels and pulls her back home. Tanya’s writing is gorgeous, and this memoir is both vivid and heartbreaking! It’s a story you won’t soon forget.

By Tanya Ward Goodman ,

Why should I read it?

1 author picked Leaving Tinkertown as one of their favorite books, and they share why you should read it.

What is this book about?

When Tanya Ward Goodman came home to New Mexico to visit her dad at the end of 1996, he was fifty-five years old and just beginning to show symptoms of the Alzheimer's disease that would kill him six years later. Early onset dementia is a shock and a challenge to every family, but the Wards were not an ordinary family. Ross Ward was an eccentric artist and collector whose unique museum, Tinkertown, brought visitors from all over the world to the Sandia Mountains outside Albuquerque. In this book Tanya tells Ross's story and her own, sharing the tragedy and the…


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Book cover of Aggressor

Aggressor by FX Holden,

It is April 1st, 2038. Day 60 of China's blockade of the rebel island of Taiwan.

The US government has agreed to provide Taiwan with a weapons system so advanced that it can disrupt the balance of power in the region. But what pilot would be crazy enough to run…

Book cover of Learning to Speak Alzheimer's: A Groundbreaking Approach for Everyone Dealing with the Disease

Sharon Ricardi Author Of The Future of Alzheimer's

From my list on deepen your understanding of life past age fifty.

Why am I passionate about this?

I am passionate about aging in America. I was honored to be in health care for over 40 years; I was a leader in home care and hospital systems and was there at the birth of the assisted living movement, now so respected. I specialized in Alzheimer’s as it is the least understood common disease of seniors, one that evokes misery if not handled properly. I started the first Alzheimer’s training for homecare aides in the 90’s. In positions such as Senior Vice President of Northbridge Companies and President of Northbridge Advisory Services, I became an advocate for dementia education, advanced care, and programs for the financially challenged. 

Sharon's book list on deepen your understanding of life past age fifty

Sharon Ricardi Why Sharon loves this book

Over the years, I’m often asked to recommend books for caregivers about Alzheimer’s or memory loss in general. I often hesitated because so many books are so dreadfully depressing and clinical. In particular, some older books are not in keeping with the more contemporary views on a disease, which is, yes, a cruel and unrelenting villain, but there is hope to be found.

This book showcases many years of experience with thousands of people on the same journey, the opposite of the many books out there that just tell one person’s story. If I have learned anything, it is that all people with Alzheimer’s are different and experience this disease differently.

The late, great Joanne, from whom I got my dementia certification, has a much more useful and uplifting approach for families and friends of those diagnosed with Alzheimer’s. It's a classic. 

By Joanne Koenig Coste ,

Why should I read it?

2 authors picked Learning to Speak Alzheimer's as one of their favorite books, and they share why you should read it.

What is this book about?

A guide to more successful communication for the millions of Americans caring for someone with dementia: “Offers a fresh approach and hope.”—NPR

Revolutionizing the way we perceive and live with Alzheimer’s, Joanne Koenig Coste offers a practical approach to the emotional well-being of both patients and caregivers that emphasizes relating to patients in their own reality. Her accessible and comprehensive method, which she calls habilitation, works to enhance communication between carepartners and patients and has proven successful with thousands of people living with dementia.

Learning to Speak Alzheimer’s also offers hundreds of practical tips, including how to
-Cope with the…


Book cover of Green Vanilla Tea: One Family's Extraordinary Journey of Love, Hope, and Remembering

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From my list on inspiring memoirs about Alzheimer’s and Dementia.

Why am I passionate about this?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Ann Campanella Why Ann loves this book

As a writer and lover of memoir myself, the fact that I still remember how I felt after reading Green Vanilla Tea the first time, says a lot. The tremendous sadness of the book is woven so tightly with the love and appreciation of family in this book, I felt transported. Marie Williams shares the tragic story of her husband’s frontal temporal dementia as they are raising two teenage boys. Her beautiful prose describes a journey that is messy, tender, and sacred. This book changed my concept of love – stretching and renewing me!

By Marie Williams ,

Why should I read it?

1 author picked Green Vanilla Tea as one of their favorite books, and they share why you should read it.

What is this book about?

Green Vanilla Tea is a true story of love and courage in the face of a deadly and little understood illness. With literary finesse, compassion, and a powerful gift of storytelling, Marie Williams writes poignantly of her husband Dominic’s struggles with early onset dementia and amyotrophic lateral sclerosis (ALS) at the age of 40, and how their family found hope amidst the wreckage of a mysterious neurological condition.
 
