Here are 100 books that Permanent Present Tense fans have personally recommended if you like
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For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
A British neuroscientist, Jebelli travels around the world to discover the latest in dementia research.
He goes to Papua New Guinea, Japan, India, and China to learn about experimental (but mostly futile) treatments, including stem cells, blood transfusions and repurposed cancer drugs.
In the end, he acknowledges how little medicine currently has to offer patients living with dementia, even as he holds out hope (far-fetched, in my view) for a cure in 10 years.
For readers of Atul Gawande, Siddhartha Mukherjee, and Henry Marsh, a riveting, gorgeously written biography of one of history's most fascinating and confounding diseases -- Alzheimer's -- from its discovery more than 100 years ago to today's race towards a cure.
Alzheimer's is the great global epidemic of our time, affecting millions worldwide -- there are more than 5 million people diagnosed in the US alone. And as our population ages, scientists are working against the clock to find a cure.
Neuroscientist Joseph Jebelli is among them. His beloved grandfather had Alzheimer's and now he's written the book he needed…
It is April 1st, 2038. Day 60 of China's blockade of the rebel island of Taiwan.
The US government has agreed to provide Taiwan with a weapons system so advanced that it can disrupt the balance of power in the region. But what pilot would be crazy enough to run…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
Swinton, chair in divinity and religious studies at the University of Aberdeen, focuses on the ways the standard model of dementia, which views the disease almost exclusively as a consequence of brain damage, is incomplete.
Patients with dementia, Swinton notes, can have varying degrees of brain damage. Some whose autopsies revealed significant damage manifested little clinical impairment while alive. Others with only minor neuropathology had full-blown symptoms.
Therefore, Swinton argues, it is clear that social environments, through implicit messaging or explicit neglect, worsen the demented condition. What is called for is an approach based on respect and dignity.
Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it.
In this book John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions:
Who am I when I've forgotten who I am?
What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
Thomas’s 2015 novel revolves around Eileen Leary, a tough Irish American nurse yearning to break the middle-class mold in which her life is set when her husband, Ed, a neuroscientist, develops early-onset Alzheimer’s.
Thomas describes his slow deterioration and the ravages inflicted on Eileen and their son, Connell, in drawn-out moments and exquisite detail. In an especially harrowing scene, Eileen stays up all night watching her once brilliant husband struggle with the simple task of tabulating the final grades in his community college class.
Though the narrative sometimes gets bogged down in minutiae, it is as unsparing an account of Alzheimer’s as I have ever read.
SHORTLISTED FOR THE JAMES TAIT BLACK PRIZE LONGLISTED FOR THE GUARDIAN FIRST BOOK AWARD NOMINATED FOR THE FOLIO PRIZE NAMED A NOTABLE BOOK OF THE YEAR BY THE NEW YORK TIMES
A stunning, heartbreaking debut - 'We Are Not Ourselves' is both the intimate story of a family and an epic of the American Century.
Eileen Leary wants more. Raised in a downtrodden area of new York by hard-drinking, Irish immigrant parents, she dreams of another life: a better job, a bigger house, more respectable friends, a happy family. When she meets Ed Leary, a brilliant young scientist, she thinks…
The Year Mrs. Cooper Got Out More
by
Meredith Marple,
The coastal tourist town of Great Wharf, Maine, boasts a crime rate so low you might suspect someone’s lying.
Nevertheless, jobless empty nester Mallory Cooper has become increasingly reclusive and fearful. Careful to keep the red wine handy and loath to leave the house, Mallory misses her happier self—and so…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
In Scar Tissue, a 1993 Booker Prize finalist, an unnamed narrator gives a first-person account of the precipitous decline of his mother from dementia (though her condition is never explicitly named).
“She remembers captions of New Yorker cartoons,” he says, lamenting that “it is what happened five minutes ago that is slipping away.” It is a predicament with which dementia caregivers are all too familiar.
Yet, despite his mother’s descent into oblivion, the narrator insists she be treated with dignity. “You keep telling me what has been lost,” he tells her neurologist, “and I keep telling you something remains.”
