Here are 100 books that Permanent Present Tense fans have personally recommended if you like
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For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
A British neuroscientist, Jebelli travels around the world to discover the latest in dementia research.
He goes to Papua New Guinea, Japan, India, and China to learn about experimental (but mostly futile) treatments, including stem cells, blood transfusions and repurposed cancer drugs.
In the end, he acknowledges how little medicine currently has to offer patients living with dementia, even as he holds out hope (far-fetched, in my view) for a cure in 10 years.
For readers of Atul Gawande, Siddhartha Mukherjee, and Henry Marsh, a riveting, gorgeously written biography of one of history's most fascinating and confounding diseases -- Alzheimer's -- from its discovery more than 100 years ago to today's race towards a cure.
Alzheimer's is the great global epidemic of our time, affecting millions worldwide -- there are more than 5 million people diagnosed in the US alone. And as our population ages, scientists are working against the clock to find a cure.
Neuroscientist Joseph Jebelli is among them. His beloved grandfather had Alzheimer's and now he's written the book he needed…
A moving story of love, betrayal, and the enduring power of hope in the face of darkness.
German pianist Hedda Schlagel's world collapsed when her fiancé, Fritz, vanished after being sent to an enemy alien camp in the United States during the Great War. Fifteen years later, in 1932, Hedda…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
Swinton, chair in divinity and religious studies at the University of Aberdeen, focuses on the ways the standard model of dementia, which views the disease almost exclusively as a consequence of brain damage, is incomplete.
Patients with dementia, Swinton notes, can have varying degrees of brain damage. Some whose autopsies revealed significant damage manifested little clinical impairment while alive. Others with only minor neuropathology had full-blown symptoms.
Therefore, Swinton argues, it is clear that social environments, through implicit messaging or explicit neglect, worsen the demented condition. What is called for is an approach based on respect and dignity.
Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it.
In this book John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions: Who am I when I've forgotten who I am? What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
Thomas’s 2015 novel revolves around Eileen Leary, a tough Irish American nurse yearning to break the middle-class mold in which her life is set when her husband, Ed, a neuroscientist, develops early-onset Alzheimer’s.
Thomas describes his slow deterioration and the ravages inflicted on Eileen and their son, Connell, in drawn-out moments and exquisite detail. In an especially harrowing scene, Eileen stays up all night watching her once brilliant husband struggle with the simple task of tabulating the final grades in his community college class.
Though the narrative sometimes gets bogged down in minutiae, it is as unsparing an account of Alzheimer’s as I have ever read.
SHORTLISTED FOR THE JAMES TAIT BLACK PRIZE LONGLISTED FOR THE GUARDIAN FIRST BOOK AWARD NOMINATED FOR THE FOLIO PRIZE NAMED A NOTABLE BOOK OF THE YEAR BY THE NEW YORK TIMES
A stunning, heartbreaking debut - 'We Are Not Ourselves' is both the intimate story of a family and an epic of the American Century.
Eileen Leary wants more. Raised in a downtrodden area of new York by hard-drinking, Irish immigrant parents, she dreams of another life: a better job, a bigger house, more respectable friends, a happy family. When she meets Ed Leary, a brilliant young scientist,…
This book is an elegiac meditation on the will to survive. Tor, a beluga whaler, and his wife, Astrid, a botanist specializing in Arctic flora, are stranded during the dark season of 1937-38 at his remote whaling station in the Svalbard archipelago when they misjudge ice conditions and fail to…
For nearly 7 years I watched my father decline from Alzheimer’s. It was perhaps the most difficult journey I’ve ever taken. My book, My Father’s Brain, is a memoir of my relationship with my father as he succumbed to his disease, but it is also a scientific and historical inquiry into the fragility of the brain. In the book, I set my father’s descent into dementia alongside my own journey, as a doctor, writer, and son, toward understanding this mysterious and devastating disease.
In Scar Tissue, a 1993 Booker Prize finalist, an unnamed narrator gives a first-person account of the precipitous decline of his mother from dementia (though her condition is never explicitly named).
“She remembers captions of New Yorker cartoons,” he says, lamenting that “it is what happened five minutes ago that is slipping away.” It is a predicament with which dementia caregivers are all too familiar.
Yet, despite his mother’s descent into oblivion, the narrator insists she be treated with dignity. “You keep telling me what has been lost,” he tells her neurologist, “and I keep telling you something remains.”
