Books like Living with Polio

As a student at San Francisco State University, I took Paul Longmore’s HIST 490 “Disability in America” course and it quite simply changed how I interpret United States history. The autobiographical title essay in Why I Burned My Book presents foundational logic for understanding legal and cultural barriers impacting the disabled, and how capitalism impacts minority groups. Nobody speaks better on disability than the disabled. Longmore creates a model built upon the work of earlier disability scholars-activist in presenting “Catch-22” paradigms in oppressive laws related to race and gender impacting minority groups. When I read Longmore’s ideas, I can again look into his insightful eyes flashing sparks of humor, defiance, anger, and joy. My book about Helen Keller simply would not exist without Longmore’s passionate investment in students.

Paul Longmore assigned Everyone Here Spoke Sign Language for the “Disability in America” course I took. As a folklorist this book hooked me. It is totally unique, combining science (genetics), history, maritime culture, and community. It consolidates sign language “oral histories” documenting a Deaf community’s cultural heritage in Martha’s Vineyard passed through generations. Everyone Here Spoke Sign Language offers an essential message from this tight-knit community where deafness was more a trait than a disability. Understanding how Helen Keller had a Deafblind destiny shaped by her times (as earlier were Deafblind woman should be women Julia Brace and Laura Bridgman), I sometimes wonder if Keller would have been less stressed if she had not been pressured by proponents of auralism like Alexander Graham Bell to learn to speak aloud.

My personal creativity is not tidy… I believe nobody creates in a vacuum. The disabled contribute intelligence, perspective, and expression to all modes of creative production. Understanding how to utilize talent from any historically marginalized group means learning how to communicate with folks with diverse abilities and backgrounds. Utilizing respectful language and practices with diverse communities will draw and engage audiences with more vibrant storytelling in today’s world. This practical guide includes case studies designed to guide theater companies to create inclusive productions with the disabled in central and creative roles. Disability and Theatre illustrates how in the theater, where “all the world is a stage”, as in our own lives, creative processes emerge when people with different abilities work together… that is just good living.

I believe a society’s resilience does not happen by coddling, oppressing, or marginalizing the disabled (or any minority group), but by fostering holistic, inclusive communities that move in cinque. We Move Together is a picture book about disability justice designed for intergenerational sharing. It is appropriate for all ages as it simply states we as a society move best together no matter of disability, race, gender, or age. The brilliance of this straightforward assertion is its universal intersectionality. The book contains helpful explanations of statements in the verses along with resources for learning more in the back. I love this message! Removing barriers to access, communication, work, relationships, and living independent and self-determined lives helps everyone and fosters healthy democracy.

Between suffering from polio as a child, post-polio syndrome as an adult, betrayal, the loss of a son, and a husband who left soon after – Vaneetha Risner has endured unimaginable suffering. For that reason, her honest words about suffering have left an incredible impact on me as I’ve endured my own. She doesn’t “preach” to us as if we need to get our act together, but she writes with compassion, honesty, and comfort as one who’s been there. Despite having every reason to be angry and bitter at the people who have hurt her and God himself, she is full of wisdom, grace, and joy, and shares about the hope she has that has enabled her to endure. 

Sidhwa’s book describes the partition of India that formed present-day India and Pakistan. These tortured days and the tragedies and massacres that followed are viewed through the lens of a gentle and educated Parsi family. The narrator is Lenny, a young girl afflicted with polio, whose active observations center on the members of her family and servants. Her eighteen-year-old Ayah and the devotion of the ice-candy man play out against the backdrop of terrible hatred and betrayal, where religious affiliation trumps all, even what some call love, and others, lust. 

This book had me weeping for days. Its simplicity is deceptive. The simple narration from a six-year-old is entirely believable, the confusion of what really happened, and what it means. But the adult me could read between the lines and understand the full measure of tragedy, the horror, the inevitable result. And I was glad that Lenny was too young… show more.

Peg Kehret brings humor and a genuine can-do attitude to her memoir about being struck by polio when she was twelve years old, leaving her paralyzed in both her arms and legs. The story of her fight to recover and to walk again is enriched by her friendship with fellow patients, the generous love of her family, and the care of a determined nurse. Peg is neither saint nor grouch—just someone you like as much as you admire. This is a feel-good book about a feel-bad topic. 

As the daughter of one of the last children to contract polio before the vaccines, I knew this was going to be an important book even before I opened it.

But it was also a page-turning chronicle of Dr. Dorothy Horstmann, a pioneer in the battle to eradicate polio. I was often infuriated by what she faced as a woman in science during the 1950s; it was a very good read that brought much-needed attention to this extraordinary woman’s gifts to medical science.

This 1977 novel is one of the books that made me want to be a writer, and I’ve read it more times than I can count.

I love the fact that it’s about a tomboy who lets a new friend believe that she is a boy. The historical background of the polio epidemic is interesting (and newly relevant). And I especially like that it breaks one of the “rules” about books for kids, which is that they shouldn’t include too much about the adults. But why not? Adults had a huge impact on me as a kid, for better or worse, and they’ve always interested me as characters.

In a clear presentation, Oshinsky’s presents the gripping history of the conquest of poliomyelitis. The new and advanced role of the media’s impact and widespread community participation is detailed as is the terror of polio, efforts to understand the virus, and the disease it caused. The intense and competitive effort to find a cure adds to the story. Lastly, this book describes how the polio experience led to the establishment of government oversight for new drugs.