Chronicles one woman's descent into Alzheimer's disease and her sons' painful witness to the tragedy, which is enhanced by their careers in philosophy and neurology and by strengthened family bonds
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
This sensitive, charming book shows how a child learns about what is going on in her granny’s brain.
It addresses the emotions that a young child may feel when they witness confusing changes in a loved one’s behavior. This story provides a wonderful opportunity to discuss dementia and what to do if a child has concerns or questions.
Are you looking for a picture book to talk about dementia or Alzheimer's with a child? This Alzheimer’s book for children explains Alzheimer’s dementia in kid-friendly terms. The book presents memory loss in an easy-to-understand narrative.
Boys and girls alike will benefit from this “must have” children’s read. Alzheimer's has an impact on families around the world. This book allows a family to face this challenge together and make the most of every available moment.
In Granny Needs My Help: A Child's Look at Dementia and Alzheimer's the main character Zéh is excited, happy, and challenged as she helps and…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
Granny Can’t Remember Me is told through the child’s eyes. Six-year-old Joey talks about having two grandmas, one who lives in Florida, and one who lives a few blocks away.
His nearby Granny doesn’t remember him, but she does remember stories of when she was young, and when his mother was a child. Joey loves hearing her stories, and playing cards with her. He loves Granny and knows deep down that she loves him, too.
This story was written by a doctor whose mother and father-in-law both had Alzheimer’s. As I read it, I was reminded of my aunt who also had Alzheimer’s. She regaled me with tales of her youth but had no memories of her present. Children will relate to this story as it’s told from a child’s point of view.
Granny Can’t Remember Me is a lighthearted picture book about Alzheimer’s disease and dementia told from the perspective of a six-year-old boy, appropriate for children in preschool through early elementary school (ages 3 – 8). Granny can’t remember that Joey likes soccer and rockets and dogs. Granny can’t remember much of anything. But with Granny’s stories of her Three Best Days, Joey knows she loves him just the same.Alzheimer’s disease is more and more common, and many young children experience this sometimes scary and sad family situation. Granny Can’t Remember Me shows a boy’s acceptance and love for his grandmother…
Don’t mess with the hothead—or he might just mess with you. Slater Ibáñez is only interested in two kinds of guys: the ones he wants to punch, and the ones he sleeps with. Things get interesting when they start to overlap. A freelance investigator, Slater trolls the dark side of…
As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease.
Now in its 7th edition, this book is the classic guide to caregiving for individuals with dementia. Comprehensive, and filled with stories and anecdotes, it is packed with valuable information on dementia and the behaviors that dementia engenders. We have read it several times and have recommended it to hundreds if not thousands of families.
With over 3.5 million copies sold, the bestselling guide to understanding and caring for people with dementia is now completely revised and updated!
For 40 years, The 36-Hour Day has been the leading work in the field for caregivers of those with dementia. Written by experts with decades of experience caring for individuals with memory loss, Alzheimer's, and other dementias, the book is widely known for its authoritativeness and compassionate approach to care. Featuring everything from the causes of dementia to managing its early stages to advice on caring for those in the later stages of the disease, it is…
My passion for small islands began as a child. I spent my summer holidays on the Isles of Scilly, where everyone knew each other, and the sea wiped the landscape clean, leaving it pristine each morning. Since then, I’ve visited dozens of islands, keen to understand the islanders’ survivalist mindset. I worked as an English teacher before becoming a writer. It allowed me to share my love of storytelling, but the tales that linger with me still take place on small islands where the consequences of our actions are never forgotten. I hope you enjoy exploring the ones on my list as much as I did!
I love this book for its clever psychological games. I’ve always adored books that convincingly juggle good and evil, and this book achieves the perfect balance.
Amnesia has always fascinated me, and this story left me wondering how I would cope if the only thing I could remember were my own name. It struck a personal note because my much-loved grandmother lived with devastating Alzheimer’s for the last ten years of her life. But I’ve often wondered if amnesia carries a positive element, too. It may rob us of cherished parts of our history, but it also wipes away shame and regret.
