100 Books Like Look Up!

This book, for me, is important as the first trade nonfiction picture book about the fight for the Americans with Disabilities Act (ADA). I hope and assume more books on this topic are in the pipeline, as there is so much more to share with kids about this crucial social justice movement! Jennifer Keenan’s story is great for kids because she was a kid herself when she crawled up the U.S. Capitol steps to fight for disability rights. This book offers an inspiring, personal entryway into the disability rights movement and the importance of having laws and systems to back up beliefs about access for all.

I firmly believe a great children’s book is a great adult’s book too. This one sure fits the bill. Humpty Dumpty has that infamous fall off the wall and what happens to him afterward is funny, healing, and magically majestic. If you know of a child (or adult) in the hospital or simply someone having difficult times, this is a book of humor, acceptance, and creative transformation. It’s a permanent fixture on my bookshelf.

Ani’s Light by Tanu Shree Singh with art by Sandhya Prabhat is about the depression and sadness when Mom is gone to the hospital for chemotherapy. This gentle picture book shows the reader that often fear makes us want to “hide” and find someplace safe.  But little by little the reader sees the importance of reaching out to others and slowly facing and talking about the fears that hurt one’s heart. 

I confess, I wasn’t sure I was going to enjoy this novel. I began reading it primarily to see what was percolating in slightly younger middle grade titles and in particular in books that are rooted in stories about differently-abled characters. Was I ever delightfully surprised when I fell in love with Ellie! I thought the novel was going to be about a lot of mean treatment by kids at school, but in truth, there wasn’t nearly as much of that as I expected (which was an enormous relief!). If you’re thinking, wait, I thought this was going to be a novel about survival, I’m here to tell you that every single day in Ellie’s life is its own survival story.

Surviving being left out of nearly all the activities the rest of the kids find fun; surviving the humiliation of having an aide take her from class to class,… show more.

Janine is good at lots of things like singing, spelling, and cheering.  But she’s not good at sports and is bullied and teased by her competitive classmate, Abbie. Janine runs the race and doesn’t mind being in last place. She’s just glad to participate.  When Abbie falls, Janine is the one who stops, helps her up, and together they cross the finish line.

Janine is the best kind of competitor – kind and encouraging as she urges everyone to do their best. Children with different abilities are included in all the activities making this book an inclusive celebration of sportsmanship.

When I look back at my journey, I feel that this book was the beginning of my survival guide in a world that wasn't made for me. It lets readers with disabilities, such as myself, realize that it's OK to do things in society in a different way. This is because it's not your disability that defines who you are. We provided me with the proper written representation I needed. Reading about how he helps himself really boosts the self-esteem of children with disabilities, especially cerebral palsy.

I was absolutely stunned when I read "Unspeakable Conversations" by Harriet McBryde Johnson, one of the many brilliant pieces included in this reader. My edition is from 2010, but new and updated editions have come out since. It explores questions of interdependency and independence, gender, the body, sexuality, biases in science and medicine, and physical disabilities, and investigates issues around pain, mental disability, and invisible disabilities.

Becoming familiar with some disability theories has been invaluable to me. My capacity to read myself as disabled has grown and still fluctuates. To know that sharp minds have been working on this and that it isn’t only a private issue but a political and theoretical one, one that can be marked by joy and humor as well as grief, struggle, and hardship, is immensely helpful. 

I find Puar’s work to be very useful even if the theoretical framework she uses is different from, though adjacent to, mine. Usually I find the “biopolitical” analysis cloying and idealist, but Puar has developed her own materialist use of this framework that I have learned a lot from. In The Right to Maim Puar examines the liberal state’s use of maiming and debilitation as part of the reproduction of its hegemony. Not only does she examine the way a liberal disability discourse functions to exclude marginalized and targeted populations—proposing a vector of disability, debility, and capacity—she also interrogates how maiming functions in capitalist, colonial, and imperialist state policing. Moreover, her case study of Palestine, based on her own fieldwork, makes the more abstract aspects of her theory concrete.  

Black Disability Politics also just came out in early Fall 2022, and I was very excited to receive my print copy. The book shows how Black people have long engaged with disability as a political issue tightly tied to race and racism. This, however, has not been the story told in disability studies or in mainstream histories of the Disability Rights movement. Schalk deeply explores archives (for instance those of the Black Panther Party) and layers these findings across interviews with contemporary Black disabled community organizers, to recognize the richness and power of Black disability politics. This book is full of surprises, memorable archival anecdotes, and powerful conversations between Schalk and others. You should read this book! If a goal within ableist and white supremacist society is liberation, Schalk shows how essential it is to engage in antiracist, feminist, and anti-ableist political and cultural coalition.

I was lucky to get the opportunity to read an advance copy of Dr. Kerschbaum's latest monograph, Signs of Disability (in the press and available in both print and open access in Fall 2022). The book focuses on the signs of disability we can recognize everywhere around us: yellow diamond-shaped “deaf person in area” road signs, that wheelchair parking icon, the telltale shapes of hearing aids, or white-tipped canes sweeping across footpaths. But even though the signs are ubiquitous, Kerschbaum argues that disability may still not be perceived as anything but a token or an apparition. This engaging, accessible book builds on Kerschbaum’s already-award-winning scholarship on difference and discourse, constructing new research methods and approaches, but also building community on these pages. Drawing on a set of thirty-three research interviews, as well as written narratives by disabled people, this book builds a new system of signs and significance for disability.… show more.