As the condition develops and progresses, the normally devoted family man and loving partner seems to disappear beneath an expressionless facade, erratic behavior, and a relentless desire to wander that often leaves…


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Book cover of The Year Mrs. Cooper Got Out More: A Great Wharf Novel

The Year Mrs. Cooper Got Out More by Meredith Marple,

The coastal tourist town of Great Wharf, Maine, boasts a crime rate so low you might suspect someone’s lying.

Nevertheless, jobless empty nester Mallory Cooper has become increasingly reclusive and fearful. Careful to keep the red wine handy and loath to leave the house, Mallory misses her happier self—and so…

Book cover of Grandma and Me: A Kid's Guide for Alzheimer's and Dementia

Debra Daugherty Author Of The Memory Jar

From my list on helping children understand memory loss.

Why am I passionate about this?

Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.

Debra's book list on helping children understand memory loss

Debra Daugherty Why Debra loves this book

This is both a children’s story and a guide to Alzheimer’s. The child, Mathew, tells the story.

He begins with all the fun things he and his grandma do when he visits, walking in the backyard, eating butterscotch candy, listening to the birds. As time passes, Grandma grows forgetful. She calls Mathew by his dad’s name. She stays indoors more and has a caregiver. Mathew’s parents and a nurse explain the changes happening to his grandma. Mathew learns how to talk to her. They look at pictures and Mathew tells the stories that she told him.

This book is an excellent source for explaining Alzheimer’s and memory loss to a child. I love how it gives examples on ways to communicate with someone who has this disease. 

By Beatrice Tauber Prior , Mary Ann Drummond , Julia Walther (illustrator)

Why should I read it?

1 author picked Grandma and Me as one of their favorite books, and they share why you should read it. This book is for kids age 4, 5, 6, and 7.

What is this book about?

In Grandma and Me, Beatrice and Mary Ann combine their years of clinical experience to create a truly engaging, yet informative book for young children on the topics of Alzheimer's and dementia. The beautiful artwork will capture children's attention, bring them into the story, and help them return on their own. Grandma and Me provides a gentle, yet age appropriate description of Alzheimer's disease, while providing tools that helps children continue to have a relationship with their loved one despite the disease. Grandma and Me addresses a difficult topic with love and understanding and provides the tools for children to…


Book cover of Somebody I Used to Know: A Memoir

Vered Neta Author Of Things We Do For Love

From my list on the light side of Alzheimer’s.

Why am I passionate about this?

Like the Bach sisters in my novel Things We Do For Love, my sisters and I have cared for our mother, who battles Alzheimer's. Witnessing her transformation from a vibrant powerhouse to someone resembling the Walking Dead has been heart-wrenching. Despite the emotional rollercoaster, this journey has deeply connected us with our mother. Delving into the depths of her being has been a privilege, offering profound insights into her true essence. This challenging experience has unfolded as a disguised blessing. In this journey, we've discovered the beauty of unconditional love that binds our family together. It reflects the central question of my novel: What truly makes a happy family?

Vered's book list on the light side of Alzheimer’s

Vered Neta Why Vered loves this book

Receiving a dementia diagnosis at just 58 years old can be paralysing, but Wendy Mitchell chose a different path. Instead of preparing for the end, she embraced life with newfound determination.

Wendy became a passionate advocate and speaker for dementia awareness. Her remarkable journey includes earning two honorary doctorates and achieving many of her life's dreams, including becoming a published author to share her deeply personal story.

With engaging wit and unwavering courage, Wendy candidly narrates her daily battle with the illness. Her story is both heartwarming and inspirational, as she shows us that despite the challenges, dementia can also bring unexpected gifts alongside sorrow.

Wendy's character is endearing, and her resilience shines through, leaving readers with a profound sense of hope and a deeper understanding of the human spirit in the face of adversity.

By Wendy Mitchell ,

Why should I read it?

3 authors picked Somebody I Used to Know as one of their favorite books, and they share why you should read it.

What is this book about?

THE RICHARD AND JUDY BOOK CLUB PICK THE SUNDAY TIMES BESTSELLER A BBC RADIO 4 BOOK OF THE WEEK CHOSEN AS A 2018 SUMMER READ BY THE SUNDAY TIMES, FINANCIAL TIMES, DAILY TELEGRAPH, THE TIMES AND THE MAIL ON SUNDAY 'Revelatory' Guardian 'A miracle' Telegraph 'A landmark book' Financial Times Brave, illuminating and inspiring, Somebody I Used to Know gets to the very heart of what it means to be human. What do you lose when you lose your memories? What do you value when this loss reframes how you've lived, and how you will live in the future? How…


Book cover of Memory's Last Breath: Field Notes on My Dementia

Marianne Sciucco Author Of Blue Hydrangeas

From my list on living with dementia.

Why am I passionate about this?