Chronicles one woman's descent into Alzheimer's disease and her sons' painful witness to the tragedy, which is enhanced by their careers in philosophy and neurology and by strengthened family bonds
As an educator, author of children’s books, and caregiver of a loved one with dementia, I felt that I had to write a story about the disease from a child’s point of view. When I became a caregiver, I was struck by the lack of information for children and the misconceptions of the public about the disease. I wanted to create a story that reassures children and gives them guidance on how they can help be a caregiver. I added the Author’s Note to provide accurate information to adults so that more people are aware of the signs of dementia and to build understanding and compassion.
This sensitive, charming book shows how a child learns about what is going on in her granny’s brain.
It addresses the emotions that a young child may feel when they witness confusing changes in a loved one’s behavior. This story provides a wonderful opportunity to discuss dementia and what to do if a child has concerns or questions.
Are you looking for a picture book to talk about dementia or Alzheimer's with a child? This Alzheimer’s book for children explains Alzheimer’s dementia in kid-friendly terms. The book presents memory loss in an easy-to-understand narrative.
Boys and girls alike will benefit from this “must have” children’s read. Alzheimer's has an impact on families around the world. This book allows a family to face this challenge together and make the most of every available moment.
In Granny Needs My Help: A Child's Look at Dementia and Alzheimer's the main character Zéh is excited, happy, and challenged as she helps and…
Children’s stories about memory loss, Alzheimer’s, and dementia resonate with me because I know firsthand how difficult it is to care for someone with this disease. My Aunt Luella had Alzheimer’s, and I cared for her in my home. When my aunt no longer remembered me, my heart ached. I felt hopeless, afraid. I can only imagine how difficult it is for a child to watch as a beloved grandparent forgets them. I found these five books to be helpful and inspiring. They offer hope. They embrace the love that still exists.
Granny Can’t Remember Me is told through the child’s eyes. Six-year-old Joey talks about having two grandmas, one who lives in Florida, and one who lives a few blocks away.
His nearby Granny doesn’t remember him, but she does remember stories of when she was young, and when his mother was a child. Joey loves hearing her stories, and playing cards with her. He loves Granny and knows deep down that she loves him, too.
This story was written by a doctor whose mother and father-in-law both had Alzheimer’s. As I read it, I was reminded of my aunt who also had Alzheimer’s. She regaled me with tales of her youth but had no memories of her present. Children will relate to this story as it’s told from a child’s point of view.
Granny Can’t Remember Me is a lighthearted picture book about Alzheimer’s disease and dementia told from the perspective of a six-year-old boy, appropriate for children in preschool through early elementary school (ages 3 – 8). Granny can’t remember that Joey likes soccer and rockets and dogs. Granny can’t remember much of anything. But with Granny’s stories of her Three Best Days, Joey knows she loves him just the same.Alzheimer’s disease is more and more common, and many young children experience this sometimes scary and sad family situation. Granny Can’t Remember Me shows a boy’s acceptance and love for his grandmother…
Tina Edwards loved her childhood and creating fairy houses, a passion shared with her father, a world-renowned architect. But at nine years old, she found him dead at his desk and is haunted by this memory. Tina's mother abruptly moved away, leaving Tina with feelings of abandonment and suspicion.
As a neurologist and neuropsychologist team who have spent their entire clinical, teaching, and research careers focused on individuals and their families experiencing memory loss, Alzheimer’s disease, and dementia, our goal is simple. We want to empower individuals and their families with the tools they need to manage memory loss, Alzheimer’s disease, and dementia. We work to balance pharmacological and nonpharmacological management, as well as the needs of the individual with those of their family. Reading books like the ones in our list plus articles in medical journals keeps us current with the progress in the science of dementia and the humanity of individuals and families living with the disease.
Now in its 7th edition, this book is the classic guide to caregiving for individuals with dementia. Comprehensive, and filled with stories and anecdotes, it is packed with valuable information on dementia and the behaviors that dementia engenders. We have read it several times and have recommended it to hundreds if not thousands of families.
With over 3.5 million copies sold, the bestselling guide to understanding and caring for people with dementia is now completely revised and updated!
For 40 years, The 36-Hour Day has been the leading work in the field for caregivers of those with dementia. Written by experts with decades of experience caring for individuals with memory loss, Alzheimer's, and other dementias, the book is widely known for its authoritativeness and compassionate approach to care. Featuring everything from the causes of dementia to managing its early stages to advice on caring for those in the later stages of the disease, it is…
I’m often asked: “Are you a musician? You mustbe, in order to write so beautifully and convincingly, through the eyes of a musician!” Actually, I’m what’s known as a “serious amateur”—which means that I study the piano “seriously” but not professionally, purely for the love of it. In fact, my understanding of the piano deepened tremendously as I worked on this book, as if my protagonist required that of me, in order to bring her to life the way she needed. The piano has become more and more vital to me, as a writer, because it allows me to explore and express in ways that don’t depend on words.