The ethical questions raised in this book fascinated me.
'Atmospheric, mysterious and intense ... It's a stunning psychological thriller' C. L. Taylor, bestselling author of THE MISSING
Kommeno Island, Greece: I don't know where I am, who I am. Help me.
A woman is washed up on a remote Greek island with no recollection of who she is or how she got there.
Potter's Lane, Twickenham, London: Eloise Shelley is officially missing.
Lochlan's wife has vanished into thin air, leaving their toddler and twelve-week-old baby alone. Her money, car and passport are all in the house, with no signs of foul play. Every clue the police turn up means…
Chicago-born and now living in Spain, I was a community organizer in South America and the US before earning a PhD in sociology and becoming a college professor and author. I’ve written five nonfiction books and articles for publications including The New York Times, The Nation, Counterpunch, etc. Of my collection of short stories,Welcome to My Contri, theNY Times Book Reviewsaid that it “leaves us aware that we are in the presence of a formidable new writer.” In Rabble! I’ve called on my organizing experience as well as analysis and fiction to bring to life the actors in the first worker-run, self-governing society in the modern world.
Moon Browdescribes the social tensions between ideals of freedom, religion, and authoritarianism that provoked Iran’s 1978 revolution, but only increased under Islamic rule. Amir, a formerly rich, wild playboy, flogged by the morality police after a drunken orgy, joins the army to escape shame and find meaning for his life in the brutal and futile 10-year war against Iraq. Commanding artillery in the borderland, he encounters the mysterious, sprite-like woman he calls “Moon Brow,” who, after an Iraqi shell maims him, becomes a magical force in his PTSD hallucinations. Her true identity will come as a rebuke for his comparatively pointless existence, while his sister’s spurning of her rich, pretentious suitor will be another rebuke, of his machismo. A brilliant evocation of the illusions that sustain violence.
From “one of Iran's most important living fiction writers” (The Guardian) comes a fantastically imaginative story of love and war narrated by two angel scribes perched on the shoulders of a shell-shocked Iranian soldier who’s searching for the mysterious woman haunting his dreams.
Before he enlisted as a soldier in the Iran–Iraq War and disappeared, Amir Yamini was a carefree playboy whose only concerns were seducing women and riling his religious family. Five years later, his mother and sister Reyhaneh find him in a mental hospital for shell-shocked soldiers, his left arm and most of his memory lost. Amir is…
Becoming a writer was never on my life’s agenda. But one morning, in the middle of my mid-life crisis, I woke up from a really intense dream and said, “I need to write that story!” So, I did. That first book Reis’s Pieces, which involves schizophrenia, was my second published novel. Where Are the Cocoa Puffs? was written years later when mental illness suddenly rocked my world. Initially motivated by a dream and ultimately motivated by my waking life, I wanted to write books that involve engaging, likable protagonists who are struggling directly with a serious mental illness. I want my books to inspire, educate, demystify, and foremostly entertain.
Beautiful, heart-wrenching, and masterfully written this memoir starts with twenty-eight-year-old MacLean waking up in a train station in India. He has no idea who he is or how he got there. MacLean doesn’t waste any time diving into the terror and the humor of his situation. He becomes increasingly ill and is eventually placed in a psychiatric hospital in Hyderabad. Turns out he’s had a rare reaction to the anti-malarial drug Lariam. Fun, right? With lines like, “Faking sanity isn’t as hard as it might seem. You just have to shut up.” You betcha it’s fun!
“A deeply moving account of amnesia that . . . reminds us how we are all always trying to find a version of ourselves that we can live with.” —Los Angeles Times
On October 17, 2002, David MacLean “woke up” on a train platform in India with no idea who he was or why he was there. No money. No passport. No identity.
Taken to a mental hospital by the police, MacLean then started to hallucinate so severely he had to be tied down. He could remember song lyrics, but not his family, his friends, or the woman he was…