I am a registered nurse, author, and dementia daughter. As a nurse and hospital case manager, I spent many years caring for people living with dementia and their families. This inspired me to write a novel, Blue Hydrangeas, an Alzheimer’s love story. I soon encountered difficulties marketing my book. I reached out to two other dementia daughters I’d met online who had also written books on the subject from personal experience and together we founded the non-profit organization AlzAuthors.com. Our mission is to carefully vet resources – stories of personal caregiving – to help busy caregivers find the information and inspiration they need for their own journeys. To date, we are 300+ authors strong.

Marianne's book list on living with dementia

Marianne Sciucco Why Marianne loves this book

Gerda Saunders was diagnosed with cerebral microvascular disease, the leading cause of dementia after Alzheimer’s disease, a few days before her sixty-first birthday. This forced her to confront her mortality and to write an end-of-life plan she could live with. Gerda is a brave, inspiring woman. Her book is a rich, thoughtful accounting of life with dementia.

By Gerda Saunders ,

Why should I read it?

1 author picked Memory's Last Breath as one of their favorite books, and they share why you should read it.

What is this book about?

A "courageous and singular book" (Andrew Solomon), Memory's Last Breath is an unsparing, beautifully written memoir -- "an intimate, revealing account of living with dementia" (Shelf Awareness).

Based on the "field notes" she keeps in her journal, Memory's Last Breath is Gerda Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders, a former university professor, nonetheless embarks on…


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Book cover of That First Heady Burn

That First Heady Burn by George Bixley,

Don’t mess with the hothead—or he might just mess with you. Slater Ibáñez is only interested in two kinds of guys: the ones he wants to punch, and the ones he sleeps with. Things get interesting when they start to overlap. A freelance investigator, Slater trolls the dark side of…

Book cover of Iveliz Explains It All

Jasminne Mendez Author Of Aniana del Mar Jumps In

From my list on girls seeking bodily agency and body confidence.

Why am I passionate about this?

As a person who has lived with chronic illness and disability for over a decade, I've often found it difficult to advocate for myself because I was afraid and because I just didn’t know that I had a right to speak up. Not just in medical settings but also with family and friends. So often, others with “authority” think they know what’s best for us, but in the end, we know our bodies best. I’ve learned to set boundaries, say no, and advocate for myself as a means of survival. These five books are wonderful examples of strong girls and young women using their voices to protect their bodily agency and build their body confidence.

Jasminne's book list on girls seeking bodily agency and body confidence

Jasminne Mendez Why Jasminne loves this book

Iveliz is angry and depressed, about a lot of things, including the death of her father. In an attempt to help Iveliz manage her anger and depression she sees a therapist and takes medication.

Iveliz knows taking her medications will help her, but what if the meds aren’t helping anymore? And what if seeing a therapist and talking about her problems isn’t what Iveliz wants to do? Why does no one want to listen to what she wants?

Iveliz struggles to say no and to advocate for herself and she pours all her thoughts and feelings into her journal, until she realizes that maybe using her voice is a better way to be heard. I loved the way Iveliz’s emotional journey and mental health are chronicled and treated with respect and care in this award-winning middle-grade novel in verse.

By Andrea Beatriz Arango , Alyssa Bermudez (illustrator) ,

Why should I read it?

1 author picked Iveliz Explains It All as one of their favorite books, and they share why you should read it. This book is for kids age 10, 11, 12, and 13.

What is this book about?

NEWBERY HONOR AWARD WINNER • In this timely and moving novel in verse, a preteen girl navigates seventh grade while facing mental health challenges. A hopeful, poetic story about learning to advocate for the help and understanding you deserve.

"Powerful." —Lisa Fipps, Printz Honor-winning author of Starfish

How do you speak up when it feels like no one is listening?

The end of elementary school?
Worst time of my life.
And the start of middle school?
I just wasn’t quite right.
But this year?
YO VOY A MI.

Seventh grade is going to be Iveliz’s year. She’s going to make…


Book cover of Scar Tissue

Sandeep Jauhar Author Of My Father's Brain: Life in the Shadow of Alzheimer's

From my list on the complexities of Alzheimer's and dementia.

Why am I passionate about this?

For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.

Sandeep's book list on the complexities of Alzheimer's and dementia

Sandeep Jauhar Why Sandeep loves this book

In Scar Tissue, a 1993 Booker Prize finalist, an unnamed narrator gives a first-person account of the precipitous decline of his mother from dementia (though her condition is never explicitly named).

“She remembers captions of New Yorker cartoons,” he says, lamenting that “it is what happened five minutes ago that is slipping away.” It is a predicament with which dementia caregivers are all too familiar.

Yet, despite his mother’s descent into oblivion, the narrator insists she be treated with dignity. “You keep telling me what has been lost,” he tells her neurologist, “and I keep telling you something remains.”

By Michael Ignatieff ,

Why should I read it?