In Everything You Are, Braden is a cellist who has lost the use of his hands—in his case, through a tragic twist of fate. Enter Ophelia, granddaughter of the man who sold Branden his cello and made Ophelia swear that he will always play it. Author Kerry Anne King weaves a magical spell around these two characters as, together, they find their way to forgiveness. This is a story full of twists and turns, culminating in a beautiful ending that depicts the healing power of music.
From the bestselling author of Whisper Me This comes a haunting and lyrical novel about the promises we make and the forgiveness we need when we break them.
One tragic twist of fate destroyed Braden Healey's hands, his musical career, and his family. Now, unable to play, adrift in an alcoholic daze, and with only fragmented memories of his past, Braden wants desperately to escape the darkness of the last eleven years.
When his ex-wife and son are killed in a car accident, Braden returns home, hoping to forge a relationship with his troubled seventeen-year-old daughter, Allie. But how can…
My career as an executive and leadership coach led me to recognize the cost of living in misalignment to what holds meaning for us. This incongruence leads to stress, illness, organizational failures, and a lack of honest connection. My work as a coach, and now designing bespoke, restorative experiences and retreats in Portugal, is to hold space for courageous conversations around meaning, purpose, and human connection. My writing has inspired others to be unapologetic about the life they desire and deserve.
I was immediately drawn to a fellow Latina's story by virtue of being of Colombian ancestry and experiencing similar mystical and unusual experiences in my family. I have relatives in Colombia who lived through the political violence of the 1980s, and I could understand the dread she described in her book.
The reckoning between a concrete reality and a magical world was part of my writing challenge. I felt as if I had found a kindred spirit who shared a heritage of magic and mystery and the Latina approach to integrating this into our lives unapologetically.
PULITZER PRIZE FINALIST • NATIONAL BOOK AWARD FINALIST • From the bestselling author of Fruit of the Drunken Tree, comes a dazzling, kaleidoscopic memoir reclaiming her family's otherworldly legacy.
A BEST BOOK OF THE YEAR: TIME, NPR, VULTURE, PEOPLE, BOSTON GLOBE, VANITY FAIR, ESQUIRE, & MORE
“Rojas Contreras reacquaints herself with her family’s past, weaving their stories with personal narrative, unraveling legacies of violence, machismo and colonialism… In the process, she has written a spellbinding and genre-defying ancestral history.”—New York Times Book Review
For Ingrid Rojas Contreras, magic runs in the family. Raised amid the political violence of 1980s…
The Duke's Christmas Redemption
by
Arietta Richmond,
A Duke who has rejected love, a Lady who dreams of a love match, an arranged marriage, a house full of secrets, a most unneighborly neighbor, a plot to destroy reputations, an unexpected love that redeems it all.
Lady Charlotte Wyndham, given in an arranged marriage to a man she…
Ten-year-old me once looked in the bathroom mirror wondering who I would become. I tried to memorize the patterns in the tiles to hold on to that moment and carry it with me. My fascination with memory and the past permeates my novels. I love a good cold case—and my August Monet thriller trilogy is all about how the past weaves through the present—informing it, haunting it, transporting secrets. Maybe it’s our long, dark winters, but I see this same fascination in the novels of my fellow Canadian thriller writers. Many have created messy characters haunted by their messy pasts. Here’s a list of my favourites.
A thriller with a kick-ass premise: Chloe wakes up on the side of a highway not knowing who the heck she is or how she got there.
It’s a haunting, scary, unnerving story about a woman trying to figure out what could have happened to completely wipe out her memory. What I love about the novel is how Wong’s relentless pace matches lockstep with her protagonist’s frenzied and fractured state of mind.
Bits of the past begin to slip through the cracks as Chloe searches for the truth. I love that Wong chose to tell the story from Chloe’s POV so we’re only privy to what this messy character remembers—or chooses to tell us that she remembers. Twisted, damaged characters with secrets are my cup of tea.
“A chilling, nerve-jangling journey into lost memories and unforgettable terrors. Sandra Wong knows what scares us all—and what we can never forget.” —Tess Gerritsen, New York Times–bestselling author of Listen to Me
A jolting psychological suspense novel from an up-and-coming Chinese-Canadian crime writer about missing parents, a winning lottery ticket and the lies we tell ourselves in order to survive.
Some things are better left forgotten . . .
When a woman wakes up with amnesia beside a mountain highway, confused and alone, she fights to regain her identity, only to learn that her parents have disappeared—not long after her…