1 author picked Scar Tissue as one of their favorite books, and they share why you should read it.

What is this book about?

Chronicles one woman's descent into Alzheimer's disease and her sons' painful witness to the tragedy, which is enhanced by their careers in philosophy and neurology and by strengthened family bonds


Book cover of A Dignified Life: The Best Friends Approach to Alzheimer's Care: A Guide for Care Partners

Laura Wayman Author Of A Loving Approach to Dementia Care: Making Meaningful Connections While Caregiving

From my list on dementia and how to find joy while caregiving.

Why am I passionate about this?

During my decades of working with caregivers as a dementia care expert, I have heard many accounts of what the experience is like—from the sad and hollow to experiences rich in significance. Everyone faces obstacles when caring for a loved one; some of these obstacles come in the form of uncomfortable or painful emotional histories or past unresolved conflicts. After each opportunity to raise awareness and understanding about how dementia impacts individuals, their families, and their communities, I have been gratified to witness enhanced feelings of hope and comfort for all involved. It is my hope that through this book I will enter your home or your professional caregiving setting and work alongside you. 

Laura's book list on dementia and how to find joy while caregiving

Laura Wayman Why Laura loves this book

This book shows you how to meet many of the daily challenges of caring for someone with dementia. Illustrated through the heartfelt stories of others this book shows your how The Best Friends method brings dignity to the lives of those presenting dementia symptoms and those who are caring for them.

I found the explanation of Alzheimer’s disease and dementia symptoms very interesting and helpful, specifically how this type of loss and experience can make the individual feel. I appreciated learning additional and successful ways to respond and communicate to many situations that caregivers face when caring for any individual with any cause of dementia symptoms.

Dementia care is complex and different for every person, and I am always looking for new perspectives and care approaches to share with family and professional care providers that can give confidence and feelings of empowerment to anyone on their individual dementia care journey-and…

By Virginia Bell , David Troxel ,

Why should I read it?

1 author picked A Dignified Life as one of their favorite books, and they share why you should read it.

What is this book about?

More than 5 million Americans are currently living with Alzheimer's disease or a related form of dementia. By the year 2030, experts estimate that as many as 66 million people around the world will be faced with this life-altering disease. Unfortunately, these staggering statistics impact millions of caregivers, too. Compared with all types of caregivers, those who assist someone with dementia experience the highest levels of burnout, depression, poor health, and premature death. A Dignified Life, Revised and Expanded offers hope and help with a proven approach.

Ten years ago, the first edition of A Dignified Life changed the way…


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Book cover of My Book Boyfriend

My Book Boyfriend by Kathy Strobos,

Lily loves her community garden. Rupert wants to bulldoze it. When feelings grow, will they blossom or turn to rubble?

"It literally had everything! - Bookworm Characters - Humor - Banter - Swoon-worthy lines."  - Book Reviewer.

Book cover of Embracing What Remains: A Memoir

Ann Campanella Author Of Motherhood: Lost and Found: A memoir

From my list on inspiring memoirs about Alzheimer’s and Dementia.

Why am I passionate about this?

An author of a caregiving memoir myself, I’m also a former magazine and newspaper editor who has had the opportunity to read and write about many topics. For the past five years, I have been a manager and director of AlzAuthors, an online global organization that offers the world’s most comprehensive collection of books and blogs on Alzheimer’s and dementia. To say I have done a lot of reading on this subject is an understatement. I’ve been honored to work with so many talented and big-hearted authors who share their Alzheimer’s and dementia experiences. Being immersed in the Alzheimer’s world through AlzAuthors has given me insight into many of the best memoirs on this subject.   

Ann's book list on inspiring memoirs about Alzheimer’s and Dementia

Ann Campanella Why Ann loves this book

Andrea Couture’s father, a well-known, recently retired surgeon, develops Alzheimer’s at the age of 67. As someone who also lost a parent at a young age, Embracing What Remains touched a deep place in my heart. I connected with how she processed her emotions through her writing. I also appreciated the way she balances her grief over his disease with the gratitude and joy she discovers in each moment. This is a beautifully written memoir! 

By Andrea Couture ,

Why should I read it?

1 author picked Embracing What Remains as one of their favorite books, and they share why you should read it.

What is this book about?

***AlzAuthors.com recommended book***

***Finalist in Next Generation Indie Book Awards***

Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer’s.
Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer’s at the age of 67. Her dream to grow closer with him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father’s fate. Andrea rides an unpredictable wave…


Book cover of Leaving Tinkertown
Book cover of Learning to Speak Alzheimer's: A Groundbreaking Approach for Everyone Dealing with the Disease
Book cover of Green Vanilla Tea: One Family's Extraordinary Journey of Love, Hope, and Remembering

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